oh how long already the vitiligo ? do the meladinine works?

Have you all ever try injection? my doctor inject some medicine to the white spot , one week already , he asked me go back follow up

i had got my melagenina plus , originated from Cuba , quite famous , if u google it for information , it had 86% success rate , i'm gonna try it , but still UVB light never fail me (for the white spot on the face) , but white spot hand and leg is hard to get rid off

will update you all about my try!!!

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Added on July 24, 2012, 10:59 pmi heard about ginkgo biloba is good for vitiligo ! but is yet to try

had you heard of the pepper extract , peperine ? is not in market yet , is under study still ~ i hope this new drug will faster be avalaible http://www.dailyglow.com/blogs/skin-and-ha...ome-from-pepper

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Added on July 24, 2012, 11:00 pmis the anti vitiligo oil working ?

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Added on July 24, 2012, 11:03 pmyea protopic is for the face , but the cortisone will work better for the body. i had been using these cream for years , and protopic will have burning sensation esp if u apply on the eyelid, if ur patches will be gone by these treatment then very good oh~ cause only new patches will respond but if the patches is quite some time already , it wont respond well already

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Added on July 24, 2012, 11:07 pmserious ? the long term topical steroid use will have systemic effect ? i had been using for years ! what is topical pimecrolimus?

This post has been edited by fight for life: Jul 24 2012, 11:07 PM

Hmmm.... every doctor prescribe a meladine but Dr Ranjit just gave me a Griffon pills. It's stated on the pills. Didn't give me a box with it. Anyone know how much Griffon pills cost?

here I'm back

no different using the oil plus I'm lazy to regularly use it =="
just buat muka tembok je if people ask ....

regarding those protopic are they really effective ?
or just prevent spreading. I got vitiligo after I ended up having dengue fever for a week then the patch shows up on my face ...not spreading extensively though ...just noticed I started to have a patch white hair after all these time......

plan to go visit dr ranjit too, eh u claim insurance ah? saw ur post when i research about dr ranjit , how to claim wo? insurance usually put it under comestic wo , can i pm you regarding the insurance ?

Thats the hardest part cause im a perfectionist. Hehehe.. Anyway, since using consume the pills, only left few spots on my hand. Going there again next friday.

protopic is effective when the lesion is on the early stage ..it is to stimulate back the cell la



This post has been edited by fight for life: Aug 24 2012, 11:08 PM

anyone heard about national skin centre before ? it is in SIngapore , it had more advance treatment for vitiligo and it is 30 to 70 sing dollar for per excimer laser treatment , consultation fees 50 singapore dollar ( if i not mistaken )

i am considering apply for jobs in singapore just to treat my vitiligo there , here is the link about national skin centre for reference

http://www.nsc.gov.sg/showpage.asp?id=222









additionally

guys , i found this thread , is it trustable ? antivitiligo tablet , creditability a bit questionable
http://www.antivitiligotablets.com/

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Added on August 29, 2012, 9:08 amAnyone fancy a vitiligo patient gathering? U all can add me at fb , pm me so we all can stay connect , we are here to support each other

This post has been edited by fight for life: Aug 29 2012, 09:08 AM

Hi,

I also got treatment from Dr.Nathan. The treatment is very effective, but it will take long time to cure & some times it may re-occur.

First few months Dr game me maladine tablet & beprosone cream. After that he gave me Triamcinalone injection & psoralen lotion (stay under sun for UV 30 mins after applying lotion for 20 mins).

After few more months he gave me folic acid tablets , some tablet for control gastric. Then Daivobet ointment

So overall 80% of my vitiligo spots cured, but as per my general physician - all these are steroids, most of the time these steroids will impact /damage other parts of human system. After all the medication my vitiligo spots reduced & diabetic has started

So I stopped visiting Dr..nathan ...

Note: The treatment also bit expensive (At least for me !!!) is around RM200- RM300 per month.

From past 8 months I am using homeopathy medicine. So far no positive results. But good news is that there is no NEW spots

FYI: my spots are on left side of face, lips, scalp, chest & lately in groins ... all are small spots except at groins

Regards,
KP

Meladinine is a steroid?

Where are you going for homeopathy treatment?

Dear all i am now visiting dr ruban, i think its dr nathan brother according to my assunta friend

http://zeenews.india.com/news/health/disea...ligo_18762.html

New ttype of treatment for Vitiligo

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Added on September 12, 2012, 11:15 amPavuluri Krishna Choudhary, Hyderabad, India

This post has been edited by kapra: Sep 12 2012, 11:15 AM

good. Waiting for it..

Dear all , i got a news for you all

so i had been to dr ranjit clinic , he ask me to take some pill in the morning , then go expose myself to sun after one hour and a half of taking that pill

It might worked , but it caused me heartburn everytime i took it so i give up on it

and stop trying to repigment the hands, it wont work , just making it more obvious


then lastest attempt is to Dr ruban clinic at damansara heights , he got sell narrowband UVB machine from DERMAPAL
http://www.daavlin.com/patients/photothera...calp-spot-unit/

Price : rm4000 plus per unit ( Dr Ruban got offer easy payment with credit card)
country: USA
Clinic Website: http://www.drruban.com/

and guys if UVB could not help you,
excimer laser is the best technology now
http://gleneagleskl.com.my/find-a-doctor/
Find Dr Gan
I think he is the only Dr in Malaysia with excimer laser
i ask about the treatment fees
roughly around rm200 per treatment excluding consultation fees ( around rm150)


so you all can make your move to get the treatment

How come u know all these medical term ? i find out Dr Ruban is Dr Nathan Son, yeah , he gave me some injection at my thigh as well , he told me that is steroid so that my immune system wont keep killing my melanin
but he did not tell me name of those though


oh well , but i feel a bit of week and always crave of sweet food , is that a sign ? i dont want to get diabetes

Do you all know the vitiligo program by clinuvel ?
Its really giving positive hope...
they are doing the research on a new drug to cure vitiligo
and the result is promosing


but all the trials and drug test gonna take 2 to 3 years from now
gotta wait

http://www.clinuvel.com/en/scenesse/vitiligo

Guys i also wanna tell that i created a facebook group to support each other of the vitiligo patient in Malaysia '

i think stigmatization can really crushed someone down ,
so i created this facebook group so that we'll know we got each other back
u can search this name "vitiligo bond malaysia" https://www.facebook.com/groups/417865751609854/
dont worry its a closed group , so other ppl cant see what is in it ...'


Hope you guys live life strong everyday !

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Added on September 18, 2012, 11:46 pmsorry for spamming the wall , cause i got info to share again

http://www.clinuvel.com/en/news/webcasts/w...e-wolgen-part-4

if u know michael jackson and lee thomas, well mj is a well known singer, lee thomas is a well know anchor in US , so both of them having vitiligo

lee thomas was the spokeperson for vitiligo community in US

now he is asking about the new drug developed by the pharmaceutical company :clinuvel , the progress of the new drug and what roles should a vitiligo patient plays

Though we suffer from vitiligo , we are not alone , i am sure there are more vitiligo patients in Malaysia , i just wanna group up and tell the other that we support each other ! and if no one did this , i try tho , starting today to raise the awareness to public about this decease

thought there are unspoken comment , but all the stares and weird look that throw on me .....i think no one should be discriminated ..we are NORMAL ....its time to voice out ...

i need to know ur story, i wish i could gather everyone story, each story of a vitiligo patient ( without real names of course) , and let the society know about us , we are not isolated by the society , we need to create the awareness....

This post has been edited by fight for life: Sep 19 2012, 12:01 AM

It has been almost 3 months since my visit to Ayurveda(http://www.samkkya.com.my/). I'm seeing significant re pigmentation on my hand. So far the treatment looks good price around RM100++ per visit. But you must be vegetarian for at least 3 months first.

DEar all,

remember that i said there is a facebook group ?

and now we have OUR 1ST VITILIGO PATIENT GATHERING IN MALAYSIA !!!




i had print screen the fb group so u all can see it
but OF COURSE I HAD block some privacy information of mine and also other members in the groups
some of the forumers in this topic already join the facebook group,
i hope u all also will join this movement together .



p/s: click to enlarge the picture

and if u still cant see the details clearly,
here is it

"dear all, you are cordially invited to our 1ST vitiligo patient gathering!
we will talk about what we had been through , how we overcome , what works and what do not works for repigmentation and the most importantly to cultivate friendship and the bond between each other

so come and join us !

Time : 6.30pm
Date: 25th OCTOBER (its next thursday !)
Venue: Nature's Vegetarian Restaurant
52, jln ss 14/2 (opposite metropolitan college), subang jaya, malaysia

SEEEEEEEEEEE you there !!!

looking forward to it"
Thank you so much !

This post has been edited by fight for life: Oct 20 2012, 01:25 PM

Anyone joining the gathering tonight...?