The gathering was fun ! we talked about everything .....like how we face interview with vitiligo...how we deal with vitiligo at work , which skin doctors to go , how much they charge ! most importantly , it cheers up our days knowing that we are not alone !

thanks dear forumer skumaran24 and also facebook group member for joining and also share a lot about his experience as a vitiligo patient on that day too

Anyone has any idea on this?

http://nileherb.blogspot.com/2008/09/vitil...ill-eye-go.html

I inquired them and the reply says that 80% success.

hi guys ... how are u all doing , so i tried this item called Vitiligo cover lotion from USA

Okay so this is my review using the vitiligo cover
1.it blends in well with my skintone..it looks natural (except u greedy apply too much at one time lol)
2. One bottle is economical as i.use so little
3. The colour staysssssss ! It trick me to think that i am repigmenting LOL ...even i bath ..even i wash my hand with soap it stay there ...when i wipe my hand dry with towel aft i wash my hand


Cons
1. Need to apply carefully for esp for those smaller white patches cause need to avoid the pigmented skin
2.wont make ur skin look like they dont hv vitiligo but less lesss lesssss obvious definitely

You can check out the before and after pic.






I had shared it over the facebook group as well
https://www.facebook.com/groups/417865751609854/?fref=ts


Attached thumbnail(s)

Dear Choco Cream ,

i dont really trust these kinda online thing cause they are 90 % fraud , if you are staying around in kl i can recommend you a ayuveda clinic in Bangsar , me and another forumer is seeking treatment there.

http://www.samkkya.com.my/

youu may pm me or join this facebook group if you need further information
https://www.facebook.com/groups/417865751609854/?fref=ts (name called vitiligo bond malaysia)

All the info , life stories of the vitiligo patient (we are trying to find out how everybody get the disease too) , you can get the access through the fb group

thanks.


Serving alongside,
JY
founder of Vitiligo Bond Malaysia

This is the description of the vitiligo community group in malaysia called "Vitiligo Bond Malaysia"

https://www.facebook.com/groups/417865751609854/

__________________________________________________________________________________________________________________________________

Vitiligo Bond Malaysia was created on October 2012. The first gathering of the vitiligo patient was on 25th October 2012, Kuala Lumpur.


The vision of this non profit organisation is to create awareness of Malaysian about Vitiligo. We gather all the vitiligo patients to unite them and let our voices to be heard one day . We may start small but we will grow.

This is a place where we share all the treatment reviews and places /clinics that we went to seek treatment, with the power of this vitiligo community , we can strengthen each other , most importantly networking , to know each other and share information.


"gathering weeping soul and put smile on their face again"

Serving alongside of Vitiligo Bond Malaysia,
JY
last updated on 26th November 2012

___________________________________________________________________________________________________________________________________

Roughly how much would it cost?
I have vitiligo since I am 6, and I'm 25 now.
my patches has been better as time goes but at some area, it will still "spread" little by little.
=(

the first time i went , they charge me rm 155 include the medicine and then subsequently is lesser , around rm 60 , i only see him once per month , so it is not so burdened la

do join our group ya , there you can get more people to answer you and faster , and the group is secret , even you join with your fb , no one will know you have this group or any activities in there , so no need to worry about that

Hi Guys, Let me introduce myself,

I am a clinical researcher who would be handling a new Vitiligo treatment drug trial in Singapore which would be starting in a few weeks time.

The drug being tested is called Afamelanotide by the company Clinuvel. Treatment is given concurrently with Narrow Band UVB treatment. We are seeking to recruit 60 patients for the drug trial and results from earlier trials in the US is promising.

This would be the first trial of the drug on the Asian population. So please help us develop a better treatment for vitiligo by spreading the awareness of this trial.

If you are interested to participate or would like more information, please PM me for further details.

Participation in the trial is free and there will be some travel reimbursement. Though there would be frequent visits (twice a week) required to the National Skin Centre Singapore for the treatments. All consultations and treatment expenses for the trial would be free as well.

This post has been edited by wjyen88: Apr 4 2014, 10:55 AM

Hi all, you want to visit Dr Chandran in Teluk Intan or Sabak Bernam clinics for treatment. It worked for me. I have been taking his suggested medication and it has recovered 70% overall. Will be joining the FB group to post the pictures

DR CHANDRAN A/L RAJAGOPAL 259 TAMAN CICELY 03-3216 1282 (O) 03-3216 3907 (O)
36000 TELUK INTAN, PERAK 05-621 1811 05-621 1654 (O)
EMAIL: drchandranmd@gmail.com



69A Jln Menteri 45200 Sabak Bernam Sabak Bernam Selangor 45200 Malaysia, Sabak Bernam, Selangor Darul Ehsan, 45200
60332161282

Dear all,
Since some of you had treatment in Ayuveda clinic in Bangsar, is that work?
I just have vitiligo on my neck 2 months ago

Dear Forumers,
I have been diagnosed since last friday 2/01/2015 for vitiligo. There are quite number of spots i have identified on my both legs and thighs.

I am afraid it may spread further to my visible portion of my body which is hands, face and neck.

Can some one help where i should start for the right treatment for this.


Do you guys feel like itchy and burning sensation on your skin upon having this symptoms?

May GOD save every one of us from this disease.

HI
Is this discussion
still active?

It is but in facebook and we have a whatsapp group

Thanks.
Whose is the admit on the Facebook.
I had been requested to join on last week but still have not response.

hi, can i have the address for dr. nanjit?
and also which dr do u all visit at ayurveda bangsar?
i have join the group in fb but so far request not approved yet
thanks

Hey Folks, I bumped into this cream and vitiligo patients confirmed that pigmentation came back into their skins. The ingredients according to the Net is: Herbal extracts of: Racemosana, Curcuma, Ceresin, Lanolin, Glycol, Retinyl, Citric Acid, Azadirachta Indica, Paraffinum, Croton, Rubiana, Coumarin, milking grease. This cream is for vitiligo patients and helps for many other skin disorders. The name of the product is xemoban. Best of luck.

any updates after the cream ?

I heard pure honey can cure this.....but dont know how is the way of treatment? Consume it or just apply t the effected area...anyone?

I applied protopic for about 3 months and at the same time I take olive leaf extract. My white patches are still there but became less visible.

I know this is a very old post but I still hope anyone would reply cos still waiting for approval to join FB group.

I have white patches on hand and legs, and after googling I found out they are vitiligo. I went to see a medical doctor and she said it it most probably vitiligo and suggested that I see a skin specialist/dermatologist, but I haven't go see one.

After I found out that this is one of the autoimmune disease, I kind of scared that I might have any other autoimmune related disease. Because during pregnancy, my gynae found that I have higher level of thyroid, which then back to normal after I delivered.

My question - any of you go to see any other specialist other than skin for vitiligo or did any test for autoimmune related disease?

Thanks a lot in advance.