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Medical Conditions VITILIGO PATIENT SUPPORT, disfiguring and autoimmune disease

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lbaby
post Apr 21 2012, 06:40 PM

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kinda sure its nerve problem , i've been taking vit b12 , and it helps, the patches reduced ! but need to combine with the treatment of light therapy

according to the link above , the scientist admister the patient 1000mg b12 and 10mg folic acid per day , then i followed , one month passed , the patches are reducing ....wink.gif i also got take vitamin c
SUSTham
post Apr 23 2012, 03:21 AM

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A quick search of Medline turns up a few herbs and supplements
which may help your condition :

Ginkgo biloba
Cassia occidentalis (Senna, the common laxative herb)
Nigella sativa extract (black seed extract)

The amino acid, L-phenylalanine


The studies are here :

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2432048

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3065445/

http://www.ncbi.nlm.nih.gov/m/pubmed/21328088

http://www.ncbi.nlm.nih.gov/m/pubmed/21492177


Psoralea coryfolia is also popular, but there are reports of liver toxicity.
I believe it helps because the psoralens in it are photosensitizing, which
would improve UV treatments.

If psoralens are useful, then celery, which contains psoralens, would help
as well when used with UV.


http://www.ncbi.nlm.nih.gov/m/pubmed/20051255/

http://www.motherherbs.com/psoralea-corylifolia.html

http://www.ncbi.nlm.nih.gov/m/pubmed/19841509/

http://www.ncbi.nlm.nih.gov/m/pubmed/19640237/


You can buy black seed capsules or softgels from many of these
Malay herbal medicine stalls around town - a good brand is Baraka
from from Egypt. I've taken it before for general immunity support.




This may help you understand your condition before.

Vitiligo and the melanocyte reservoir.

http://www.e-ijd.org/article.asp?issn=0019...ulast=Falabella






bonzaimy
post Apr 27 2012, 12:05 AM

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Hmmm. I was wondering, tanning can temporarily cover the vitiligo part or not. Just for a quick solution
uRfaith143
post May 4 2012, 11:28 AM

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what's the root of vitiligo? is this curable?
SilverIce55
post May 7 2012, 07:51 PM

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Hi guys,

I'm a vitiligo patient from Penang.

I've been dealing with it for about 6 months after notified it on my forehead.

Been taking B12 and folix acid, but my blood test report is showing I'm overdosed with these 2 vitamins lol

My doctor is telling me that those are not the real factors for vitiligo and ask me to apply Protopic every night before I go to bed.

I'm going to try this and update everyone the status monthly. Btw, has anyone tried this treatment?


skumaran24
post May 10 2012, 09:18 AM

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Hi Guys,

Had vitiligo since I was 8 and now I'm 27. Good to see there is a forum where everyone sharing their finding. Hopefully there will be a cure soon...

I tried this http://askdrshah.com/lueco.htm but did not work for me, maybe it might work for you.
bonzaimy
post May 14 2012, 05:53 AM

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QUOTE(skumaran24 @ May 10 2012, 09:18 AM)
Hi Guys,

Had vitiligo since I was 8 and now I'm 27. Good to see there is a forum where everyone sharing their finding. Hopefully there will be a cure soon...

I tried this http://askdrshah.com/lueco.htm but did not work for me, maybe it might work for you.
*
Hahaha..if it is not working for you,I also dont want to try la.How bad is ur vitiligo?
samowong
post May 14 2012, 11:15 AM

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The current most widely accepted theory causing vitiligo is autoimmunity. Autoimmunity means the body's own immune system attacks its own cells, and in the case of vitiligo, the destruction of melanocytes by the body's own antibodies. That is why vitiligo patients are screened for other autoimmune conditions like Hashimoto's thyroiditis, diabetes mellitus, Addison's disease, alopecia areata, etc.

Melanocytes reside at the base of the skin, generating melanin which gives colour to the skin. When skin is exposed to UVA & UVB (in sunlight), there is DNA damage in the skin which triggers increased production of melanin that absorbs UV rays and protects the skin from further damage, hence the tan. That is why there is such high incidence of skin cancer in the light-skinned e.g Caucasians as there is less protective melanin in their skin. That is also why we should not sunbath / go for tanning beds. Look for sunblocks against both UVA and UVB. Avoid the sun from 10am to 4 pm.

In vitiligo, treatment is aimed at increasing melanin production from melanocytes at the borders of the lesion as well as spared melanocytes not affected by depigmentation, hence the UV phototherapy.
Topical steroids are used to suppress the local skin immune system so that there is no further destruction of melanocytes. Long term topical steroid use is associated with skin thinning and systemic effects. Hence, topical pimecrolimus is recommended as substitute.

Other treatments include:
- skin grafting
- laser
- protect against sun

skumaran24
post May 14 2012, 02:14 PM

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QUOTE(bonzaimy @ May 14 2012, 05:53 AM)
Hahaha..if it is not working for you,I also dont want to try la.How bad is ur vitiligo?
*
The medicine does not react the same for everyone. Some treatment that works for you might not work for me too smile.gif. Mine is quite bad, leg, hand, body and face. Learn to live with it already.


Added on May 14, 2012, 2:28 pmThe best treatment so far that has very significant effect for me is:
1. To consume this tablets on alternate days.
http://behboddarou.com/images/meladinine.jpg . You must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light.
2. Apply this cream 2 to 3 times everyday. http://www.drugexp.com/images/medicine/Der...ntment_25gm.jpg

Its quite effective. Here's my before and after picture.

Before
https://www.dropbox.com/s/morlz3r7wfdacaf/IMAG0005.jpg

After
https://www.dropbox.com/s/lgalhxr0j8en4y3/IMAG0278.jpg

You can visit Dr.Nathan at Asuntha Hospital. He treated me with this medication.

But then I had to change job, got busy and had to work at Sweden for few month during the winter. Now I'm back where I started smile.gif

This post has been edited by skumaran24: May 14 2012, 02:28 PM
bonzaimy
post May 14 2012, 07:13 PM

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My case is, I don't have a problem exposing my skin to sun. I don't feel hurt or anything. And the vitiligo is on my back and my upper arm. Here a picture of normal vitiligo person.
user posted image

And here is mine :-

user posted image


Hohoho.... You think this one can spread to my face?


Added on May 14, 2012, 7:17 pm
QUOTE(skumaran24 @ May 14 2012, 02:14 PM)
The medicine does not react the same for everyone. Some treatment that works for you might not work for me too smile.gif. Mine is quite bad, leg, hand, body and face. Learn to live with it already.


Added on May 14, 2012, 2:28 pmThe best treatment so far that has very significant effect for me is:
1. To consume this tablets on alternate days.
http://behboddarou.com/images/meladinine.jpg . You must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light.
2. Apply this cream 2 to 3 times everyday. http://www.drugexp.com/images/medicine/Der...ntment_25gm.jpg

Its quite effective. Here's my before and after picture.

Before
https://www.dropbox.com/s/morlz3r7wfdacaf/IMAG0005.jpg

After
https://www.dropbox.com/s/lgalhxr0j8en4y3/IMAG0278.jpg

You can visit Dr.Nathan at Asuntha Hospital. He treated me with this medication.

But then I had to change job, got busy and had to work at Sweden for few month during the winter. Now I'm back where I started smile.gif
*
Wow... good transformation dude. May I know how much does it cost? And what do you mean by "you must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light?". Mind to explain?

This post has been edited by bonzaimy: May 14 2012, 07:17 PM
skumaran24
post May 15 2012, 10:18 AM

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QUOTE(bonzaimy @ May 14 2012, 07:13 PM)
My case is, I don't have a problem exposing my skin to sun. I don't feel hurt or anything. And the vitiligo is on my back and my upper arm. Here a picture of normal vitiligo person.
user posted image

And here is mine :-

user posted image
Hohoho.... You think this one can spread to my face?

Its very difficult to say, I never had it on my nose but since last year it suddenly appear.


Added on May 14, 2012, 7:17 pm

Wow... good transformation dude. May I know how much does it cost? And what do you mean by "you must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light?". Mind to explain?
*
The tablet is RM64, the cream is about RM25 but I suggest you visit the skin specialist at Asuntha as I went there and took this treatment (later I practice it on my own).

"you must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light?"
1. Take tablet 2 hours before your planned suntan. I used to take it at 6AM (if you have UV light, you can use that. As we stand on the sun for the UV light which activates the medication)
2. After two hours, expose the area you would like to re pigment to the sun for 20 min. I usually to it from 8AM to 8.20AM
3. Do this on alternate days.
bonzaimy
post May 15 2012, 04:05 PM

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QUOTE(skumaran24 @ May 15 2012, 10:18 AM)
The tablet is RM64, the cream is about RM25 but I suggest you visit the skin specialist at Asuntha as I went there and took this treatment (later I practice it on my own).

"you must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light?"
1. Take tablet 2 hours before your planned suntan. I used to take it at 6AM (if you have UV light, you can use that. As we stand on the sun for the UV light which activates the medication)
2. After two hours, expose the area you would like to re pigment to the sun for 20 min. I usually to it from 8AM to 8.20AM
3. Do this on alternate days.
*
Err..sorry but normally if u visit skin specialist,how much does it cost?Can it cost till thousand of ringgi in one visit?
TinyPumpkin
post May 16 2012, 03:52 PM

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I have a big patch of white spot on my inner thigh; just a birthmark but have learnt to live with it.

When young was visible when wearing mini dresses.


skumaran24
post May 16 2012, 05:08 PM

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QUOTE(bonzaimy @ May 15 2012, 04:05 PM)
Err..sorry but normally if u visit skin specialist,how much does it cost?Can it cost till thousand of ringgi in one visit?
*
RM100 to RM200 per visit, usually once a month. But sometimes 2 months once.
bonzaimy
post May 31 2012, 12:51 PM

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QUOTE(lbaby @ Apr 21 2012, 06:40 PM)
kinda sure its nerve problem , i've been taking vit b12 , and it helps, the patches reduced ! but need to combine with the treatment of light therapy

according to the link above , the scientist admister the patient 1000mg b12 and 10mg folic acid per day , then i followed , one month passed , the patches are reducing ....wink.gif i also got take vitamin c
*
it is said that need to expose to sunlight. That mean sun will do no harm in spreading the patches cause all vitiligo patient said that they can't expose to sunlight. Hmmm...
TSfight for life
post Jul 14 2012, 12:38 PM

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QUOTE(skumaran24 @ May 14 2012, 02:14 PM)
The medicine does not react the same for everyone. Some treatment that works for you might not work for me too smile.gif. Mine is quite bad, leg, hand, body and face. Learn to live with it already.


Added on May 14, 2012, 2:28 pmThe best treatment so far that has very significant effect for me is:
1. To consume this tablets on alternate days.
http://behboddarou.com/images/meladinine.jpg . You must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light.
2. Apply this cream 2 to 3 times everyday. http://www.drugexp.com/images/medicine/Der...ntment_25gm.jpg

Its quite effective. Here's my before and after picture.

Before
https://www.dropbox.com/s/morlz3r7wfdacaf/IMAG0005.jpg

After
https://www.dropbox.com/s/lgalhxr0j8en4y3/IMAG0278.jpg

You can visit Dr.Nathan at Asuntha Hospital. He treated me with this medication.

But then I had to change job, got busy and had to work at Sweden for few month during the winter. Now I'm back where I started smile.gif
*
u mean the cream effective or sun tanning effective ? if i dont go sun tan then use the uvb light only can ?

so ur first visit to assunta how much they charge you ? subsequent visit is rm 100 to 200 right ,according to ur reply earlier ~


Added on July 14, 2012, 12:40 pm
QUOTE(bonzaimy @ May 31 2012, 12:51 PM)
it is said that need to expose to sunlight. That mean sun will do no harm in spreading the patches cause all vitiligo patient said that they can't expose to sunlight. Hmmm...
*
better dont simply expose to sunlight , i mean sunlight at different time is different ,b4 10 am the sunlight is ok , after that is not ok

my personal experience with sunlight is that everytime i exposed to sunlight already , like go to the beach or blah blah , my vitiligo will spread ~


Added on July 14, 2012, 1:05 pm
QUOTE(Demon_Eyes_Kyo @ Apr 3 2012, 09:56 PM)
Yup my doctor did mention something about nerve coz my vitiligo only affecting left part of my face. Did not spread to the right.

How much did u buy the lamp bro?
*
after converted to MYR, it is approximately rm 900 plus ~


Added on July 14, 2012, 1:06 pmwent to Dr Koh in Pj uptown, he gave me this cream called elomet, was effective and my vitiligo around my lips gone , but 2 months later it came back, it is me too stress or what~

This post has been edited by fight for life: Jul 14 2012, 01:06 PM
bonzaimy
post Jul 14 2012, 03:21 PM

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QUOTE(fight for life @ Jul 14 2012, 12:38 PM)
u mean the cream effective or sun tanning effective ? if i dont go sun tan then use the uvb light only can ?

so ur first visit to assunta how much they charge you ? subsequent visit is rm 100 to 200 right  ,according to ur reply earlier ~


Added on July 14, 2012, 12:40 pm

better dont simply expose to sunlight , i mean sunlight at different time is different ,b4 10 am the sunlight is ok , after that is not ok

my personal experience with sunlight is that everytime i exposed to sunlight already , like go to the beach or blah blah , my vitiligo will spread ~


Added on July 14, 2012, 1:05 pm

after converted to MYR, it is approximately rm 900 plus ~


Added on July 14, 2012, 1:06 pmwent to Dr Koh in Pj uptown, he gave me this cream called elomet, was effective and my vitiligo around my lips gone , but 2 months later it came back, it is me too stress or what~
*
Learn to control ur stress. I also found out that it will spread if stress a lot. Doc Ranjit at SS15 didnt gave me a cream but only a pills. It works and only left few spot before it return to normal.
TSfight for life
post Jul 16 2012, 12:13 AM

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QUOTE(bonzaimy @ Jul 14 2012, 03:21 PM)
Learn to control ur stress. I also found out that it will spread if stress a lot. Doc Ranjit at SS15 didnt gave me a cream but only a pills. It works and only left few spot before it return to normal.
*
yea , what pills is that ? so now the white patches are gone ?
accutane
post Jul 16 2012, 02:14 AM

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My bf has vitiligo, dr. Ting prescribed Meladinine for him...


skumaran24
post Jul 17 2012, 11:42 AM

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QUOTE(fight for life @ Jul 14 2012, 12:38 PM)
u mean the cream effective or sun tanning effective ? if i dont go sun tan then use the uvb light only can ?

so ur first visit to assunta how much they charge you ? subsequent visit is rm 100 to 200 right  ,according to ur reply earlier ~


Added on July 14, 2012, 12:40 pm

better dont simply expose to sunlight , i mean sunlight at different time is different ,b4 10 am the sunlight is ok , after that is not ok

my personal experience with sunlight is that everytime i exposed to sunlight already , like go to the beach or blah blah , my vitiligo will spread ~


Added on July 14, 2012, 1:05 pm

after converted to MYR, it is approximately rm 900 plus ~


Added on July 14, 2012, 1:06 pmwent to Dr Koh in Pj uptown, he gave me this cream called elomet, was effective and my vitiligo around my lips gone , but 2 months later it came back, it is me too stress or what~
*
1. Subsequent visit is about RM100 to RM200.
2. Sun exposure must be early morning sun.
3. Do take note, modern medicine has various side effect. e.g liver problem. Sometimes i feel its better to just have Vitiligo rather then these side effect problem. That's why i decided to stop taking these modern medicine.

Last Sunday i visited http://www.samkkya.com.my/ its Ayurveda clinic in Bangsar. They have treated patient with Vitiligo before. Will update you guys if there are any positive response. But generally it will take about 3 months for any Vitiligo treatment to show improvement.

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