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Medical Conditions VITILIGO PATIENT SUPPORT, disfiguring and autoimmune disease

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bonzaimy
post Mar 4 2012, 04:44 AM

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Hi there. I had a vitiligo since i was 17 and now im 26. The patches appeared on my back and my hand. Its really embarrasing you know. The laser surgery can really make my skin look normal? Gosh, i wish there is a cure for this disease
bonzaimy
post Mar 5 2012, 12:53 AM

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How to use that thing? Its on my back. I cant reach it.
bonzaimy
post Mar 23 2012, 06:29 PM

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have anyone of you try anti vitiligo oil? Is it working? And since the laser treatment only available in Taiwan, I can't go there every month to do the treatment. I just came back from overseas after a month and my mom told me that my back getting really worst. Now, I just bought a Dr Rozmey product, DR 11 cause i read that one of the guy got psoriasis and after he try that product, his skin looks normal. If it's okay, then probably i would recommend it to you guys.
bonzaimy
post Apr 27 2012, 12:05 AM

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Hmmm. I was wondering, tanning can temporarily cover the vitiligo part or not. Just for a quick solution
bonzaimy
post May 14 2012, 05:53 AM

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QUOTE(skumaran24 @ May 10 2012, 09:18 AM)
Hi Guys,

Had vitiligo since I was 8 and now I'm 27. Good to see there is a forum where everyone sharing their finding. Hopefully there will be a cure soon...

I tried this http://askdrshah.com/lueco.htm but did not work for me, maybe it might work for you.
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Hahaha..if it is not working for you,I also dont want to try la.How bad is ur vitiligo?
bonzaimy
post May 14 2012, 07:13 PM

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My case is, I don't have a problem exposing my skin to sun. I don't feel hurt or anything. And the vitiligo is on my back and my upper arm. Here a picture of normal vitiligo person.
user posted image

And here is mine :-

user posted image


Hohoho.... You think this one can spread to my face?


Added on May 14, 2012, 7:17 pm
QUOTE(skumaran24 @ May 14 2012, 02:14 PM)
The medicine does not react the same for everyone. Some treatment that works for you might not work for me too smile.gif. Mine is quite bad, leg, hand, body and face. Learn to live with it already.


Added on May 14, 2012, 2:28 pmThe best treatment so far that has very significant effect for me is:
1. To consume this tablets on alternate days.
http://behboddarou.com/images/meladinine.jpg . You must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light.
2. Apply this cream 2 to 3 times everyday. http://www.drugexp.com/images/medicine/Der...ntment_25gm.jpg

Its quite effective. Here's my before and after picture.

Before
https://www.dropbox.com/s/morlz3r7wfdacaf/IMAG0005.jpg

After
https://www.dropbox.com/s/lgalhxr0j8en4y3/IMAG0278.jpg

You can visit Dr.Nathan at Asuntha Hospital. He treated me with this medication.

But then I had to change job, got busy and had to work at Sweden for few month during the winter. Now I'm back where I started smile.gif
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Wow... good transformation dude. May I know how much does it cost? And what do you mean by "you must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light?". Mind to explain?

This post has been edited by bonzaimy: May 14 2012, 07:17 PM
bonzaimy
post May 15 2012, 04:05 PM

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QUOTE(skumaran24 @ May 15 2012, 10:18 AM)
The tablet is RM64, the cream is about RM25 but I suggest you visit the skin specialist at Asuntha as I went there and took this treatment (later I practice it on my own).

"you must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light?"
1. Take tablet 2 hours before your planned suntan. I used to take it at 6AM (if you have UV light, you can use that. As we stand on the sun for the UV light which activates the medication)
2. After two hours, expose the area you would like to re pigment to the sun for 20 min. I usually to it from 8AM to 8.20AM
3. Do this on alternate days.
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Err..sorry but normally if u visit skin specialist,how much does it cost?Can it cost till thousand of ringgi in one visit?
bonzaimy
post May 31 2012, 12:51 PM

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QUOTE(lbaby @ Apr 21 2012, 06:40 PM)
kinda sure its nerve problem , i've been taking vit b12 , and it helps, the patches reduced ! but need to combine with the treatment of light therapy

according to the link above , the scientist admister the patient 1000mg b12 and 10mg folic acid per day , then i followed , one month passed , the patches are reducing ....wink.gif i also got take vitamin c
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it is said that need to expose to sunlight. That mean sun will do no harm in spreading the patches cause all vitiligo patient said that they can't expose to sunlight. Hmmm...
bonzaimy
post Jul 14 2012, 03:21 PM

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QUOTE(fight for life @ Jul 14 2012, 12:38 PM)
u mean the cream effective or sun tanning effective ? if i dont go sun tan then use the uvb light only can ?

so ur first visit to assunta how much they charge you ? subsequent visit is rm 100 to 200 right  ,according to ur reply earlier ~


Added on July 14, 2012, 12:40 pm

better dont simply expose to sunlight , i mean sunlight at different time is different ,b4 10 am the sunlight is ok , after that is not ok

my personal experience with sunlight is that everytime i exposed to sunlight already , like go to the beach or blah blah , my vitiligo will spread ~


Added on July 14, 2012, 1:05 pm

after converted to MYR, it is approximately rm 900 plus ~


Added on July 14, 2012, 1:06 pmwent to Dr Koh in Pj uptown, he gave me this cream called elomet, was effective and my vitiligo around my lips gone , but 2 months later it came back, it is me too stress or what~
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Learn to control ur stress. I also found out that it will spread if stress a lot. Doc Ranjit at SS15 didnt gave me a cream but only a pills. It works and only left few spot before it return to normal.
bonzaimy
post Aug 6 2012, 12:15 PM

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Hmmm.... every doctor prescribe a meladine but Dr Ranjit just gave me a Griffon pills. It's stated on the pills. Didn't give me a box with it. Anyone know how much Griffon pills cost?
bonzaimy
post Aug 14 2012, 02:59 AM

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QUOTE(devilish_yin @ Aug 8 2012, 12:02 AM)
here I'm back

no different using the oil plus I'm lazy to regularly use it =="
just buat muka tembok je if people ask ....

regarding those protopic are they really effective ?
or just prevent spreading. I got vitiligo after I ended up having dengue fever for a week then the patch shows up on my face ...not spreading extensively though ...just noticed I started to have a patch  white hair after all these time......
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Thats the hardest part cause im a perfectionist. Hehehe.. Anyway, since using consume the pills, only left few spots on my hand. Going there again next friday. icon_rolleyes.gif
bonzaimy
post Sep 6 2012, 09:10 PM

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QUOTE(kapra @ Sep 6 2012, 08:50 PM)
Hi,

I also got treatment from Dr.Nathan. The treatment is very effective, but it will take long time to cure & some times it may re-occur.

First few months Dr game me maladine tablet & beprosone cream. After that he gave me Triamcinalone injection & psoralen lotion (stay under sun for UV 30 mins after applying lotion for 20 mins).

After few more months he gave me folic acid tablets , some tablet for control gastric. Then Daivobet ointment

So overall 80% of my vitiligo spots cured, but as per my general physician - all these are steroids, most of the time these steroids will impact /damage other parts of human system. After all the medication my vitiligo spots reduced & diabetic has started sad.gif

So I stopped visiting Dr..nathan ...

Note: The treatment also bit expensive (At least for me !!!) is around RM200- RM300 per month.

From past 8 months I am using homeopathy medicine. So far no positive results. But good news is that there is no NEW spots smile.gif

FYI: my spots are on left side of face, lips, scalp, chest & lately in groins ... all are small spots except at groins

Regards,
KP
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Meladinine is a steroid? sweat.gif
bonzaimy
post Sep 12 2012, 03:43 PM

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QUOTE(kapra @ Sep 12 2012, 11:14 AM)
http://zeenews.india.com/news/health/disea...ligo_18762.html

New ttype of treatment for Vitiligo


Added on September 12, 2012, 11:15 am
Pavuluri Krishna Choudhary, Hyderabad, India
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good. Waiting for it.. laugh.gif
bonzaimy
post Oct 28 2015, 08:32 AM

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QUOTE(sunnyhow @ Oct 26 2015, 10:39 AM)
HI
Is this discussion
still active?
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It is but in facebook and we have a whatsapp group

 

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