Caution! Please read this before continue scrolling down for all contents in this thread.
DO NOT FOLLOW any advise below for medication purpose. Everyone may have different symptom/situation. Kindly seek for doctor advise for below suggestion.
I do not wants my thread to become the reason of any bad things happen to others. Thank You .

I like to share my experience in "Psoriasis" & seeks help from everyone which can help me
I know every time when we have problem we need to visit "Doctor" or google it which I did tried before. Dozen of article from wiki's, blogs, product selling page which is very useful hints for me.

So far I found Vitamins E / Fish Oil as nutrition & Dead sea salt bath product which is quite effective on it, anyone here can share with me any trusted brands for above mention nutrition & dead sea salt product which we can find in malaysia or safely buying online?

Of course I need to tell the condition of patient "Psoriasis"

Condition:-
1. Patient suffer more then 30 years & now age 60+.
2. Whole body infected from head to toe.

Medication & problem history:-
1. From beginning patient get Creams to apply on skin which contains "steroids" *as i know from wiki, this steroids must continues use from day to day. Until one day (after 20years) patient run out of cream and did not use it for more then 1-2 week, "Psoriasis" begin to exploded into terrifying effect and makes patient non-stop fever, skin become SUPER RED & very weak. Then admitted to Hospital. Lucky "patient" survive in this period and able to live again happily.

2. Now patient have to continues apply the same cream BUT not like last time, as doctor said patient skins become healthier and provide lesser % steroids cream for patient. Now skin becomes "Red" again after patients Vitamins E runs out for 1 week & without dead sea salt for "unknown *my mistake which i did not monitor it" amount of time. Until today I let patient continue back the Vitamin E.

Is there any "non-profit" organization out there which I can contact and seek for more solid info? I serious do not have that much $ to look for so many skin-care doctor outside as they already had patient $ for more then 20 years. I hope sifu's in here can provide me more info to defend this "Psoriasis"

All comment are welcome. Sorry for my bad English and kindly correct me.

Caution! Please read this before continue scrolling down for all contents in this thread.
DO NOT FOLLOW any advise below for medication purpose. Everyone may have different symptom/situation. Kindly seek for doctor advise for below suggestion.
I do not wants my thread to become the reason of any bad things happen to others. Thank You .

This post has been edited by skydrake: Nov 18 2011, 02:40 PM

try healin product

the product brand "healin"? any website? i try google
thank you

r u a patient or a doctor?

im one of Psoriasis "victim" too,

i lose my life coz of that stupid sick!

i'm not a patient or doctor, i'm taking care of a patient *patient is my family member.

please stand up and fight it! psoriasis seriously destroying life! i wish u luck!

I know it suck. Any disease which affect physicalk appearance usually give the patient hell in their life even if its not life threatening. Thats why I dont have bad image towards them.

I know of another forummer who also have psoriasis but think its not good for me to point him out. Maybe he will join this discussion when he sees this thread

together we can fight it, we don't have to ignore or scare of psoriasis appearance patient coz psoriasis "DON'T SPREAD TO OTHERS" drawback is psoriasis patient scare others spread disease to them. but I really aware of Psoriasis product scammer which i scare the most.

This post has been edited by skydrake: Nov 18 2011, 11:12 AM

i love my self,but me living a hell life! forver alone.
sometime its hard to explain to ppl about this sick, coz their 1st question is , "is it spread?"

avoid all type fish/sea food since some kind tend to make me itchy.
avoid chicken, alcohol(ah mostly i only drink plain water)
avoid all oily and spicy.
sleep atleast 6 hour+ or less i felt scalp developing so fast.
must take shower 3 or 2 time a day, water make me feel better.
everybody is diffrent , this is some tips i develop for mine.

as previous post #8
"I really aware of Psoriasis product scammer which i scare the most"
i waste alot of money trusting derma and medicine , whats is the point suppressing a sick, as soon your stop the medic , it will get worst than ever! - from my own experience.

Control Your life, dont let medicine control your life!

Yes you are all correct. Its the public perception that destroys your lives. Getting judged based on your disease is just not fair!!

People should be more understanding and caring towards patients and not add more to their suffering.

Most important thing is to make awareness to the public about you guys condition so they understand what is Psoriasis and other things that they fear. How they can help and stuff like that. I think there's an association somewhere in Malaysia cos I read about it sometime before in newspaper.

Btw, Im not infected with it and very grateful for what I have in my life

I will use my time "Spread" my word to others that "Psoriasis" don't SPREAD

the tips u mention also helps, as my patient also doing the same things. must make urself comfortable and happy will be more credits on it.

i just when to a farmacy at ampang point beside hongleong bank look for the toco-e vitamins & dead sea salt and they don't have it. the toco-e looks like below, u have any ideas where to get this?

Large picture, i lazy to reduce it. u may click link to look at it.
http://sorpoh.com/skydrake/2011-11-14%2008.15.07.jpg.jpeg
http://sorpoh.com/skydrake/2011-11-14%2008.15.23.jpg.jpeg
http://sorpoh.com/skydrake/2011-11-14%2008.15.34.jpg.jpeg

I agreed what u said and thank god ur not psoriasis patient. But u r still a nice person which helping me spreading this thread to let more ppl knows "psoriasis" don't spread. hope more ppl comes in here and share so we can counter psoriasis and make psoriasis patient a better way to live + hope to live without psoriasis one day!

I have psoriasis. Over 80% coverage of body mass.

The thing is, I suggest the "patient" finds a doctor who knows what psoriasis really is. A GP isn't going to cut it. You'll need to find a good dermatologist. Follow the doc's advice.

Usually, alcohol is a main trigger for psoriasis. Aside from that, food that affects the patient differs for each person. Be mindful of what is ingested so notes can be taken on which food causes a relapse.

Also, lifestyle is a HUGE deal. Exercise, balanced diet, rest, stress (emotional and physical) all have some bearing on psoriasis. The problem is that most people have problems maintaining that sort of disciplined lifestyle and get upset about it. That in turn, aggravates the psoriasis. Its unfortunate but life isn't fair.

On a personal note, i have found that as long as I keep exercising (I box) and have a balanced lifestyle, psoriasis relapse aren't that severe. My relapses occur mainly because I can't give up the Guinness.

"Patient" use to have follow up schedule from Ampang hospital, doctor use to arrange the "cream type" *looks like body lotion* day after day it "patient" skin become better n better. We follow all appointment to see doctor, after doctor sees patient skin become better, doctor begin the give lesser "cream type" medication and appointment become 6 month later. Now patient skin problem comes back a bit i scare it becomes like last time it happens to exploded to another illness again, i try to send patient to the same ampang hospital and they said must wait for appointment. Any suggestion on this issue? or must I send patient to private dermatologist? Any recommendation for me to make a survey on it? thank you for reading/responding on this thread

I began taking Resveratrol and Pycnogenol for a few weeks now. Seems to be working for me. Very minimal excessive skin peeling now

http://www.resveratrols.org/psoriasis.html
http://www.nutritionalreviews.org/pycnogenol

http://www.lef.org/magazine/mag2009/sep200...nditions_02.htm

Curcumin will be next on my list to get...this one is a super duper anti-oxidant

This post has been edited by tchtax: Nov 18 2011, 02:35 PM

only available online or can get this locally in KL/PJ area? thx for sharing.

Pycnogenol can get from GNC but the rest, I haven't seen it at the stores locally.

ic, thx for the info

Yup the other day I went to GNC, the promoter recommended me some supplement which is beneficial for skin. Some form of tree bark. You can check with them.

sorry, i miss out 1 question. what is GNC?

---

Added on November 18, 2011, 4:25 pmanyone tried this b4?

http://www.cosway.com.my/product/personal/prod_zara_01.htm

This post has been edited by skydrake: Nov 18 2011, 04:25 PM

GNC is a health product shop which is very well known in Malaysia. Try googling it for more info.

My father is a psoriasis victim. And I felt really sad for him, he had it since about 15 years ago, he is using the daivonex ointment manufactured by Leo pharma.

But now in Malaysia is not available anymore. Have to get from overseas.

I wish everyone a healthy life.