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 Psoriasis, Seeking Help

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tchtax
post Nov 20 2011, 04:27 PM

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QUOTE(barista @ Nov 18 2011, 03:51 PM)
Yup the other day I went to GNC, the promoter recommended me some supplement which is beneficial for skin. Some form of tree bark. You can check with them.
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It's Pycnogenol
adelinah
post Nov 20 2011, 07:19 PM

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Sorry to hear about the suffering here. My husband was diagnosed with psoriasis almost 25 years ago, he's no 46. he had it all over his scalp, his body, his legs and hands. I could peel huge scabs. the floor, bedsheet always covered. if the weather is hot, he feels more pain and especially if the skin cracks and bleeds.

He did all the mainstream treatments (Uv light, steriod creams, etc). It was only until my son was diagnosed with an 'uncurable' disease that I ventured and started studying about natural medicine.

please understand the psoriasis like autism is reversable. psoriasis is toxins related and gut issues. those who have plague psoriasis should investigate 'strep bacteria' as one of its causes. yes diet does allow you to see some improvement and so do some supplements especially natural anti inflamatories like curcumin. however to fully eradicate psoriasis you need to work diligently on it for about 6-10 months. it is nothing too difficult.

based on my research, my husband first started on the Pagano diet (there's a book you can google at amazon) but please note that he did go through a healing crisis. his body was hot, itchy and so very very uncomfortable for about 2 weeks.

after that, we managed to find a good natural doctor to start a proper supervision to eradicate his psoriasis. its looks so much better (only thing my husband a bit lazy to take all the supplements at 3 different intervals during the day). it can be considered expensive, as it will cost about RM300 per month on the supplements the doctor provides, but I guess to get rid of it, its worth for us to put that money aside that we would have used for dinner iwth the family in a restaurant. please email me if you like the doctor's contact.

please note I personally do not advocate applying creams/lotions of any kind as it 'suppresses' the condition. psoriasis from my research is an external manifestation of what's going on inside the body. the skin is one of the largest organ and is used primarily for detoxifying. if the gut is not healthy, you will get toxins leaking out (hence the term leaky gut syndrome) and you can also get things like yeast, parasites etc that breeds bad bacteria, hence why some people with psoriasis have gut issues like gastric etc.

good luck with your research.


oneeleven
post Nov 20 2011, 09:11 PM

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QUOTE(farkinid @ Nov 18 2011, 02:04 PM)
On a personal note, i have found that as long as I keep exercising (I box) and have a balanced lifestyle, psoriasis relapse aren't that severe. My relapses occur mainly because I can't give up the Guinness.
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I don't have Ps but seb dermatitis, something much less severe, red flaky spots, non-itching. I exercise, eat moderately, sleep, etc. I tried going without even a Guinness for a month but no improvement. Must I abstain longer to test if it is alcohol? I have a nightcap every evening, and several on weekends.

(No need for anyone to suggest meds from dermatologists or natural treatments. I have a long list that have failed.)

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adelinah
post Nov 21 2011, 11:52 AM

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QUOTE(oneeleven @ Nov 20 2011, 09:11 PM)
I don't have Ps but seb dermatitis, something much less severe, red flaky spots, non-itching. I exercise, eat moderately, sleep, etc. I tried going without even a Guinness for a month but no improvement. Must I abstain longer to test if it is alcohol? I have a nightcap every evening, and several on weekends.

(No need for anyone to suggest meds from dermatologists or natural treatments. I have a long list that have failed.)

111
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Again, any skin condition is an external manifestation. When you're healthy, having the night cap is fine, especially things like a small glass of guiness or red wine. Even eating red meat in moderation is fine (if its within your believe).

As for treatments, Im against pharmaceuticals that is applied on the skin. The only thing I use for the entire family and baby is either virgin coconut oil and calendula cream for nicks and bruises. To cure your condition, you need to go a little bit deeper and try other forms. Again I understand your frustration but you need to keep finding the doctor/treatment that wroks. Most often if it works, you will see your condition getting worst, or flaring up. Most people wil then think "oh no, he made it worst, its not working" and that's just the opposite, you're probably going through a healing crisis.

Please note from some research Ive done, you might want to stop any form of dandruff shampoo and use only simple organic product. In my opinion, we use too many products on your body (lotions, creams, hair gel, shampoo, conditioner, underarm deodorant, cologne, perfurme, etc) all the marketing gimmicks to 'mask' any foul odour which is the body's way of telling you something is not quite right.

please try to google natural antifungal, gut, yeast, etc related to your condition and you might find some pointers. i've found this new herb called nigella sativa, you might want to google to see if it helps. someone also mentioend Pycnogenol, that is quite good, but you might want to also research the dosages as you may need therapeutic dosages. I'm not a doctor so please be use your descretion and find a natural doctor to assist you.

SUSthis.ia.a.ball
post Nov 21 2011, 11:55 AM

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Does virgin coconut oil help in psoriasis?

If they do, I can help you guys get them. I think my uncle sells virgin coconut oil but imnot sure about the price. If they can help let me know the market price and ill try ask him if he can sell to you guys cheaper compare to markt price.
farkinid
post Nov 21 2011, 05:37 PM

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QUOTE(oneeleven @ Nov 20 2011, 09:11 PM)
I don't have Ps but seb dermatitis, something much less severe, red flaky spots, non-itching. I exercise, eat moderately, sleep, etc. I tried going without even a Guinness for a month but no improvement. Must I abstain longer to test if it is alcohol? I have a nightcap every evening, and several on weekends.

(No need for anyone to suggest meds from dermatologists or natural treatments. I have a long list that have failed.)

111
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Sorry but I'm not a doctor. I can't help you with your problem because I don't have any idea what seb dematitis is.
chino667
post Nov 21 2011, 08:07 PM

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Hi, try to use a product called daivobet. It is widely use on psoriasis patients with minimal side effect and have rapid onset of action.
oneeleven
post Nov 22 2011, 01:52 AM

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QUOTE(chino667 @ Nov 21 2011, 08:07 PM)
Hi, try to use a product called daivobet. It is widely use on psoriasis patients with minimal side effect and have rapid onset of action.
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Maybe for Psoriasis, but for dermatitis, this and similar didn't work. Been there, done that. That's a steroid like doctors sling out when there is no clear treatment, and most patients have learned it is a vicious circle to avoid. I've even tried non-steroids.

I still use raw honey for cleansing and cold-pressed coconut oil for moisturizing, instead of commercial products and they help but do not stop the symptoms. That's why I was wondering whether it is alcohol even in moderate amounts, but how long to stop to test the suspicion, I don't know. Also, I know non-drinkers who have this condition.


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Shanashi
post Nov 22 2011, 02:25 AM

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i have it too but its mild comes n goes used to be really bad 10 years ago all my fingers would peel and bleed dam malu wanna buy things when giving and receiving money cashier would gimme d wtf look after seeing my fingers sad.gif

what i use and still use from time to time is Diprosalic available from the pharmacy.....u can also try Hydrocortisone 1% ointment from the hospitals.....these 2 are very good products makes the peel and "buih" go away

till today i still dont know what triggers it in me...comes n goes for me haih

wish u guys all d best
TSskydrake
post Nov 22 2011, 11:47 AM

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glad to see more n more ppl comes in here n share, please keep stay in here share as much as we can, i will read all of it carefully n make a list on the #1st post as a guide lines to care n understand "psoriasis" more.

if anyone can volunteer to help me make a list of guide line will be good smile.gif coz i'm quite bz in this following month. i'm getting married on 24th december smile.gif

anyhow i will not letting this thread down for the sake of my patient n every kind soul that taking time read/replying in here.

i wish/pray for all of us good luck all the way, faith is still on our hand!!
oneeleven
post Nov 22 2011, 06:14 PM

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QUOTE(Shanashi @ Nov 22 2011, 02:25 AM)
what i use and still use from time to time is Diprosalic available from the pharmacy.....u can also try Hydrocortisone 1%
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Both of these are steroids. Salicylic acid is a skin exfoliant like in cosmetic face washes. These of course remove the top layers which help relieve symptoms temporarily, but in the long run your skin is getting thinner and thinner. My dermatitis is worst where the skin flakes off and leaves a raw red spot which feels like no skin covering at all. I worry that some psoriasis people may get the same thing after using steroids for years.

Nevermind, keep reporting anything that helps because the internet is full of information but it is good to know what works in our climate, with our diet, and what's available in our market.

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adelinah
post Nov 22 2011, 07:51 PM

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Yup my husband tried all those Beprosalic stuff and tons of steroid creams, plus we even have a big huge UVA light from Holland (this was old school treatment back in the 1980s). After seeing a homeopathy and naturopathy doctor, I am proud to say he is almost 100% cured. the finger nails is slowly coming back to normal. those who have severe psoriasis have really bad toe and finger nails. like there is fungus, and nails are sticking out from the nail bed, go holes in it. he was voted of having the most ugliest toes ever, and his joints hurt (osteo arthiritis)

All I can say is the dermatologist and immunologist still think psoriasis is 'incurable disease' and hence durg companies make zillions of dollars using people like my husband a trials and ask for donations towards their cause.

Please do try to get in touch with me if you want the information on the doctor or discuss more on the treatment he is undergoing as Im not going to be following this thread anymore. We live in PJ area and my husband will more and happily share his story with you.

God bless.


Added on November 22, 2011, 7:57 pm
QUOTE(this.ia.a.ball @ Nov 21 2011, 11:55 AM)
Does virgin coconut oil help in psoriasis?

If they do, I can help you guys get them. I think my uncle sells virgin coconut oil but imnot sure about the price. If they can help let me know the market price and ill try ask him if he can sell to you guys cheaper compare to markt price.
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Oh my gosh..coconut oil is so good for everything! its antiviral, etc. I used to get very bad sinuses and once i started gargling with it, it really helps. I even consume 1 teaspoon of it. And now my whole family does.

I am a city gal who loves modern stuff (crabtree, loccitane, etc) and actually thought all of this coconut oil stuff was nonsense. I hated coconut oil and thought it was some old indian grandmother tale. boy was I wrong. I even used it on my new born baby. Did you hear about johnson and johnson in US and how they found chemicals that were not suitable for babies? J&J admitted and are now going to reformulate and to think parents were slathering it on newborns. imagine how it affects the indrocine systems...gheez...

please get in touch with me, I would like to know more about the coconut oil he sells, how is the oil extracted, etc...thanks again for offering.


This post has been edited by adelinah: Nov 22 2011, 07:57 PM
Shanashi
post Nov 23 2011, 04:22 PM

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haha holes in the skin....how can i forget that.....from that forms the bubble or buih.....disgusting after the fluid seeps out....those were the days....i keep a bottle of hand sanitizer next to my keyboard these days and wash my hands all the time

interesting review on coconut oil tho
TSskydrake
post Nov 29 2011, 11:43 PM

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I'm curious on the coconut oil, how does it looks like? anyone know more details on it?
oneeleven
post Nov 30 2011, 12:12 AM

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QUOTE(skydrake @ Nov 29 2011, 11:43 PM)
I'm curious on the coconut oil, how does it looks like? anyone know more details on it?
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Supermarket ones are about Rm$18 for small bottle, which should last you for months. It is clear colourless, no chemicals from processing, very light smell, not unpleasant. Stays fresh at room temperature, hardens in fridge.
You can use it to cook or even some people swallow a spoonful every day because of health benefits.

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TSskydrake
post Nov 30 2011, 12:21 AM

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QUOTE(oneeleven @ Nov 30 2011, 12:12 AM)
Supermarket ones are about Rm$18 for small bottle, which should last you for months. It is clear colourless, no chemicals from processing, very light smell, not unpleasant. Stays fresh at room temperature, hardens in fridge.
You can use it to cook or even some people swallow a spoonful every day because of health benefits.

111
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i will try to get a bottle tomolo hmm.gif thx for the info, will upload photo in here.. see i'm buying the right one. haha
oneeleven
post Dec 2 2011, 12:27 AM

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Has anybody with psoriasis tried the non-prescription EgoPsoryl cream available at pharmacies? I am curious because the milder EgoDerm is a soothing non-oil moisturizer that lessens the redness and smoothens the flaking of my dermatitis.

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extremepower
post Jan 20 2012, 12:08 PM

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This one I just got from a friend in sabah when he uses kangen water to heal this skin problem. Applies to eczema.

Good result isn't it? Let me know if you want to try for free in KL. Call Connie 012 7003361. She will guide you. Free. Free la. Free.. lol. wink.gif

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n3m3s1s
post Jan 20 2012, 12:56 PM

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yeah Healin is good one.
extremepower
post Jan 20 2012, 03:00 PM

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The pain and suffering is excruciating. You want this skin disease? lol. Smells like hell also. wink.gif

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