Welcome Guest ( Log In | Register )

Outline · [ Standard ] · Linear+

 Psoriasis, Seeking Help

views
     
SUSthis.ia.a.ball
post Nov 18 2011, 10:36 AM

Getting Started
**
Junior Member
224 posts

Joined: May 2011
QUOTE(skydrake @ Nov 18 2011, 10:09 AM)
I like to share my experience in "Psoriasis" & seeks help from everyone which can help me smile.gif
I know every time when we have problem we need to visit "Doctor" or google it which I did tried before. Dozen of article from wiki's, blogs, product selling page which is very useful hints for me.

So far I found Vitamins E / Fish Oil as nutrition & Dead sea salt bath product which is quite effective on it, anyone here can share with me any trusted brands for above mention nutrition & dead sea salt product which we can find in malaysia or safely buying online?

Of course I need to tell the condition of patient "Psoriasis"

Condition:-
1. Patient suffer more then 30 years & now age 60+.
2. Whole body infected from head to toe.

Medication & problem history:-
1. From beginning patient get Creams to apply on skin which contains "steroids" *as i know from wiki, this steroids must continues use from day to day.  Until one day (after 20years) patient run out of cream and did not use it for more then 1-2 week, "Psoriasis" begin to exploded into terrifying effect and makes patient non-stop fever, skin become SUPER RED & very weak. Then admitted to Hospital. Lucky "patient" survive in this period and able to live again happily.

2. Now patient have to continues apply the same cream BUT not like last time, as doctor said patient skins become healthier and provide lesser % steroids cream for patient. Now skin becomes "Red" again after patients Vitamins E runs out for 1 week & without dead sea salt for "unknown *my mistake which i did not monitor it"  amount of time. Until today I let patient continue back the Vitamin E.

Is there any "non-profit" organization out there which I can contact and seek for more solid info? I serious do not have that much $ to look for so many skin-care doctor outside as they already had patient $ for more then 20 years. I hope sifu's in here can provide me more info to defend this "Psoriasis"  notworthy.gif

All comment are welcome. Sorry for my bad English and kindly correct me.  nod.gif
*
r u a patient or a doctor?
SUSthis.ia.a.ball
post Nov 18 2011, 11:05 AM

Getting Started
**
Junior Member
224 posts

Joined: May 2011
I know it suck. Any disease which affect physicalk appearance usually give the patient hell in their life even if its not life threatening. Thats why I dont have bad image towards them.

I know of another forummer who also have psoriasis but think its not good for me to point him out. Maybe he will join this discussion when he sees this thread smile.gif
SUSthis.ia.a.ball
post Nov 18 2011, 11:44 AM

Getting Started
**
Junior Member
224 posts

Joined: May 2011
Yes you are all correct. Its the public perception that destroys your lives. Getting judged based on your disease is just not fair!!

People should be more understanding and caring towards patients and not add more to their suffering.

Most important thing is to make awareness to the public about you guys condition so they understand what is Psoriasis and other things that they fear. How they can help and stuff like that. I think there's an association somewhere in Malaysia cos I read about it sometime before in newspaper.

Btw, Im not infected with it and very grateful for what I have in my life smile.gif
SUSthis.ia.a.ball
post Nov 21 2011, 11:55 AM

Getting Started
**
Junior Member
224 posts

Joined: May 2011
Does virgin coconut oil help in psoriasis?

If they do, I can help you guys get them. I think my uncle sells virgin coconut oil but imnot sure about the price. If they can help let me know the market price and ill try ask him if he can sell to you guys cheaper compare to markt price.

 

Change to:
| Lo-Fi Version
0.0146sec    0.68    7 queries    GZIP Disabled
Time is now: 2nd December 2025 - 03:14 AM