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 Cluster Headache

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OnePiece999
post Jun 11 2025, 08:52 AM

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If blood test is fine, no high bp cholesterol or sugar then can rule out nothing critical like the 190 critical illness coverage of typical insurance policy, and that do not need immediate action which is great news, not even need medication, but do repeat for close monitoring the blood test again the next six months, and use it to compare the previous finding to see any value is changing. Consistent blood test values across the years is the end goal for stable and balance internal chemical composition, if any value begin to change gradually that would be where full attention should be taken. Probably eat well rest well and balance out work life is the key to improve the conditions, of course it is easier said then done unless one really take serious action. Can try out other suggestions which advocate on reaching out for non invasive therapy such as physio, diet, traditional approaches. Of course also closely monitoring your physical look and observe if any face surface area or hair or skin or color or even shape ever change gradually, all of them can contribute to the underlying problems.
StaiN^
post Jun 11 2025, 09:26 AM

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Hi OP,

1) Please ignore all the comments thus far, Ive sufferred from cluster headache for nearly 20 years now and tried everything. Most comments I see here is ridiculous and not good advice.

2) Please book an appointment with Dr Tan Wee Yong at Thomson Hospital and get prescribed with 2 injections of Pontevia. After the injections you will probably still get headaches for 1-2 weeks and then it will be gone for a year or more depending on how your body will cope with the treatment. When it comes back in a year or two, rinse and repeat the same procedure. The injections are expensive so if you have insurance please go to a GP and get diagnosed with "Migraine" and referred to the specialist, although your case is not Migraine its Cluster Headache. The injections are painful as hell but nothing compared to the pain of CH.

3) Please stop taking celebrex, that is just painkillers and studies shown it is bad for your kidneys.

4) If your rich buy a oxygen machine it can give instant relief after 10 mins of usage when an attack comes. Cheaper alternative which helps is buy a hot water bottle from a pharmacy (can use those ice packs that Badminton players use) and fill it with boiling hot water. When an attack comes put it on your temple and lay in bed and die.
TSzero5177
post Jun 11 2025, 09:54 AM

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QUOTE(ragk @ Jun 10 2025, 07:03 PM)
FYI, I start feeling it when i was 17, but i do have Sinus issue, so i always think it's causing by my Sinus, but it's not. The symptom getting worst as im gaining age.
Have u went to any massage sifu before? I can let u know u my whole experience of my problem, hope it helped.

In my older day when I still have very serious headache, on the most severe occasion I need to EL and rest at home, and almost everyday i wake up i've horrible headache.

I keep looking for solution by checking on my head until one day my friend suggest that it might have something to do with my neck/muscle, and he intro me to a Chinese massage sifu.

And the Sifu can tell which area of my muscle is abnormal/stiff by just touching on it, and from here my symptom started to mitigate. This Sifu can't cure my problem, but he identified my problem, because i can feel the improvement right away, i can see thing clearer thn usual, and after some weeks keep revisiting im getting better and better.

This Sifu is not the solution, but he clearly pointed out where my problem came from. So for the next few years, i keep visit this Sifu 3-4 times a month to minimize the impact, while also visiting different Doctor to find permanent solution.

My final solution is Chiropractic, i've minor scoliosis (proven by X-ray) which causing my back muscle to stay imbalance. Chiropractic didn't just cured me right away, I can felt some improvement on first few visit, and things stay stagnant for few months, not much improvement, and then I switch to Senior Chiropractor, thn things start to get better again until today.

Occasionally i still felt a little bit of headache, but I will say it's 95% better then older day. I still need to visit Chiropractor every 3 months now for maintenance, and I also worked with the Chiropractor to adjust my posture problem, change my bed, my chair, my working station etc, so that my condition won't reoccurred due to bad posture. That's lot of maintenance to do, but it's worthy.

Are u staying in KL area? The Sifu i mentioned above stay in USJ Area, if u are interested, i can pm u his phone number, u can find him to see if he can identify your issue.
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I'm going for specialist first for now to see if they can trace anything.

I would keep the massage/tit tar option open

Chiropractic I went for sessions like bi-weekly for 3 months and my headache strikes at end of session feeling it doesn't help much I aborted.

Pls PM and advise the cost involved

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