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 Cluster Headache

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TSzero5177
post Jun 3 2025, 10:51 AM, updated 6 months ago

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Suspect got cluster headache, it came like alarm clock, if happen at 10am, everyday 10am
last for weeks

Strikes yearly, or sometimes few years once

Pain at left side temper/around eyes

Anyone had this and found any good specialist to deal with this?
hightechgadgets8
post Jun 3 2025, 10:56 AM

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have you checked for tumors?
sunami
post Jun 3 2025, 11:07 AM

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go for MRI
Blofeld
post Jun 3 2025, 11:10 AM

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probably migraine

i used coffee as a relief. But it works because i'm not a coffee drinker

https://forum.lowyat.net/index.php?showtopic=5481056&hl=
Blofeld
post Jun 3 2025, 11:12 AM

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QUOTE(hightechgadgets8 @ Jun 3 2025, 10:56 AM)
have you checked for tumors?
*
QUOTE(sunami @ Jun 3 2025, 11:07 AM)
go for MRI
*
if it happens the same time every week, then unlikely tumour

just something that triggers the migraine every week at the same time

TS needs to find out what triggers it every week the same time
danielcmw
post Jun 3 2025, 11:15 AM

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physio
killdavid
post Jun 3 2025, 11:53 AM

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QUOTE(zero5177 @ Jun 3 2025, 10:51 AM)
Suspect got cluster headache, it came like alarm clock, if happen at 10am, everyday 10am
last for weeks

Strikes yearly, or sometimes few years once

Pain at left side temper/around eyes

Anyone had this and found any good specialist to deal with this?
*
Temples and eyes.
Migraine issit ? Did you take medication for migraines ?

This post has been edited by killdavid: Jun 3 2025, 11:53 AM
SUShzmaz2017
post Jun 3 2025, 12:12 PM

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Attached File  Conquering_Headache__An_Illustrated_Guide_to_Understanding.pdf ( 1.14mb ) Number of downloads: 30
Chanwsan
post Jun 3 2025, 12:12 PM

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Stress?
TSzero5177
post Jun 3 2025, 12:45 PM

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QUOTE(hightechgadgets8 @ Jun 3 2025, 10:56 AM)
have you checked for tumors?
*
QUOTE(Blofeld @ Jun 3 2025, 11:10 AM)
probably migraine

i used coffee as a relief. But it works because i'm not a coffee drinker

https://forum.lowyat.net/index.php?showtopic=5481056&hl=
*
QUOTE(killdavid @ Jun 3 2025, 11:53 AM)
Temples and eyes.
Migraine issit ? Did you take medication for migraines ?
*
It started since more than 10 years back, I haven't do MRI, previously went Clinic only they are not helpful some say migraine some say sinus then give panadol which is not helping at all, after some research online recently find it more likely cluster headache.

Tried Coffee, dark chocollate, banana all sort of stuff, recent finding from ChatGPT suggest use ice pack on temple & back of neck which does help relief the pain a little.

Will visit neurologist see, just got a reference letter from clinic, most likely they might suggest MRI I guess.
killdavid
post Jun 3 2025, 01:31 PM

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QUOTE(zero5177 @ Jun 3 2025, 12:45 PM)
It started since more than 10 years back, I haven't do MRI, previously went Clinic only they are not helpful some say migraine some say sinus then give panadol which is not helping at all, after some research online recently find it more likely cluster headache.

Tried Coffee, dark chocollate, banana all sort of stuff, recent finding from ChatGPT suggest use ice pack on temple & back of neck which does help relief the pain a little.

Will visit neurologist see, just got a reference letter from clinic, most likely they might suggest MRI I guess.
*
Panadol have no effect.
Need medication like Caffox.

Yes, best to get it checked by professionals
netflix2019
post Jun 3 2025, 01:47 PM

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QUOTE(zero5177 @ Jun 3 2025, 10:51 AM)
Suspect got cluster headache, it came like alarm clock, if happen at 10am, everyday 10am
last for weeks

Strikes yearly, or sometimes few years once

Pain at left side temper/around eyes

Anyone had this and found any good specialist to deal with this?
*
Your job requires u to tilt your head down and or sit on desk for extended period of time?

Recently changed pillow/bed?

I got migrain problem my whole life. Recently found out its because of posture problem. Now regularly do stretching and exercises. Improve posture. Really helps a lot reduce a lot of episode. Main reason sometimes those "kuat" painkiller worls, because its strong enough to cause muscle relaxation. Then your headache goes away.

Or u got sinus problem.

Check out this guy punya iG. @drjoedamiani

azbro
post Jun 3 2025, 02:41 PM

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You place not enough oxygen, ventilation.
Also, magnesium might help. But buy small qty first.
hikashi
post Jun 3 2025, 03:42 PM

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Long time cluster headache sufferer here.

Alot people group migraine with cluster headache together but it is not the same.

Check your main trigger first.
Mine mostly dehydration. Not drinking enough water (cliche i know).

But there are seasons, cluster head comes like a unstoppable train. You can “feel” it is coming and if you dont do anything to abort it, the pain will shoot through the roof. Your eye socket (usually one side) will felt like being pull from the inside and will also start tearing up on that one side.

I still cant find cure to date. But can only manage the pain.

The trick is to abort the incoming cluster headache with proven medication - Sumatriptan.

It is a controlled medicine, and you have to get physician check up in order to get prescribed.

Mainly is to checkup if you have other underlying conditions like aneurism or tumor.

And yes, please do see a doctor first.
Rusty Nail
post Jun 3 2025, 04:37 PM

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https://forum.lowyat.net/topic/4711051

Read his story, is your symptoms the same?
By the time you start losing balance, it's already too late
Cyberbullies
post Jun 3 2025, 04:51 PM

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Try salted water. See if it works.
TSzero5177
post Jun 3 2025, 05:23 PM

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QUOTE(killdavid @ Jun 3 2025, 01:31 PM)
Panadol have no effect.
Need medication like Caffox.

Yes, best to get it checked by professionals
*
Neuro prescribed Celebrex as he suspect the Occipital nerve inflammation, will follow up with him again next week

QUOTE(netflix2019 @ Jun 3 2025, 01:47 PM)
Your job requires u to tilt your head down and or sit on desk for extended period of time?

Recently changed pillow/bed?

I got migrain problem my whole life. Recently found out its because of posture problem. Now regularly do stretching and exercises. Improve posture. Really helps a lot reduce a lot of episode. Main reason sometimes those "kuat" painkiller worls, because its strong enough to cause muscle relaxation. Then your headache goes away.

Or u got sinus problem.

Check out this guy punya iG. @drjoedamiani
*
My job mostly staring at screen and make calls, previous clicnic did suspect might be migrane, some say is sinus, but I think otherwise, thus I look for neurologist to see if they can solve my problem, now they suspect is nerve inflammation and prescribed me Celebrex

Nanti I check the IG see

QUOTE(hikashi @ Jun 3 2025, 03:42 PM)
Long time cluster headache sufferer here.

Alot people group migraine with cluster headache together but it is not the same.

Check your main trigger first.
Mine mostly dehydration. Not drinking enough water (cliche i know).

But there are seasons, cluster head comes like a unstoppable train. You can “feel” it is coming and if you dont do anything to abort it, the pain will shoot through the roof. Your eye socket (usually one side) will felt like being pull from the inside and will also start tearing up on that one side.

I still cant find cure to date. But can only manage the pain.

The trick is to abort the incoming cluster headache with proven medication - Sumatriptan.

It is a controlled medicine, and you have to get physician check up in order to get prescribed.

Mainly is to checkup if you have other underlying conditions like aneurism or tumor.

And yes, please do see a doctor first.
*
Totally agree, a lot ppl thought is migraine, like u said I can feel it is coming, then it just peak on its own, tearing eye at one side, runny nose, and serious pain. Recently I find some small relief if I apply ice pack behind my neck at the affected side, temple, forehead, wherever the pain goes.

Any side effect taking sumatriptan?

QUOTE(Rusty Nail @ Jun 3 2025, 04:37 PM)
https://forum.lowyat.net/topic/4711051

Read his story, is your symptoms the same?
By the time you start losing balance, it's already too late
*
yeah know this case pretty well, for my case doctor said should not be major because I have lived >10 years when I first got this and there is no other symptoms like vomitting/nausea/fainting, just pain alone, but really really serios pain at its peak, pain enough for u to have thoughts to give up living.

let's see how this prescription goes after a week.
hoonanoo
post Jun 3 2025, 05:51 PM

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QUOTE(zero5177 @ Jun 3 2025, 10:51 AM)
Suspect got cluster headache, it came like alarm clock, if happen at 10am, everyday 10am
last for weeks

Strikes yearly, or sometimes few years once

Pain at left side temper/around eyes

Anyone had this and found any good specialist to deal with this?
*
I used to have this headache

Don't get me wrong, I am not giving you medical advice.

I just eat half boiled eggs, than that sharp pain in my head went away.

but don't take my word for it, go see a doctor


ycs
post Jun 3 2025, 08:22 PM

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i'd suggest you get a brain scan to rule things out
Zhik
post Jun 3 2025, 08:38 PM

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QUOTE(zero5177 @ Jun 3 2025, 12:45 PM)
It started since more than 10 years back, I haven't do MRI, previously went Clinic only they are not helpful some say migraine some say sinus then give panadol which is not helping at all, after some research online recently find it more likely cluster headache.

Tried Coffee, dark chocollate, banana all sort of stuff, recent finding from ChatGPT suggest use ice pack on temple & back of neck which does help relief the pain a little.

Will visit neurologist see, just got a reference letter from clinic, most likely they might suggest MRI I guess.
*
Congrate.
But, does it relieve after massage?
Cluster headache? check the pic .
Some need op wor.

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