psychosomatic disorder is one of the thing that can have physical manifestation

6 ''Neurologists''

Govt you can't choose.

Private, not cheap.

Thanks for the thorough reply my friend. Are you a neurologist? You seem very knowledgeable in this matter.

I agree trouble concentrating and mood swings is possible to not be related, however since last year ALL my symptoms have become worse including those 2. The tingling is the worst. It tingles so bad that i cant speak properly without feeling so uncomfortable and out of breath.
My movements are random. I had a head tremor, hand tremor, facial tics, leg shaking, stomach jerking. (All this NOT independent of one another, meaning some come and go or all happens at same phase). Moreover, this movements serve a purpose, to REDUCE the tingling. I can stay still, but the tingling is maximum.

I went to 6 because i wasn't satisfied with the diagnosis given. I do my own self-check online on message boards, medical websites and youtube. My symptoms don't correlate. 3 of the neurologists say I have motor tics disorder, but that doesn't explain
1. my intense tingling throughout my body
2. my head tremor and leg shaking
3. Trouble speaking.... Becoming observably worse.

The last one I seen, he is a renowned movement disorder specialist, Dr Lim Shen Yang, he diagnosed me with cervical dystonia because at that time, my head tremor was the most prevalent, but also wasn't 100% sure because
1. tingling in other parts of my body
2. I can hold the movements for longer than 2 minutes.
He tried botox injection to reduce it. It reduced my head movement, but the tingling and other movements still there.

pls check this out about people's experience with mercury poisoning. They report experiencing neurological symptoms + the cognitive defects I mentioned. https://www.quora.com/What-does-it-feel-lik...rcury-poisoning

This post has been edited by adamdaniaal: Apr 25 2018, 10:55 PM

Delete

This post has been edited by adamdaniaal: Apr 25 2018, 10:47 PM

Yup. A lot of money spent. Sad right.

Psychiatrist prescribed me adhd and anxiety medication. Both didn't do much for the symptoms. Felt more focused and calm though.

Before this illness became very bad, I used to be pretty active. I guess sweating not enough and also, I don't know if confirm heavy metal toxicity or not, waiting for results. But hoping it is, so can finally get diagnosed.

I don't think it is related to heavy metal honestly. Nerve disorder is something difficult to find the cause. Take long time to cure. Most doctor probably do not have clear understanding. Maybe you have seen this site. Here it is, just in case:

http://www.neurosymptoms.org/#

You can go to symptom tabs and select your symptom.

Thank you for your kind words. Yes can't say it isn't tough. I had to skip a lot of college last year and can't enroll in uni yet unless I fix this. There were diagnosis made, but they were to me inconsistent based on my own self-read online on message boards, medical websites and youtube. Nope it can't be just in my head because i have involuntary movements as well + the tingling is just too real. The psychiatrist just diagnosed me with anxiety, gave me pills but it just made me more calm. Didn't help the physical. Honestly you cannot just fullheartedly trust a specialist because they only can diagnose you based on their niche. Example a person who goes to a psychiatrist will be prescribed antidepressants immediately for their depression without taking into account that possibly a thyroad imbalance could be the underlying culprit causing it. Please read my reply to @rinsedpie for a summary of what the specialists have told me

This post has been edited by adamdaniaal: Apr 26 2018, 05:11 PM

I am surprised no one else have experienced this wow. I am still waiting for my results, but my symptoms have gone to an all time bad. Struggling to live day by day....

Sigh. Has anyone at least tried chelation therapy?

This post has been edited by adamdaniaal: Apr 29 2018, 08:08 PM

Good day.
You can consider the EEG biofeeedback training in Malaysia. It is one of the methods to train your brain likes a muscle.
It helps to train your brain to reduce the motor movement by increasing SMR brainwaves.
The first has to do with the sensorimotor rhythm, better known as the SMR. The SMR appears as distinct “spindle” patterns, representing synchronized electrical activity within the brain. Interestingly, the SMR is actually not yet well understood by neuroscientists. SMR amplitude is known to be higher when a person isn’t moving, when the sensorimotor areas of the brain are idle. Motor tasks and even motor mental imagery cause the SMR’s amplitude to decrease.

Source:
http://www.newmindcentre.com/2016/08/integ...r-tics-and.html
http://www.newmindcentre.com/2015/03/testi...-treatment.html

Sorry couldnt answer earlier, was oncall. No Im not a neurologist but worked closely with them (was doing neurosurgery for few years and tingling as a symptom, is a common issues we worked on. Titubation is quite a useful symptomatology to try to narrow things down in order to form a workable Differential Diagnoses list.

OK, keep with one Neurologist only. Things move slowly with these sort of complaints. (Doctors are primed up mainly to deal with acute emergencies; other presentation that have slow, evolving symptom complex will always need careful teasing out of potential diagnoses; to reach 1 unifying diagnosis, in most cases tho, is quite possible).

As a patient, you could and should be able to offer your suggestion to the specialist; only a foolish doctors will not listen to his patients.

Keep to one doctor, be patient (sorry) and record symptoms and signs. Good luck

Bump.

No one? Anyone gone through a chronic illness like this? My life is a living hell right now and it is surprising no one has had heavy metal toxicity.