I am a vitiligo patient ( chinese malaysia) since 19 , i am 24 years old now , had been living with this disease for 5 years.
Vitiligo is a a condition that causes depigmentation of sections of skin. It occurs when melanocytes, the cells responsible for skin pigmentation, die or are unable to function
I had been using UVB phototherapy + apply cortisone cream (for the body vitiligo,it is a type of steroid cream given by doctor that help to suppress the antibody so it will arrest the antibody to continue to kill the melanin) + protopic cream ( for the face vitiligo)
Vitiligo patient might be traumatized as this will affect your social life and stigmatization is what vitiligo patient will face. I had gone through these and still will feel bad if the vitiligo spread. Vitiligo patient may even find a hard time to find partner as it is hard for the society to accept it.
The purpose of this forum is to support vitiligo patient where we can share the information of treatment to each other , and to support each other emotionally, as i can totally understand what you are going through.
As for the purpose , i had also created A FACEBOOK GROUP NAMED "VITILIGO BOND MALAYSIA", this is to be more closer to the life of VITILIGO PATIENT, we had been there , experience the same, go through the pain and sorrow , and we wanna let you know that , we UNDERSTAND YOU ...and support you to continue to live with this disfiguring disease and dont let it limit you...
Just search in fb for vitiligo bond malaysia and i will approve shortly..
For the treatment part , as far as i know , currently the most easily avalaible treatment is the UVB therapy, for skin patches that is still new, then after one week repigmentation may occurs, but it requires a lot of patience as you need to do the therapy everyday, i had one handheld UVB therapy device so i can do it at home everyday . I bought this from ebay with the advice of a skin specialist.
However, for skin patches that are more than 3 years , it might need consistence phototherapy for months till you can see changes, so the whole point is dont give up. At the same time , i also apply the steroid cream (cortisone+protopic) that is given by doctor , it will help in ur repigmentation and prevent the white patches from spreading.
At the moment , i will say the fastest way to re-pigment is this new type of laser in taiwan, http://www.youtube.com/watch?v=0QzOXJ2_fhk, you can watch this video from you tube.
and also might wanna try this cream out http://www.ebay.com/itm/Melagenina-PLUS-Vi...=item4cfeef7b44 , but i think there is other sellers that sell cheaper.
I myself is going through some painful moment to deal with this. Hope we can lift our head high and live our life! supporting each other =)
You can PM me if u can shy to use ur existing account to connect with me
This post has been edited by fight for life: Sep 17 2012, 09:32 PM
VITILIGO PATIENT SUPPORT, disfiguring and autoimmune disease (Medical Conditions)