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> VITILIGO PATIENT SUPPORT, disfiguring and autoimmune disease (Medical Conditions)

fight for life
post Mar 2 2012, 01:26 PM


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I am a vitiligo patient ( chinese malaysia) since 19 , i am 24 years old now , had been living with this disease for 5 years.

Vitiligo is a a condition that causes depigmentation of sections of skin. It occurs when melanocytes, the cells responsible for skin pigmentation, die or are unable to function


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I had been using UVB phototherapy + apply cortisone cream (for the body vitiligo,it is a type of steroid cream given by doctor that help to suppress the antibody so it will arrest the antibody to continue to kill the melanin) + protopic cream ( for the face vitiligo)


Vitiligo patient might be traumatized as this will affect your social life and stigmatization is what vitiligo patient will face. I had gone through these and still will feel bad if the vitiligo spread. Vitiligo patient may even find a hard time to find partner as it is hard for the society to accept it.

The purpose of this forum is to support vitiligo patient where we can share the information of treatment to each other , and to support each other emotionally, as i can totally understand what you are going through.

As for the purpose , i had also created A FACEBOOK GROUP NAMED "VITILIGO BOND MALAYSIA", this is to be more closer to the life of VITILIGO PATIENT, we had been there , experience the same, go through the pain and sorrow , and we wanna let you know that , we UNDERSTAND YOU ...and support you to continue to live with this disfiguring disease and dont let it limit you...

Just search in fb for vitiligo bond malaysia and i will approve shortly..
https://www.facebook.com/groups/417865751609854/

For the treatment part , as far as i know , currently the most easily avalaible treatment is the UVB therapy, for skin patches that is still new, then after one week repigmentation may occurs, but it requires a lot of patience as you need to do the therapy everyday, i had one handheld UVB therapy device so i can do it at home everyday . I bought this from ebay with the advice of a skin specialist.


However, for skin patches that are more than 3 years , it might need consistence phototherapy for months till you can see changes, so the whole point is dont give up. At the same time , i also apply the steroid cream (cortisone+protopic) that is given by doctor , it will help in ur repigmentation and prevent the white patches from spreading.


At the moment , i will say the fastest way to re-pigment is this new type of laser in taiwan, http://www.youtube.com/watch?v=0QzOXJ2_fhk, you can watch this video from you tube.


and also might wanna try this cream out http://www.ebay.com/itm/Melagenina-PLUS-Vi...=item4cfeef7b44 , but i think there is other sellers that sell cheaper.


I myself is going through some painful moment to deal with this. Hope we can lift our head high and live our life! supporting each other =)


You can PM me if u can shy to use ur existing account to connect with me

This post has been edited by fight for life: Sep 17 2012, 09:32 PM
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devilish_yin
post Mar 2 2012, 01:37 PM


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I'm 21 this year had vitiligo since last year. Been using vitiligo organic but no significant effect

quite stressful since it happen on my face ... been trying to be happy but well it kinda hard when people look at you ...oh well
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fight for life
post Mar 2 2012, 01:52 PM


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QUOTE(devilish_yin @ Mar 2 2012, 01:37 PM)
I'm 21 this year had vitiligo since last year. Been using vitiligo organic but no significant effect

quite stressful since it happen on my face ... been trying to be happy but well it kinda hard when people look at you ...oh well
*
yea i know how it is feel cause my vitiligo just spread to my face ....

i had many nights crying in my room

anyway ,is there any skin specialist nearby? if not i can recommend a few around selangor or ipoh....and also home therapy using UVB ...

i buy using ebay http://www.ebay.com.my/sch/bonchbruevich/m...=&_trksid=p3686 from this seller , from russia - Member id bonchbruevich


Hope it will help you
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devilish_yin
post Mar 2 2012, 02:31 PM


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<< nah I'm not crying lol *serius* but seriously I just wan to smack people who make fun of me =="

I'm from Kuantan ..well only been to the government hospital ..they just gave me the hydrocortisone .... which I havent used it anymore ..since it spread more If i were to use it =="

well I bought those natural vitaligo oil from Aus for around RM500 ....my family say it does lessen abit ..but applying oil in the face is kinda I dun really know how to explain but I hate it lol
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vivienne85
post Mar 2 2012, 07:03 PM


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is it curable?
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fight for life
post Mar 3 2012, 01:54 AM


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QUOTE(devilish_yin @ Mar 2 2012, 02:31 PM)
<< nah I'm not crying lol *serius* but seriously I just wan to smack people who make fun of me =="

I'm from Kuantan ..well only been to the government hospital ..they just gave me the hydrocortisone .... which I havent used it anymore ..since it spread more If i were to use it =="

well I bought those natural vitaligo oil from Aus for around RM500 ....my family say it does lessen abit ..but applying oil in the face is kinda I dun really know how to explain but I hate it lol
*
Hydrocortisone is steroid , it suppose to prevent it from spreading ...hmm dunno for ur case , but my advice is DONNT go under the sun , actually i am quite a stable vitiligo patient but going under the sun cause it to spread.


dont know whether the oil helps anot ...yea i also dont like apply oil in face, the most effective treatment now is Excimer Laser


Added on March 3, 2012, 1:56 am
QUOTE(vivienne85 @ Mar 2 2012, 07:03 PM)
is it curable?
*
It cant be cured, we can only treat and live with it lo ..

This post has been edited by fight for life: Mar 3 2012, 01:56 AM
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devilish_yin
post Mar 3 2012, 03:21 PM


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how much would the eximer laser cost ?

Can return normal ..but the treatment itself is not reliable ..some post good result ..some are not ...thus had to gamble with all these expensive treatment
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fight for life
post Mar 3 2012, 10:39 PM


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Added on March 3, 2012, 10:40 pm
QUOTE(devilish_yin @ Mar 3 2012, 03:21 PM)
how much would the eximer laser cost ?

Can return normal ..but the treatment itself is not reliable ..some post good result ..some are not ...thus had to gamble with all these expensive treatment
*
erm i never been to laser before , but i did phone to the specialist and ask, normally is around hundred something per session. Usually takes 2 sessions or more to repigment ur skin , but then it depends on ur reponse to the treatment also , diff ppl diff respond ...

but then i really recommend the UVB therapy , which i am using now, need to expose to the light treatment around 2-4 mins per day , then the pigment will slowly fill in. Need patient lo


UVB light treatment -if it is a new patches, few days can see the result , if old patches , need to be persistent for months to see the result =)

i can snap a photo of my uvb lamp to let u see if u want =)


Added on March 3, 2012, 10:57 pmI had read in the vitiligo patient support forum , that taking vit b12 and folic acid can prevent the patches from spreading =)

I just went to shopping today ....got some in the pharmacy , its 7 ringgit for 10 tablets of b12 , then rm6 ringgit for folic acid (100 tablets) ..i got them at the caring pharmacy =) ......

I usually will refer to info and feedback from forum
http://vitiligoforum.com/

and also this http://www.vitiligosupport.org/


There is still hope. need to patiently do the treatment , hardworking and perseverance =)

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bonzaimy
post Mar 4 2012, 04:44 AM


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Hi there. I had a vitiligo since i was 17 and now im 26. The patches appeared on my back and my hand. Its really embarrasing you know. The laser surgery can really make my skin look normal? Gosh, i wish there is a cure for this disease
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fight for life
post Mar 4 2012, 12:53 PM


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QUOTE(bonzaimy @ Mar 4 2012, 04:44 AM)
Hi there. I had a vitiligo since i was 17 and now im 26. The patches appeared on my back and my hand. Its really embarrasing you know. The laser surgery can really make my skin look normal? Gosh, i wish there is a cure for this disease
*
yea i understand that , people will ask me what it is , at first i try to hide and said it is allergic then cannot hide anymore , i just tell the truth and said i got depigmentation problem.

At first , ppl might avoid, but when they get use to it, it is just ok...just ignore those who give u harsh comment , everybody is created by God, we are just a little bit special than the rest.

Cure - right now only have treatment to make the pigment to grow back. I consider myself lucky if to look at cancer patient where their hair drop and cannot eat and drink...Scientist still undergoing research and find cures. This disease is getting more common nowadays where the statistics show there is 1 out of hundred will get it.


Cheerz! i will find out which clinic that provide excimer laser soon and will provide the info here. we are here to help out each other =)


Added on March 4, 2012, 12:55 pm
QUOTE(devilish_yin @ Mar 3 2012, 03:21 PM)
how much would the eximer laser cost ?

Can return normal ..but the treatment itself is not reliable ..some post good result ..some are not ...thus had to gamble with all these expensive treatment
*
May i know where u got the vitiligo oil and how much yea? I wont mind trying , if it works ...who knows it might work for me, if not just treat it as moisturiser lo whistling.gif

Thank you cool2.gif

This post has been edited by fight for life: Mar 4 2012, 12:55 PM
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fight for life
post Mar 4 2012, 01:08 PM


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This is the vitiligo machine that i bought , been using for a year now



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fight for life
post Mar 4 2012, 01:48 PM


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The seller



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fight for life
post Mar 4 2012, 01:53 PM


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eye protector while using the uvb lamp

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fight for life
post Mar 4 2012, 02:03 PM


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the uvb lamp had built in timer so u just set how many minutes u want
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bonzaimy
post Mar 5 2012, 12:53 AM


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How to use that thing? Its on my back. I cant reach it.
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fight for life
post Mar 5 2012, 01:13 AM


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can reach one , i got vitiligo at my back also , use mirror, but the best is there is someone who willing to help u to hold , per spot is 3 mins for the body and 1 mins for the face...

I also got vitiligo on my back , but not a lot, already repigmented... i agak agak the place then i postition the uvb lamp to my back lo....


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fight for life
post Mar 5 2012, 01:20 AM


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Here is the video that teach you how to use , just set the timer then press start .....
aiks the you tube preview didnt come out ..i just post the link here la
http://www.youtube.com/watch?v=v2sp9jlJxKM...player_embedded

More details refer here..
http://www.ebay.com.my/itm/Psoriasis-Lamp-...=item2c5e59f582

Anyway , hope it helps you =)


Added on March 5, 2012, 1:25 pmGUYS , read this , scientist did a research about folic acid and b12 which can help the vitiligo repigmentation
http://www.ncbi.nlm.nih.gov/pubmed/9394983

but need to take them for long term.

wanna ask , anyone of u are vegetarian? cause i suspect vitiligo also related to some deficiency in vitamin, and also do u guys have nerve probelm?

Doctor say it may due to nerve, and b12 will help the nerve


Added on March 5, 2012, 2:01 pmsorry to spam cause i found new info again
http://nvfi.org/pages/info_vitamins.php
this source is from the national vitiligo foundcation inc.

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bonzaimy
post Mar 23 2012, 06:29 PM


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have anyone of you try anti vitiligo oil? Is it working? And since the laser treatment only available in Taiwan, I can't go there every month to do the treatment. I just came back from overseas after a month and my mom told me that my back getting really worst. Now, I just bought a Dr Rozmey product, DR 11 cause i read that one of the guy got psoriasis and after he try that product, his skin looks normal. If it's okay, then probably i would recommend it to you guys.
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fight for life
post Apr 3 2012, 07:19 PM


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sure sure u try first , if it is working then u tell us ...i think the excimer laser is not available in malaysia cause the machine is a quarter million , today i went to Dr.Koh in PJ uptown and ask him about this ..so even there is this laser in malaysia it might be very very expensive per treatment...

stress can trigger vitiligo to spread, friend dont work too hard ...


Added on April 3, 2012, 7:23 pmanyway i guess the b12 helps ....some patches that doesnt react to the uvb light start to repigment , my fore head and nose got some white patches , now is normal back ! i'm so happy...need to consistent to use

but ur case is hand and the back right ? hand is very hard to treat , it just wont repigment , anyway , wait for ur review on DR11

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Demon_Eyes_Kyo
post Apr 3 2012, 09:56 PM


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Yup my doctor did mention something about nerve coz my vitiligo only affecting left part of my face. Did not spread to the right.

How much did u buy the lamp bro?
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lbaby
post Apr 21 2012, 06:40 PM


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kinda sure its nerve problem , i've been taking vit b12 , and it helps, the patches reduced ! but need to combine with the treatment of light therapy

according to the link above , the scientist admister the patient 1000mg b12 and 10mg folic acid per day , then i followed , one month passed , the patches are reducing ....wink.gif i also got take vitamin c
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Tham
post Apr 23 2012, 03:21 AM


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A quick search of Medline turns up a few herbs and supplements
which may help your condition :

Ginkgo biloba
Cassia occidentalis (Senna, the common laxative herb)
Nigella sativa extract (black seed extract)

The amino acid, L-phenylalanine


The studies are here :

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2432048

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3065445/

http://www.ncbi.nlm.nih.gov/m/pubmed/21328088

http://www.ncbi.nlm.nih.gov/m/pubmed/21492177


Psoralea coryfolia is also popular, but there are reports of liver toxicity.
I believe it helps because the psoralens in it are photosensitizing, which
would improve UV treatments.

If psoralens are useful, then celery, which contains psoralens, would help
as well when used with UV.


http://www.ncbi.nlm.nih.gov/m/pubmed/20051255/

http://www.motherherbs.com/psoralea-corylifolia.html

http://www.ncbi.nlm.nih.gov/m/pubmed/19841509/

http://www.ncbi.nlm.nih.gov/m/pubmed/19640237/


You can buy black seed capsules or softgels from many of these
Malay herbal medicine stalls around town - a good brand is Baraka
from from Egypt. I've taken it before for general immunity support.




This may help you understand your condition before.

Vitiligo and the melanocyte reservoir.

http://www.e-ijd.org/article.asp?issn=0019...ulast=Falabella






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bonzaimy
post Apr 27 2012, 12:05 AM


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Hmmm. I was wondering, tanning can temporarily cover the vitiligo part or not. Just for a quick solution
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uRfaith143
post May 4 2012, 11:28 AM


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what's the root of vitiligo? is this curable?
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SilverIce55
post May 7 2012, 07:51 PM


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Hi guys,

I'm a vitiligo patient from Penang.

I've been dealing with it for about 6 months after notified it on my forehead.

Been taking B12 and folix acid, but my blood test report is showing I'm overdosed with these 2 vitamins lol

My doctor is telling me that those are not the real factors for vitiligo and ask me to apply Protopic every night before I go to bed.

I'm going to try this and update everyone the status monthly. Btw, has anyone tried this treatment?


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skumaran24
post May 10 2012, 09:18 AM


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Hi Guys,

Had vitiligo since I was 8 and now I'm 27. Good to see there is a forum where everyone sharing their finding. Hopefully there will be a cure soon...

I tried this http://askdrshah.com/lueco.htm but did not work for me, maybe it might work for you.
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bonzaimy
post May 14 2012, 05:53 AM


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QUOTE(skumaran24 @ May 10 2012, 09:18 AM)
Hi Guys,

Had vitiligo since I was 8 and now I'm 27. Good to see there is a forum where everyone sharing their finding. Hopefully there will be a cure soon...

I tried this http://askdrshah.com/lueco.htm but did not work for me, maybe it might work for you.
*
Hahaha..if it is not working for you,I also dont want to try la.How bad is ur vitiligo?
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samowong
post May 14 2012, 11:15 AM


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The current most widely accepted theory causing vitiligo is autoimmunity. Autoimmunity means the body's own immune system attacks its own cells, and in the case of vitiligo, the destruction of melanocytes by the body's own antibodies. That is why vitiligo patients are screened for other autoimmune conditions like Hashimoto's thyroiditis, diabetes mellitus, Addison's disease, alopecia areata, etc.

Melanocytes reside at the base of the skin, generating melanin which gives colour to the skin. When skin is exposed to UVA & UVB (in sunlight), there is DNA damage in the skin which triggers increased production of melanin that absorbs UV rays and protects the skin from further damage, hence the tan. That is why there is such high incidence of skin cancer in the light-skinned e.g Caucasians as there is less protective melanin in their skin. That is also why we should not sunbath / go for tanning beds. Look for sunblocks against both UVA and UVB. Avoid the sun from 10am to 4 pm.

In vitiligo, treatment is aimed at increasing melanin production from melanocytes at the borders of the lesion as well as spared melanocytes not affected by depigmentation, hence the UV phototherapy.
Topical steroids are used to suppress the local skin immune system so that there is no further destruction of melanocytes. Long term topical steroid use is associated with skin thinning and systemic effects. Hence, topical pimecrolimus is recommended as substitute.

Other treatments include:
- skin grafting
- laser
- protect against sun

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skumaran24
post May 14 2012, 02:14 PM


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QUOTE(bonzaimy @ May 14 2012, 05:53 AM)
Hahaha..if it is not working for you,I also dont want to try la.How bad is ur vitiligo?
*
The medicine does not react the same for everyone. Some treatment that works for you might not work for me too smile.gif. Mine is quite bad, leg, hand, body and face. Learn to live with it already.


Added on May 14, 2012, 2:28 pmThe best treatment so far that has very significant effect for me is:
1. To consume this tablets on alternate days.
http://behboddarou.com/images/meladinine.jpg . You must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light.
2. Apply this cream 2 to 3 times everyday. http://www.drugexp.com/images/medicine/Der...ntment_25gm.jpg

Its quite effective. Here's my before and after picture.

Before
https://www.dropbox.com/s/morlz3r7wfdacaf/IMAG0005.jpg

After
https://www.dropbox.com/s/lgalhxr0j8en4y3/IMAG0278.jpg

You can visit Dr.Nathan at Asuntha Hospital. He treated me with this medication.

But then I had to change job, got busy and had to work at Sweden for few month during the winter. Now I'm back where I started smile.gif

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bonzaimy
post May 14 2012, 07:13 PM


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My case is, I don't have a problem exposing my skin to sun. I don't feel hurt or anything. And the vitiligo is on my back and my upper arm. Here a picture of normal vitiligo person.
user posted image

And here is mine :-

user posted image


Hohoho.... You think this one can spread to my face?


Added on May 14, 2012, 7:17 pm
QUOTE(skumaran24 @ May 14 2012, 02:14 PM)
The medicine does not react the same for everyone. Some treatment that works for you might not work for me too smile.gif. Mine is quite bad, leg, hand, body and face. Learn to live with it already.


Added on May 14, 2012, 2:28 pmThe best treatment so far that has very significant effect for me is:
1. To consume this tablets on alternate days.
http://behboddarou.com/images/meladinine.jpg . You must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light.
2. Apply this cream 2 to 3 times everyday. http://www.drugexp.com/images/medicine/Der...ntment_25gm.jpg

Its quite effective. Here's my before and after picture.

Before
https://www.dropbox.com/s/morlz3r7wfdacaf/IMAG0005.jpg

After
https://www.dropbox.com/s/lgalhxr0j8en4y3/IMAG0278.jpg

You can visit Dr.Nathan at Asuntha Hospital. He treated me with this medication.

But then I had to change job, got busy and had to work at Sweden for few month during the winter. Now I'm back where I started smile.gif
*
Wow... good transformation dude. May I know how much does it cost? And what do you mean by "you must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light?". Mind to explain?

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skumaran24
post May 15 2012, 10:18 AM


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QUOTE(bonzaimy @ May 14 2012, 07:13 PM)
My case is, I don't have a problem exposing my skin to sun. I don't feel hurt or anything. And the vitiligo is on my back and my upper arm. Here a picture of normal vitiligo person.
user posted image

And here is mine :-

user posted image
Hohoho.... You think this one can spread to my face?

Its very difficult to say, I never had it on my nose but since last year it suddenly appear.


Added on May 14, 2012, 7:17 pm

Wow... good transformation dude. May I know how much does it cost? And what do you mean by "you must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light?". Mind to explain?
*
The tablet is RM64, the cream is about RM25 but I suggest you visit the skin specialist at Asuntha as I went there and took this treatment (later I practice it on my own).

"you must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light?"
1. Take tablet 2 hours before your planned suntan. I used to take it at 6AM (if you have UV light, you can use that. As we stand on the sun for the UV light which activates the medication)
2. After two hours, expose the area you would like to re pigment to the sun for 20 min. I usually to it from 8AM to 8.20AM
3. Do this on alternate days.
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bonzaimy
post May 15 2012, 04:05 PM


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QUOTE(skumaran24 @ May 15 2012, 10:18 AM)
The tablet is RM64, the cream is about RM25 but I suggest you visit the skin specialist at Asuntha as I went there and took this treatment (later I practice it on my own).

"you must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light?"
1. Take tablet 2 hours before your planned suntan. I used to take it at 6AM (if you have UV light, you can use that. As we stand on the sun for the UV light which activates the medication)
2. After two hours, expose the area you would like to re pigment to the sun for 20 min. I usually to it from 8AM to 8.20AM
3. Do this on alternate days.
*
Err..sorry but normally if u visit skin specialist,how much does it cost?Can it cost till thousand of ringgi in one visit?
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TinyPumpkin
post May 16 2012, 03:52 PM


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I have a big patch of white spot on my inner thigh; just a birthmark but have learnt to live with it.

When young was visible when wearing mini dresses.


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skumaran24
post May 16 2012, 05:08 PM


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QUOTE(bonzaimy @ May 15 2012, 04:05 PM)
Err..sorry but normally if u visit skin specialist,how much does it cost?Can it cost till thousand of ringgi in one visit?
*
RM100 to RM200 per visit, usually once a month. But sometimes 2 months once.
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bonzaimy
post May 31 2012, 12:51 PM


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QUOTE(lbaby @ Apr 21 2012, 06:40 PM)
kinda sure its nerve problem , i've been taking vit b12 , and it helps, the patches reduced ! but need to combine with the treatment of light therapy

according to the link above , the scientist admister the patient 1000mg b12 and 10mg folic acid per day , then i followed , one month passed , the patches are reducing ....wink.gif i also got take vitamin c
*
it is said that need to expose to sunlight. That mean sun will do no harm in spreading the patches cause all vitiligo patient said that they can't expose to sunlight. Hmmm...
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fight for life
post Jul 14 2012, 12:38 PM


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QUOTE(skumaran24 @ May 14 2012, 02:14 PM)
The medicine does not react the same for everyone. Some treatment that works for you might not work for me too smile.gif. Mine is quite bad, leg, hand, body and face. Learn to live with it already.


Added on May 14, 2012, 2:28 pmThe best treatment so far that has very significant effect for me is:
1. To consume this tablets on alternate days.
http://behboddarou.com/images/meladinine.jpg . You must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light.
2. Apply this cream 2 to 3 times everyday. http://www.drugexp.com/images/medicine/Der...ntment_25gm.jpg

Its quite effective. Here's my before and after picture.

Before
https://www.dropbox.com/s/morlz3r7wfdacaf/IMAG0005.jpg

After
https://www.dropbox.com/s/lgalhxr0j8en4y3/IMAG0278.jpg

You can visit Dr.Nathan at Asuntha Hospital. He treated me with this medication.

But then I had to change job, got busy and had to work at Sweden for few month during the winter. Now I'm back where I started smile.gif
*
u mean the cream effective or sun tanning effective ? if i dont go sun tan then use the uvb light only can ?

so ur first visit to assunta how much they charge you ? subsequent visit is rm 100 to 200 right ,according to ur reply earlier ~


Added on July 14, 2012, 12:40 pm
QUOTE(bonzaimy @ May 31 2012, 12:51 PM)
it is said that need to expose to sunlight. That mean sun will do no harm in spreading the patches cause all vitiligo patient said that they can't expose to sunlight. Hmmm...
*
better dont simply expose to sunlight , i mean sunlight at different time is different ,b4 10 am the sunlight is ok , after that is not ok

my personal experience with sunlight is that everytime i exposed to sunlight already , like go to the beach or blah blah , my vitiligo will spread ~


Added on July 14, 2012, 1:05 pm
QUOTE(Demon_Eyes_Kyo @ Apr 3 2012, 09:56 PM)
Yup my doctor did mention something about nerve coz my vitiligo only affecting left part of my face. Did not spread to the right.

How much did u buy the lamp bro?
*
after converted to MYR, it is approximately rm 900 plus ~


Added on July 14, 2012, 1:06 pmwent to Dr Koh in Pj uptown, he gave me this cream called elomet, was effective and my vitiligo around my lips gone , but 2 months later it came back, it is me too stress or what~

This post has been edited by fight for life: Jul 14 2012, 01:06 PM
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bonzaimy
post Jul 14 2012, 03:21 PM


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QUOTE(fight for life @ Jul 14 2012, 12:38 PM)
u mean the cream effective or sun tanning effective ? if i dont go sun tan then use the uvb light only can ?

so ur first visit to assunta how much they charge you ? subsequent visit is rm 100 to 200 right  ,according to ur reply earlier ~


Added on July 14, 2012, 12:40 pm

better dont simply expose to sunlight , i mean sunlight at different time is different ,b4 10 am the sunlight is ok , after that is not ok

my personal experience with sunlight is that everytime i exposed to sunlight already , like go to the beach or blah blah , my vitiligo will spread ~


Added on July 14, 2012, 1:05 pm

after converted to MYR, it is approximately rm 900 plus ~


Added on July 14, 2012, 1:06 pmwent to Dr Koh in Pj uptown, he gave me this cream called elomet, was effective and my vitiligo around my lips gone , but 2 months later it came back, it is me too stress or what~
*
Learn to control ur stress. I also found out that it will spread if stress a lot. Doc Ranjit at SS15 didnt gave me a cream but only a pills. It works and only left few spot before it return to normal.
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fight for life
post Jul 16 2012, 12:13 AM


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QUOTE(bonzaimy @ Jul 14 2012, 03:21 PM)
Learn to control ur stress. I also found out that it will spread if stress a lot. Doc Ranjit at SS15 didnt gave me a cream but only a pills. It works and only left few spot before it return to normal.
*
yea , what pills is that ? so now the white patches are gone ?
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accutane
post Jul 16 2012, 02:14 AM


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My bf has vitiligo, dr. Ting prescribed Meladinine for him...


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skumaran24
post Jul 17 2012, 11:42 AM


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QUOTE(fight for life @ Jul 14 2012, 12:38 PM)
u mean the cream effective or sun tanning effective ? if i dont go sun tan then use the uvb light only can ?

so ur first visit to assunta how much they charge you ? subsequent visit is rm 100 to 200 right  ,according to ur reply earlier ~


Added on July 14, 2012, 12:40 pm

better dont simply expose to sunlight , i mean sunlight at different time is different ,b4 10 am the sunlight is ok , after that is not ok

my personal experience with sunlight is that everytime i exposed to sunlight already , like go to the beach or blah blah , my vitiligo will spread ~


Added on July 14, 2012, 1:05 pm

after converted to MYR, it is approximately rm 900 plus ~


Added on July 14, 2012, 1:06 pmwent to Dr Koh in Pj uptown, he gave me this cream called elomet, was effective and my vitiligo around my lips gone , but 2 months later it came back, it is me too stress or what~
*
1. Subsequent visit is about RM100 to RM200.
2. Sun exposure must be early morning sun.
3. Do take note, modern medicine has various side effect. e.g liver problem. Sometimes i feel its better to just have Vitiligo rather then these side effect problem. That's why i decided to stop taking these modern medicine.

Last Sunday i visited http://www.samkkya.com.my/ its Ayurveda clinic in Bangsar. They have treated patient with Vitiligo before. Will update you guys if there are any positive response. But generally it will take about 3 months for any Vitiligo treatment to show improvement.
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fight for life
post Jul 24 2012, 10:54 PM


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QUOTE(accutane @ Jul 16 2012, 02:14 AM)
My bf has vitiligo, dr. Ting prescribed Meladinine for him...
*
oh how long already the vitiligo ? do the meladinine works?

Have you all ever try injection? my doctor inject some medicine to the white spot , one week already , he asked me go back follow up

i had got my melagenina plus , originated from Cuba , quite famous , if u google it for information , it had 86% success rate , i'm gonna try it , but still UVB light never fail me (for the white spot on the face) , but white spot hand and leg is hard to get rid off

will update you all about my try!!!


Added on July 24, 2012, 10:59 pm
QUOTE(Tham @ Apr 23 2012, 03:21 AM)
A quick search of Medline turns up a few herbs and supplements
which may help your condition :

Ginkgo biloba
Cassia occidentalis (Senna, the common laxative herb)
Nigella sativa extract (black seed extract)

The amino acid, L-phenylalanine
The studies are here :

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2432048

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3065445/

http://www.ncbi.nlm.nih.gov/m/pubmed/21328088

http://www.ncbi.nlm.nih.gov/m/pubmed/21492177
Psoralea coryfolia is also popular, but there are reports of liver toxicity.
I believe it helps because the psoralens in it are photosensitizing, which
would improve UV treatments.

If psoralens are useful, then celery, which contains psoralens, would help
as well when used with UV.
http://www.ncbi.nlm.nih.gov/m/pubmed/20051255/

http://www.motherherbs.com/psoralea-corylifolia.html

http://www.ncbi.nlm.nih.gov/m/pubmed/19841509/

http://www.ncbi.nlm.nih.gov/m/pubmed/19640237/
You can buy black seed capsules or softgels from many of these
Malay herbal medicine stalls around town - a good brand is Baraka
from from Egypt. I've taken it before for general immunity support.
This may help you understand your condition before.

Vitiligo and the melanocyte reservoir.

http://www.e-ijd.org/article.asp?issn=0019...ulast=Falabella
*
i heard about ginkgo biloba is good for vitiligo ! but is yet to try

had you heard of the pepper extract , peperine ? is not in market yet , is under study still ~ i hope this new drug will faster be avalaible http://www.dailyglow.com/blogs/skin-and-ha...ome-from-pepper


Added on July 24, 2012, 11:00 pm
QUOTE(bonzaimy @ Mar 23 2012, 06:29 PM)
have anyone of you try anti vitiligo oil? Is it working? And since the laser treatment only available in Taiwan, I can't go there every month to do the treatment. I just came back from overseas after a month and my mom told me that my back getting really worst. Now, I just bought a Dr Rozmey product, DR 11 cause i read that one of the guy got psoriasis and after he try that product, his skin looks normal. If it's okay, then probably i would recommend it to you guys.
*
is the anti vitiligo oil working ?


Added on July 24, 2012, 11:03 pm
QUOTE(SilverIce55 @ May 7 2012, 07:51 PM)
Hi guys,

I'm a vitiligo patient from Penang.

I've been dealing with it for about 6 months after notified it on my forehead.

Been taking B12 and folix acid, but my blood test report is showing I'm overdosed with these 2 vitamins lol

My doctor is telling me that those are not the real factors for vitiligo and ask me to apply Protopic every night before I go to bed.

I'm going to try this and update everyone the status monthly. Btw, has anyone tried this treatment?
*
yea protopic is for the face , but the cortisone will work better for the body. i had been using these cream for years , and protopic will have burning sensation esp if u apply on the eyelid, if ur patches will be gone by these treatment then very good oh~ cause only new patches will respond but if the patches is quite some time already , it wont respond well already


Added on July 24, 2012, 11:07 pm
QUOTE(samowong @ May 14 2012, 11:15 AM)
Long term topical steroid use is associated with skin thinning and systemic effects. Hence, topical pimecrolimus is recommended as substitute.

Other treatments include: 
- skin grafting
- laser
- protect against sun
*
serious ? the long term topical steroid use will have systemic effect ? i had been using for years ! what is topical pimecrolimus?

This post has been edited by fight for life: Jul 24 2012, 11:07 PM
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bonzaimy
post Aug 6 2012, 12:15 PM


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Hmmm.... every doctor prescribe a meladine but Dr Ranjit just gave me a Griffon pills. It's stated on the pills. Didn't give me a box with it. Anyone know how much Griffon pills cost?
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devilish_yin
post Aug 8 2012, 12:02 AM


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here I'm back

no different using the oil plus I'm lazy to regularly use it =="
just buat muka tembok je if people ask ....

regarding those protopic are they really effective ?
or just prevent spreading. I got vitiligo after I ended up having dengue fever for a week then the patch shows up on my face ...not spreading extensively though ...just noticed I started to have a patch white hair after all these time......
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fight for life
post Aug 13 2012, 11:48 PM


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QUOTE(bonzaimy @ Aug 6 2012, 12:15 PM)
Hmmm.... every doctor prescribe a meladine but Dr Ranjit just gave me a Griffon pills. It's stated on the pills. Didn't give me a box with it. Anyone know how much Griffon pills cost?
*
plan to go visit dr ranjit too, eh u claim insurance ah? saw ur post when i research about dr ranjit , how to claim wo? insurance usually put it under comestic wo , can i pm you regarding the insurance ?
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bonzaimy
post Aug 14 2012, 02:59 AM


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QUOTE(devilish_yin @ Aug 8 2012, 12:02 AM)
here I'm back

no different using the oil plus I'm lazy to regularly use it =="
just buat muka tembok je if people ask ....

regarding those protopic are they really effective ?
or just prevent spreading. I got vitiligo after I ended up having dengue fever for a week then the patch shows up on my face ...not spreading extensively though ...just noticed I started to have a patch  white hair after all these time......
*
Thats the hardest part cause im a perfectionist. Hehehe.. Anyway, since using consume the pills, only left few spots on my hand. Going there again next friday. icon_rolleyes.gif
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fight for life
post Aug 24 2012, 10:58 PM


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QUOTE(devilish_yin @ Aug 8 2012, 12:02 AM)
here I'm back

no different using the oil plus I'm lazy to regularly use it =="
just buat muka tembok je if people ask ....

regarding those protopic are they really effective ?
or just prevent spreading. I got vitiligo after I ended up having dengue fever for a week then the patch shows up on my face ...not spreading extensively though ...just noticed I started to have a patch  white hair after all these time......
*
protopic is effective when the lesion is on the early stage ..it is to stimulate back the cell la



This post has been edited by fight for life: Aug 24 2012, 11:08 PM
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fight for life
post Aug 24 2012, 11:08 PM


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anyone heard about national skin centre before ? it is in SIngapore , it had more advance treatment for vitiligo and it is 30 to 70 sing dollar for per excimer laser treatment , consultation fees 50 singapore dollar ( if i not mistaken )

i am considering apply for jobs in singapore just to treat my vitiligo there , here is the link about national skin centre for reference

http://www.nsc.gov.sg/showpage.asp?id=222









additionally

guys , i found this thread , is it trustable ? antivitiligo tablet , creditability a bit questionable
http://www.antivitiligotablets.com/


Added on August 29, 2012, 9:08 amAnyone fancy a vitiligo patient gathering? U all can add me at fb , pm me so we all can stay connect , we are here to support each other

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kapra
post Sep 6 2012, 08:50 PM


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QUOTE(skumaran24 @ May 15 2012, 10:18 AM)
The tablet is RM64, the cream is about RM25 but I suggest you visit the skin specialist at Asuntha as I went there and took this treatment (later I practice it on my own).

"you must take the tablet at least 2 hours before you stand on the sun for 20 min to get the UV light?"
1. Take tablet 2 hours before your planned suntan. I used to take it at 6AM (if you have UV light, you can use that. As we stand on the sun for the UV light which activates the medication)
2. After two hours, expose the area you would like to re pigment to the sun for 20 min. I usually to it from 8AM to 8.20AM
3. Do this on alternate days.
*
Hi,

I also got treatment from Dr.Nathan. The treatment is very effective, but it will take long time to cure & some times it may re-occur.

First few months Dr game me maladine tablet & beprosone cream. After that he gave me Triamcinalone injection & psoralen lotion (stay under sun for UV 30 mins after applying lotion for 20 mins).

After few more months he gave me folic acid tablets , some tablet for control gastric. Then Daivobet ointment

So overall 80% of my vitiligo spots cured, but as per my general physician - all these are steroids, most of the time these steroids will impact /damage other parts of human system. After all the medication my vitiligo spots reduced & diabetic has started sad.gif

So I stopped visiting Dr..nathan ...

Note: The treatment also bit expensive (At least for me !!!) is around RM200- RM300 per month.

From past 8 months I am using homeopathy medicine. So far no positive results. But good news is that there is no NEW spots smile.gif

FYI: my spots are on left side of face, lips, scalp, chest & lately in groins ... all are small spots except at groins

Regards,
KP


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bonzaimy
post Sep 6 2012, 09:10 PM


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QUOTE(kapra @ Sep 6 2012, 08:50 PM)
Hi,

I also got treatment from Dr.Nathan. The treatment is very effective, but it will take long time to cure & some times it may re-occur.

First few months Dr game me maladine tablet & beprosone cream. After that he gave me Triamcinalone injection & psoralen lotion (stay under sun for UV 30 mins after applying lotion for 20 mins).

After few more months he gave me folic acid tablets , some tablet for control gastric. Then Daivobet ointment

So overall 80% of my vitiligo spots cured, but as per my general physician - all these are steroids, most of the time these steroids will impact /damage other parts of human system. After all the medication my vitiligo spots reduced & diabetic has started sad.gif

So I stopped visiting Dr..nathan ...

Note: The treatment also bit expensive (At least for me !!!) is around RM200- RM300 per month.

From past 8 months I am using homeopathy medicine. So far no positive results. But good news is that there is no NEW spots smile.gif

FYI: my spots are on left side of face, lips, scalp, chest & lately in groins ... all are small spots except at groins

Regards,
KP
*
Meladinine is a steroid? sweat.gif
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skumaran24
post Sep 6 2012, 09:18 PM


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QUOTE(kapra @ Sep 6 2012, 08:50 PM)
Hi,

I also got treatment from Dr.Nathan. The treatment is very effective, but it will take long time to cure & some times it may re-occur.

First few months Dr game me maladine tablet & beprosone cream. After that he gave me Triamcinalone injection & psoralen lotion (stay under sun for UV 30 mins after applying lotion for 20 mins).

After few more months he gave me folic acid tablets , some tablet for control gastric. Then Daivobet ointment

So overall 80% of my vitiligo spots cured, but as per my general physician - all these are steroids, most of the time these steroids will impact /damage other parts of human system. After all the medication my vitiligo spots reduced & diabetic has started sad.gif

So I stopped visiting Dr..nathan ...

Note: The treatment also bit expensive (At least for me !!!) is around RM200- RM300 per month.

From past 8 months I am using homeopathy medicine. So far no positive results. But good news is that there is no NEW spots smile.gif

FYI: my spots are on left side of face, lips, scalp, chest & lately in groins ... all are small spots except at groins

Regards,
KP
*
Where are you going for homeopathy treatment?
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fight for life
post Sep 8 2012, 10:01 AM


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Dear all i am now visiting dr ruban, i think its dr nathan brother according to my assunta friend
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kapra
post Sep 12 2012, 11:14 AM


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http://zeenews.india.com/news/health/disea...ligo_18762.html

New ttype of treatment for Vitiligo


Added on September 12, 2012, 11:15 am
QUOTE(skumaran24 @ Sep 6 2012, 09:18 PM)
Where are you going for homeopathy treatment?
*
Pavuluri Krishna Choudhary, Hyderabad, India

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bonzaimy
post Sep 12 2012, 03:43 PM


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QUOTE(kapra @ Sep 12 2012, 11:14 AM)
http://zeenews.india.com/news/health/disea...ligo_18762.html

New ttype of treatment for Vitiligo


Added on September 12, 2012, 11:15 am
Pavuluri Krishna Choudhary, Hyderabad, India
*
good. Waiting for it.. laugh.gif
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fight for life
post Sep 15 2012, 12:41 AM


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Dear all , i got a news for you all

so i had been to dr ranjit clinic , he ask me to take some pill in the morning , then go expose myself to sun after one hour and a half of taking that pill

It might worked , but it caused me heartburn everytime i took it so i give up on it

and stop trying to repigment the hands, it wont work , just making it more obvious


then lastest attempt is to Dr ruban clinic at damansara heights , he got sell narrowband UVB machine from DERMAPAL
http://www.daavlin.com/patients/photothera...calp-spot-unit/

Price : rm4000 plus per unit ( Dr Ruban got offer easy payment with credit card)
country: USA
Clinic Website: http://www.drruban.com/

and guys if UVB could not help you,
excimer laser is the best technology now
http://gleneagleskl.com.my/find-a-doctor/
Find Dr Gan
I think he is the only Dr in Malaysia with excimer laser
i ask about the treatment fees
roughly around rm200 per treatment excluding consultation fees ( around rm150)


so you all can make your move to get the treatment

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fight for life
post Sep 15 2012, 12:48 AM


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QUOTE(kapra @ Sep 6 2012, 08:50 PM)
Hi,

I also got treatment from Dr.Nathan. The treatment is very effective, but it will take long time to cure & some times it may re-occur.

First few months Dr game me maladine tablet & beprosone cream. After that he gave me Triamcinalone injection & psoralen lotion (stay under sun for UV 30 mins after applying lotion for 20 mins).

After few more months he gave me folic acid tablets , some tablet for control gastric. Then Daivobet ointment

So overall 80% of my vitiligo spots cured, but as per my general physician - all these are steroids, most of the time these steroids will impact /damage other parts of human system. After all the medication my vitiligo spots reduced & diabetic has started sad.gif

So I stopped visiting Dr..nathan ...

Note: The treatment also bit expensive (At least for me !!!) is around RM200- RM300 per month.

From past 8 months I am using homeopathy medicine. So far no positive results. But good news is that there is no NEW spots smile.gif

FYI: my spots are on left side of face, lips, scalp, chest & lately in groins ... all are small spots except at groins

Regards,
KP
*
How come u know all these medical term ? i find out Dr Ruban is Dr Nathan Son, yeah , he gave me some injection at my thigh as well , he told me that is steroid so that my immune system wont keep killing my melanin
but he did not tell me name of those though


oh well , but i feel a bit of week and always crave of sweet food , is that a sign ? i dont want to get diabetes
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fight for life
post Sep 15 2012, 12:51 AM


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Do you all know the vitiligo program by clinuvel ?
Its really giving positive hope...
they are doing the research on a new drug to cure vitiligo
and the result is promosing


but all the trials and drug test gonna take 2 to 3 years from now
gotta wait

http://www.clinuvel.com/en/scenesse/vitiligo
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fight for life
post Sep 15 2012, 01:32 AM


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Guys i also wanna tell that i created a facebook group to support each other of the vitiligo patient in Malaysia '

i think stigmatization can really crushed someone down ,
so i created this facebook group so that we'll know we got each other back
u can search this name "vitiligo bond malaysia" https://www.facebook.com/groups/417865751609854/
dont worry its a closed group , so other ppl cant see what is in it ...'
wink.gif

Hope you guys live life strong everyday !


Added on September 18, 2012, 11:46 pmsorry for spamming the wall , cause i got info to share again

http://www.clinuvel.com/en/news/webcasts/w...e-wolgen-part-4

if u know michael jackson and lee thomas, well mj is a well known singer, lee thomas is a well know anchor in US , so both of them having vitiligo

lee thomas was the spokeperson for vitiligo community in US

now he is asking about the new drug developed by the pharmaceutical company :clinuvel , the progress of the new drug and what roles should a vitiligo patient plays

Though we suffer from vitiligo , we are not alone , i am sure there are more vitiligo patients in Malaysia , i just wanna group up and tell the other that we support each other ! and if no one did this , i try tho , starting today to raise the awareness to public about this decease

thought there are unspoken comment , but all the stares and weird look that throw on me .....i think no one should be discriminated ..we are NORMAL ....its time to voice out ...

i need to know ur story, i wish i could gather everyone story, each story of a vitiligo patient ( without real names of course) , and let the society know about us , we are not isolated by the society , we need to create the awareness....

This post has been edited by fight for life: Sep 19 2012, 12:01 AM
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skumaran24
post Oct 2 2012, 09:28 AM


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QUOTE(skumaran24 @ Jul 17 2012, 11:42 AM)
Last Sunday i visited http://www.samkkya.com.my/ its Ayurveda clinic in Bangsar. They have treated patient with Vitiligo  before. Will update you guys if there are any positive response. But generally it will take about 3 months for any Vitiligo treatment to show improvement.
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It has been almost 3 months since my visit to Ayurveda(http://www.samkkya.com.my/). I'm seeing significant re pigmentation on my hand. So far the treatment looks good price around RM100++ per visit. But you must be vegetarian for at least 3 months first.
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fight for life
post Oct 20 2012, 01:20 PM


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DEar all,

remember that i said there is a facebook group ?

and now we have OUR 1ST VITILIGO PATIENT GATHERING IN MALAYSIA !!!

Attached Image


i had print screen the fb group so u all can see it
but OF COURSE I HAD block some privacy information of mine and also other members in the groups
some of the forumers in this topic already join the facebook group,
i hope u all also will join this movement together .



p/s: click to enlarge the picture wink.gif

and if u still cant see the details clearly,
here is it

"dear all, you are cordially invited to our 1ST vitiligo patient gathering!
we will talk about what we had been through , how we overcome , what works and what do not works for repigmentation and the most importantly to cultivate friendship and the bond between each other

so come and join us !

Time : 6.30pm
Date: 25th OCTOBER (its next thursday !)
Venue: Nature's Vegetarian Restaurant
52, jln ss 14/2 (opposite metropolitan college), subang jaya, malaysia

SEEEEEEEEEEE you there !!!

looking forward to it
"
Thank you so much !

This post has been edited by fight for life: Oct 20 2012, 01:25 PM
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skumaran24
post Oct 25 2012, 09:55 AM


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Anyone joining the gathering tonight...?
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fight for life
post Oct 31 2012, 01:38 AM


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The gathering was fun ! we talked about everything .....like how we face interview with vitiligo...how we deal with vitiligo at work , which skin doctors to go , how much they charge ! most importantly , it cheers up our days knowing that we are not alone !

thanks dear forumer skumaran24 and also facebook group member for joining and also share a lot about his experience as a vitiligo patient on that day too wink.gif
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choco-cream
post Nov 9 2012, 09:22 AM


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Anyone has any idea on this?

http://nileherb.blogspot.com/2008/09/vitil...ill-eye-go.html

I inquired them and the reply says that 80% success.
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fight for life
post Nov 26 2012, 12:13 AM


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hi guys ... how are u all doing , so i tried this item called Vitiligo cover lotion from USA

Okay so this is my review using the vitiligo cover
1.it blends in well with my skintone..it looks natural (except u greedy apply too much at one time lol)
2. One bottle is economical as i.use so little
3. The colour staysssssss ! It trick me to think that i am repigmenting LOL ...even i bath ..even i wash my hand with soap it stay there ...when i wipe my hand dry with towel aft i wash my hand


Cons
1. Need to apply carefully for esp for those smaller white patches cause need to avoid the pigmented skin
2.wont make ur skin look like they dont hv vitiligo but less lesss lesssss obvious definitely

You can check out the before and after pic.
Attached Image
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Attached Image
Attached Image


I had shared it over the facebook group as well
https://www.facebook.com/groups/417865751609854/?fref=ts


Attached thumbnail(s)
Attached Image
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fight for life
post Nov 26 2012, 12:18 AM


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QUOTE(choco-cream @ Nov 9 2012, 09:22 AM)
Anyone has any idea on this?

http://nileherb.blogspot.com/2008/09/vitil...ill-eye-go.html

I inquired them and the reply says that 80% success.
*
Dear Choco Cream ,

i dont really trust these kinda online thing cause they are 90 % fraud , if you are staying around in kl i can recommend you a ayuveda clinic in Bangsar , me and another forumer is seeking treatment there.

http://www.samkkya.com.my/

youu may pm me or join this facebook group if you need further information
https://www.facebook.com/groups/417865751609854/?fref=ts (name called vitiligo bond malaysia)

All the info , life stories of the vitiligo patient (we are trying to find out how everybody get the disease too) , you can get the access through the fb group

thanks.


Serving alongside,
JY
founder of Vitiligo Bond Malaysia
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fight for life
post Nov 26 2012, 12:29 AM


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This is the description of the vitiligo community group in malaysia called "Vitiligo Bond Malaysia"

https://www.facebook.com/groups/417865751609854/

__________________________________________________________________________________________________________________________________

Vitiligo Bond Malaysia was created on October 2012. The first gathering of the vitiligo patient was on 25th October 2012, Kuala Lumpur.


The vision of this non profit organisation is to create awareness of Malaysian about Vitiligo. We gather all the vitiligo patients to unite them and let our voices to be heard one day . We may start small but we will grow.

This is a place where we share all the treatment reviews and places /clinics that we went to seek treatment, with the power of this vitiligo community , we can strengthen each other , most importantly networking , to know each other and share information.


"gathering weeping soul and put smile on their face again"

Serving alongside of Vitiligo Bond Malaysia,
JY
last updated on 26th November 2012

___________________________________________________________________________________________________________________________________
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choco-cream
post Nov 26 2012, 09:14 AM


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QUOTE(fight for life @ Nov 26 2012, 12:18 AM)
Dear Choco Cream ,

i dont really trust these kinda online thing cause they are 90 % fraud , if you are staying around in kl i can recommend you a ayuveda clinic in Bangsar , me and another forumer is seeking treatment there.

http://www.samkkya.com.my/

youu may pm me or join this facebook group if you need further information
https://www.facebook.com/groups/417865751609854/?fref=ts (name called vitiligo bond malaysia)

All the info , life stories of the vitiligo patient (we are trying to find out how everybody get the disease too) , you can get the access through the fb group

thanks.
Serving alongside,
JY
founder of Vitiligo Bond Malaysia
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Roughly how much would it cost?
I have vitiligo since I am 6, and I'm 25 now.
my patches has been better as time goes but at some area, it will still "spread" little by little.
=(
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fight for life
post Nov 28 2012, 06:48 AM


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QUOTE(choco-cream @ Nov 26 2012, 09:14 AM)
Roughly how much would it cost?
I have vitiligo since I am 6, and I'm 25 now.
my patches has been better as time goes but at some area, it will still "spread" little by little.
=(
*
the first time i went , they charge me rm 155 include the medicine and then subsequently is lesser , around rm 60 , i only see him once per month , so it is not so burdened la

do join our group ya , there you can get more people to answer you and faster , and the group is secret , even you join with your fb , no one will know you have this group or any activities in there , so no need to worry about that
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wjyen88
post Apr 4 2014, 10:47 AM


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Hi Guys, Let me introduce myself,

I am a clinical researcher who would be handling a new Vitiligo treatment drug trial in Singapore which would be starting in a few weeks time.

The drug being tested is called Afamelanotide by the company Clinuvel. Treatment is given concurrently with Narrow Band UVB treatment. We are seeking to recruit 60 patients for the drug trial and results from earlier trials in the US is promising.

This would be the first trial of the drug on the Asian population. So please help us develop a better treatment for vitiligo by spreading the awareness of this trial.

If you are interested to participate or would like more information, please PM me for further details.

Participation in the trial is free and there will be some travel reimbursement. Though there would be frequent visits (twice a week) required to the National Skin Centre Singapore for the treatments. All consultations and treatment expenses for the trial would be free as well.

This post has been edited by wjyen88: Apr 4 2014, 10:55 AM
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