My son is a Down Syndrome boy. He's 12 now.

Any parents here with Down Syndrome kids?

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try to look for down syndrome support group and centers. My son have asperger's syndrome. I understand how hard it is to take care of such a kid. Especially down syndrome which not much help you can get from malaysia government. Good luck.

I have a family friend who has a down syndrome daughter. She 20+ edi if not mistaken and she loves to read magazines and help out her mother during cooking.

why are u looking for something that is so sad mentioning it?

I think the purpose is to share data.

Soonwai, sorry to hear of your son.

Indeed, just want to share parenting tips, experience, etc... with DS kids' parents.

It's been 12 years for me and I think I got over the "sad" part the first few months.

I have a cousin who is ds. He is 40++. Very loving and a great companion to his mom.

You can browse to www.early123.com

There are some in this chinese forum with a group of helpful parents helping each others...

can I know is this 40+ DS person independent? Does he have a job? What happen when the mom has passed on?

I would say he is independent. He knows how to take care of himself. No he does not have a job. Donno what happen if the mom passed on.

my cousin is, i think he is 12 now.
he can walk but a bit hyperactive when walking.
probably he is too excited after being sited/guarded for most time.
he still need someone to feed, cannot talk yet. when try to talk like to shout like that.

any tips ? i see my aunt suffer very pain also, and she refuse when we said let the pro take care of him and teach him basics.

Why does she refuse? The child need to learn how to do everything from as simple as going to toilet to using utensils to eat. All these need to be taught. Professionals should be able to advise on that. You can also get her to join parents support group where parents can exchange information. This is very good in building confidence for the parents and also lessen the burden.

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Added on February 24, 2011, 2:50 pmBy independent means he is able to also work for a living and do not need any direct help. I think this is the main concern for all parents with special child. If he cannot get a job or work, then the parent need to start arranging for ways make sure the child can continue living when they are gone. Like getting help from siblings or relatives.

This post has been edited by abubin: Feb 24 2011, 02:50 PM

Hi, My sister is 28 years old this year. Not Down Syndrome. But she has one chromosome which is slightly shorter. Doctors called her condition 'Slow Learner'. I am not too sure what s the exact medical term. Hard to pick up stuffs in school. Went to special school till she is 21. Now she helps my mom full time at home. Also help looks after my baby. She looks like she is 12 years old. Small size. Very very attached to my mom.

Maybe dyslexia? I'm not quite sure about tht too. :/

dyslexia is being not able to read properly. Like mixing up between b and d, getting alphabets in reversed order.

This can be remedied easily in early childhood through proper training.

BTW...how do one find out if one has a chromosome that is slightly shorter?

Seriously, sad? What is so sad about a fact of life?

so there can never be sadness in the fact of life?

i wouldn't say it is something sad. But rather an obstacle in life. A big obstacle. However you just need to make the best out of it and not feel "sad" about it.

those are the sin free children...God love them the most....peace...