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 Do you have a Down Syndrome child?

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abubin
post Feb 18 2011, 03:17 PM

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try to look for down syndrome support group and centers. My son have asperger's syndrome. I understand how hard it is to take care of such a kid. Especially down syndrome which not much help you can get from malaysia government. Good luck.
abubin
post Feb 21 2011, 04:05 PM

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QUOTE(yongsli @ Feb 21 2011, 10:20 AM)
I have a cousin who is ds. He is 40++. Very loving  and a great companion to his mom.
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can I know is this 40+ DS person independent? Does he have a job? What happen when the mom has passed on?
abubin
post Feb 24 2011, 02:46 PM

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QUOTE(dvinez @ Feb 24 2011, 02:25 PM)
my cousin is, i think he is 12 now.
he can walk but a bit hyperactive when walking.
probably he is too excited after being sited/guarded for most time.
he still need someone to feed, cannot talk yet. when try to talk like to shout like that.

any tips ? i see my aunt suffer very pain also, and she refuse when we said let the pro take care of him and teach him basics.
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Why does she refuse? The child need to learn how to do everything from as simple as going to toilet to using utensils to eat. All these need to be taught. Professionals should be able to advise on that. You can also get her to join parents support group where parents can exchange information. This is very good in building confidence for the parents and also lessen the burden.


Added on February 24, 2011, 2:50 pm
QUOTE(yongsli @ Feb 24 2011, 01:42 PM)
I would say he is independent. He knows how to take care of himself. No he does not have a job. Donno what happen if the mom passed on.
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By independent means he is able to also work for a living and do not need any direct help. I think this is the main concern for all parents with special child. If he cannot get a job or work, then the parent need to start arranging for ways make sure the child can continue living when they are gone. Like getting help from siblings or relatives.

This post has been edited by abubin: Feb 24 2011, 02:50 PM
abubin
post Mar 3 2011, 05:52 PM

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dyslexia is being not able to read properly. Like mixing up between b and d, getting alphabets in reversed order.

This can be remedied easily in early childhood through proper training.

BTW...how do one find out if one has a chromosome that is slightly shorter?
abubin
post Mar 4 2011, 11:07 AM

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i wouldn't say it is something sad. But rather an obstacle in life. A big obstacle. However you just need to make the best out of it and not feel "sad" about it.
abubin
post Mar 4 2011, 01:56 PM

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QUOTE(blackespresso @ Mar 4 2011, 12:56 PM)
I agree. All the best in taking care of your child.

Again, there is a whole spectrum of Down syndrome, with very mild to very severe sign/symptom depending how much of chromosome 18 material is affected/duplicated.

I am just wondering, is there a screening test in malaysia available to pregnant mother to screen for down syndrome?
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so what if down syndrome are diagnosed during prenancy? There are no cure for it. Does that means you would want to abort the baby?
abubin
post Mar 14 2011, 12:09 PM

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Here is a shoutout for parents or people to contribute to the autism society.

http://forum.lowyat.net/topic/1788449

Please help to donate and create awareness.

 

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