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 High Fever - Febrile seizure, My son just admitted..

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digitax
post Mar 23 2011, 06:48 AM

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My prayers are with you and your family ...
samowong
post Mar 23 2011, 10:14 AM

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Sounds like encephalitis. I pray that he pulls through.
qarezma
post Mar 23 2011, 03:21 PM

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im so sorry to hear whats going on there.. for a while i was speechless. You are indeed pillar of strength for your wife and kid, stay the way you are!

my prayers with you, your wife & child.. I am sure god that planned the best for you. Hang in there bro...
grinner
post Mar 23 2011, 04:02 PM

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My thoughts and prayers go to your child and your family. I cannot even imagine what you and family are going through, and can only offer our moral support. Whatever path this leads to, just remind yourself to be strong for your family.
lee82gx
post Mar 23 2011, 04:23 PM

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recently my 6mo just have a rather simple high fever, even then we are already panicking. I just can't imagine the stress you and your wife and family is faced with.

We will pray for you and your son. If possible please PM me his actual name. God will hear one more prayer today at least.
love_hina
post Mar 24 2011, 01:56 PM

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my experience how to handle it

when your child got fever, pls touch his feet/hand.. is it cold? or hot?

if it is cold, pls use your hand to scrub and do whatever you can warm back his hand and feet. this is the method we always use and it worked

if it is hot, pls try to get a wet towel, wipe his whole body, take off all his clothing.

while you were doing this, give plenty of water, talk to the child. no sleeping coz sleep may increase the temperature. check the child temperature every 5 mins.

dont worry, your child will be fine. take good care of your wife coz this may scare the hell out of her.. she is pregnant isnt?
phythia79
post Mar 24 2011, 02:33 PM

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QUOTE(love_hina @ Mar 24 2011, 01:56 PM)
my experience how to handle it

when your child got fever, pls touch his feet/hand.. is it cold? or hot?

if it is cold, pls use your hand to scrub and do whatever you can warm back his hand and feet. this is the method we always use and it worked

if it is hot, pls try to get a wet  towel, wipe his whole body, take off all his clothing.

while you were doing this, give plenty of water, talk to the child. no sleeping coz sleep may increase the temperature. check the child temperature every 5 mins.

dont worry, your child will be fine. take good care of your wife coz this may scare the hell out of her.. she is pregnant isnt?
*
love_hina...i'm not sure if you have properly read the whole thread but his child has just be diagnosed & admitted to hospital with some sort of encephalitis which is just not like any other fever.
TSauhckw
post Apr 28 2011, 08:31 AM

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Life has changed since the last 1 month+ since this happened.

I have been sleeping in the hospital for nearly 26 days. My son is now back at home. His condition is stabilized. But damage is already done.

Certain part of his brain has been damaged. It is ANEC, but unknown to what virus/bacteria that triggers it. Blood test came negative for Influenza A, B and H1N1. Doctor cannot explain how he got it. It can be from anywhere, anytime and anything. It is just unfortunately he is wrong place wrong time and got exposed it.

At the moment, his brain has caused him to have Dystonia (http://en.wikipedia.org/wiki/Dystonia). He is either sleeping soundly, staring blanks or screaming in pain due to stiffness/cramps at both legs and hands. He is awake but not fully conscious. He cannot respond to things. A lot of suffering for him.

He is not able to eat/drink through mouth. He cannot swallow his own saliva either. So right now, we are feeding him milk through tube.

Since he is back home, we can see his condition are improving. Not by big improvement, but small small improvements. Doctor said on the bright side, he is still small and there are some chance he may improve, but doctor said we have to be prepared that it may not.

We are not losing hope. We are still keeping faith. Life is tough, but if this is what god has decided for us... we will go through this test.
phythia79
post Apr 28 2011, 08:48 AM

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Thank you for the update. I'm sorry to hear what has transpired. I'll definitely keep u and your family in my prayers - to give you strength to go through this trials and for recovery.
cc980024
post Apr 28 2011, 09:05 AM

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QUOTE(auhckw @ Apr 28 2011, 08:31 AM)
Life has changed since the last 1 month+ since this happened.

I have been sleeping in the hospital for nearly 26 days. My son is now back at home. His condition is stabilized. But damage is already done.

Certain part of his brain has been damaged. It is ANEC, but unknown to what virus/bacteria that triggers it. Blood test came negative for Influenza A, B and H1N1. Doctor cannot explain how he got it. It can be from anywhere, anytime and anything. It is just unfortunately he is wrong place wrong time and got exposed it.

At the moment, his brain has caused him to have Dystonia (http://en.wikipedia.org/wiki/Dystonia). He is either sleeping soundly, staring blanks or screaming in pain due to stiffness/cramps at both legs and hands. He is awake but not fully conscious. He cannot respond to things. A lot of suffering for him.

He is not able to eat/drink through mouth. He cannot swallow his own saliva either. So right now, we are feeding him milk through tube.

Since he is back home, we can see his condition are improving. Not by big improvement, but small small improvements. Doctor said on the bright side, he is still small and there are some chance he may improve, but doctor said we have to be prepared that it may not.

We are not losing hope. We are still keeping faith. Life is tough, but if this is what god has decided for us... we will go through this test.
*
At this moment, I don't know what to say but just to pray for your child and also for you and your wife.
What the doc said is true, he is still so young and I do believe miracle do happen. As long as we never give up, your child will definitely grow up to be better and better. Although we cannot be certain that he will 100% recover but definitely he can grow to be independent and leading a very normal life, under the love and nurture from the parents.

I am not telling lies, I do see miracle happen because of love.
My ex-colleague is the only son in the family and he was 22 years old when he got into an accident with a lorry. He went coma and the doc explain that the nerves in his brain is just like a bunch of wire being pull out. Doc said he would be vegetarian state forever and recommended to end his life. But his parents insist to keep him as they cannot afford to lost their one and only child. But he wake up 1 year later, bed-ridden and could not talk. Over years, we see him from bed to chair.. from chair to walking stick. Since the day he wakes up, he learn to talk all over again.. And now .. he is still on walking stick and talking (very unclear) but everyone is happy .. as he is independent in his own way. Due to his brain reaction slows down ever since, he could not work outside. But he is helping at his father's shop. At least we have him back. Every improvement to his state is a milestone for everyone and we are glad to have him with us.

So, have faith. We understand your future will be very tough having to bring up your child this way. But always remember, he is your gemstone. His future lies on your hand now and he will make it, if you believe in yourself. God will give us chance, if he sees that we really work for it.
nicKit
post Apr 28 2011, 01:06 PM

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TS, have faith... if u feel like toking, we have a bunch of ears rite here smile.gif
mofonyx
post May 3 2011, 07:16 AM

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Sorry to hear about the unfortunate turn of events auhckw. I came back to post on this thread to see how things were going. I wish you and your family the best and only good things from now on.



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