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 High Fever - Febrile seizure, My son just admitted..

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TSauhckw
post Feb 17 2011, 03:59 AM, updated 15y ago

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My son (16months) got fever yesterday morning and we gave him paracetamol (seems like his usual fever). And just 2 hours ago, when my wife feed him medication at about 1am, he was till ok. My wife then went down to clean up, and I can hear my son still talking to himself and then he climbed down bed himself. Walked around like normal.

Suddenly he came to me and collapse in front of me and started to shiver. I thought he was playing with me. But then I noticed something was wrong. He was stiff and shivering all over. His eyes were looking up. Not responding to call.

I went into shock. My wife too. Mother in law came and helped us. We tried to wake him up. The shivering and stiffness lasted about less than 5 minutes, but he is still very weak and not responding to us.

We quickly pack and headed to hospital. The Medical Officer said most likely my baby is getting Fever Fit, but our baby has to admit to be monitored. The pediatric will come and see our baby in the morning.

http://en.wikipedia.org/wiki/Febrile_seizure

I am now back home to pack and then rush back again. The feeling that I just went through is so scary. I have never felt this scared before. God please help...

Any of you guys have experience of such... please share...
TSauhckw
post Feb 17 2011, 04:45 AM

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A video showing how it looks like...


http://www.youtube.com/watch?v=6eQHWsNhkOg
TSauhckw
post Feb 17 2011, 04:49 AM

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Understanding Febrile Seizures (Health Guru)


http://www.youtube.com/watch?v=p5crX6ys9FA
TSauhckw
post Feb 17 2011, 02:22 PM

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My wife and I are now back to take a quick rest while baby and my mum is still at the hospital.

The doctor said Fever Fit is quite common. 10% people will get it . And if you have family history of someone who got it, then the chances of getting it is 20%. For our case, my brother got it once and same goes for my wife.

Once a person got Fever Fit, he/she may get it again if no proper precaution is taken. It will eventually go away when the child is 7 years old. Some people only got it once in their life, so if taken care, it is not serious. When the baby is in the seizure as long he/she comes back to normal within 15 minutes, there is no damage to the brain, etc.

Why it happened? Sudden change of body temperature to 38.5c and above.

How to prevent? Make sure the baby body temp don't go above 38.5c. When having fever, don't let him/her wear thick clothing. No direct fan. Can be in air cond room of 26c. Cool room, not cold room. Then use wet towel and put on his forehead, neck and underarms.

What to do if seizure happens again? Never ever put anything into his mouth. It may damage his tongue/gum. Lay him down facing sideways, then push his chin up. Don't shake him.

Doctor said she will prescribe us 2 medication to be used when Fever Fit happens again. Has to put into anal. 1 of the medication is DDA (dangerous drug).

How is my son? His fever is going up and down. Still on the high side. Doctor said could be some virus/bacteria. So they will take his blood test today. Definitely have to stay overnight today, if blood result is ok, then we can discharge tomorrow.
TSauhckw
post Feb 18 2011, 01:37 PM

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Blood result came back. It was normal. He just caught a high fever which doctor said will normally last 3 to 4 days, which his temp will go up and down. During this time he may shiver, diarrhea and get some mouth ulcer. and when his body starts to show some rashes, doctor said it shows that he is recovering.

If his temperature is under control... maybe this evening can discharge.

A lesson learned the hard way... never play play with High Fever! It can caught you off guard!

PS: About his right hand... they do that so that they can easily take his blood (if required more than once) and also to put the drip (if required). The process of wrapping is so heartache.

This post has been edited by auhckw: Mar 20 2011, 01:50 PM
TSauhckw
post Feb 18 2011, 09:54 PM

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Finally just reached home with baby and wife. Thank god for letting us go through this. His temperature is still up and down but is under medication control. Doctor said in few more days should go away.

Going through this episode really makes me understand being a parent is a really really responsible and challenging task. A lot of personal sacrifice, giving and worry... but in return of a lot of joy with him.

I have to really thank my wife to be so strong and able to go through this. She being 7 months pregnant has to take care of my son, herself and our next baby. Thanks for family and relatives that gave support, doctor and nurses, friends, you guys here and also to wife's company for giving ING that paid the bill smile.gif

This post has been edited by auhckw: Feb 18 2011, 09:56 PM
TSauhckw
post Feb 21 2011, 04:30 PM

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My mum just called me. She said baby just vomit and diarrhea 5 times already. Lucky his body temp is ok.

I called the doctor, she asked us to change to soya milk and try to give more water.

I asked when to know it is serious and have to admit. She said, when the baby cannot take in any water and dehydrates/dry… then have to send admit sad.gif

TSauhckw
post Feb 21 2011, 06:26 PM

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QUOTE(abubin @ Feb 21 2011, 06:10 PM)
baby still have vomit and diarrhea? In my opinion, the doctor should not have allowed him to discharge from hospital. It means the virus/bacteria causing the sickness is still there. Should have let the baby stay in hospital another day to monitor. Continue letting the baby use drips would have avoided the vomiting. Anyway, too late now. Just monitor the baby closely.

At this stage when vomitting and diarrhea still active. Most important is to provide fluid. Minimum solid food. If milk also causing vomit then maybe try fruit juice. Most important is not to let the baby dehydrate. He won't want to eat anything anyway.

Did the doctor take his stool sample for checking?
*
When my baby discharge on Fri, he was not having the vomit thingi. He first vomit 1 time on Sat, and no vomit on Sun.

Only today he started to vomit and diarrhea more.

How does dehydration look like or symptom of having it?
TSauhckw
post Feb 21 2011, 08:39 PM

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Thanks for the tip. Will monitor his progress. He already diarrhea 8 times today sad.gif Can see he is lembik...

Just came back from buying Isomil Plus - Tanpa Laktosa 1-10. Tonight will try. Hope he is able to drink it and recover fast.
TSauhckw
post Feb 22 2011, 08:20 PM

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When he was in the hospital, his blood test was showing normal.

Yesterday, 8 times diarrhea, today 5 times. Watery diarrhea. Fever has gone away. Eating a little. Doctor said as long not dehydrated and no unusual thing, this is viral fever infection, have to monitor and it should go away few more days.

My mother got diarrhea and vomit today after handling my baby yesterday.... didn't know it can spread... so the advice is after cleaning up the baby, we have to clean our hands properly.

This post has been edited by auhckw: Feb 22 2011, 08:21 PM
TSauhckw
post Feb 22 2011, 08:33 PM

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My wife just told me that her friend's bb (about 20 months) also got the same viral fever with diarrhea now.

Guess where is the place both of our baby went before the viral fever happens? 1Utama Old Wing which is doing renovation at most of the shops especially near Jusco side. We went last Tues, my wife's friend went last Mon. Both bb got sick the next day.

According to our doctor and my friend's doctor.... both the doctor (in PJ area) said there are many cases of kids getting viral fever recently...

I don't wish to start any rumors or false alarm, but I would advice if you have kids, try to avoid going to Old Wing till their renovation is complete. Better be safe than sorry.
TSauhckw
post Feb 23 2011, 02:49 AM

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QUOTE(Alternation @ Feb 23 2011, 01:11 AM)
About 4 days ago my whole family of 10 people, ALL of us had bad diarrhea and vomiting for 2 days. We managed to trace the cause, my nephew got it from the kindergarten and started vomiting and diarrhea. The virus infected us when his grandmother washed him after his purging and probably didnt get her hands totally clean when she resumed cooking. Lots of people are suffering from the same virus here in KB and its surprising to learn that its happening in PJ too. We might have a pandemic developing here.

Anyway how is ur son coping with the lactose free milk? is he fussy towards it?

I'm definitely getting my 4mth old son a good thermometer very soon. I've also been told to stock on some medicine which is to be inserted into an infant's anus during seizure but i cant recall the name and its purpose. Hope you wont mind sharing it.

@Abubin: When a child is having diarrhea, he is not supposed to consume his regular formula milk as it contains lactose which will worsen the diarrhea. An alternative is to feed him nothing else but lactose free milk which are usually based on soya.
*
I have warned everyone about cleaning up hands properly after contacting with baby's poop or pee.

Now, my son is only taking very little milk (lactose free). Usually he can finish about 190ml, but now 90ml only. Porridge also 1/2 intake from his usual. We don't want to push him into eating more, scared he will vomit.

We bought the braun ear thermometer in the hospital's pharmacy. Cost us RM249 (I think should be cheaper elsewhere). Very fast result. Now my son knows whenever i said 'tit tit' means time for ear check. He will move his ears towards me.

The anal paracetamol that we got from the hospital is 'Voltaren'. To be used whenever baby's temperature will not go down after normal paracetamol intake from mouth. Above 38.5c can put in anal already, to be taken 6 hours once.
TSauhckw
post Feb 23 2011, 06:51 PM

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Monday:-
Baby - 8x Diarrhea + 1x Vomit

Tues:-
Baby - 5x Diarrhea
Mother in Law: 3x Diarrhea + 3x Vomit

Today (time of posting):-
Baby - 4x Diarrhea. No fever. Eating not much.
Mother: 3x Vomit
Father: 5x Diarrhea

My parent's turn to get infected after taking care of my son...

This post has been edited by auhckw: Feb 23 2011, 07:45 PM
TSauhckw
post Feb 24 2011, 06:44 PM

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So far today no diarrhea from him. He can drink more milk (lactose free). He is still weak when he is walking but at least a bit more active already.

Hope we can close this chapter... now left sick are the 4 adults who has taken care of him.

This post has been edited by auhckw: Mar 20 2011, 01:50 PM
TSauhckw
post Mar 19 2011, 09:07 PM

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How can this thing happened twice within 2 months...

He caught a fever since yesterday and even with us trying to control, giving medication and monitoring his fever closely, he still got the seizure.

It all started with him shivering and turning blue, then we brought him into air cond room trying to cool him down, but still he collapse and went into seizure. He woke up within 1 minutes, but we can see he is very weak, eyes not looking normal and shivering. Due to him shivering, we use a light cloth covering him and quickly put a wet towel on his forehead. Gave him a bullet up his anal. Packed and rushed into the hospital.

Upon arrival, the nurse gave another bullet up his anal and the dda medication (since he has got fits before). Then she stripped him naked, and started wiping a wet towel from his head to toe. He was all wet and crying out loud. It was very cold, but she said this is the normal procedure of cooling him down.

Then the medical doctor came and examined. She said we better admit him so that they can monitor closely and also to take a blood test since his stool has some blood. She said, next time when his fever cannot go down, use the same technique. Use a wet cloth and wet him from head to toe. She said it is very normal that the baby will shiver and turn blue cause his fever has gone too high. It is better he is cold, shiver rather than getting the seizure.

Now we are waiting for doctor to come the next day and check on our baby. He is sleeping now, Hope all is well... I am very scared...

TSauhckw
post Mar 20 2011, 01:16 AM

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Earlier, doctor came into our room and said to remove all his clothes to fasten his cooling down in the aircond room. He is only left with his diapers and a nappy cloth.

We are now in the ward, baby is sleeping but he keeps crying whenever he opens his eyes with fear and went stiff of fear.

He is not looking at us. Doesn't respond to the direction of things we are showing him.

I want to collapse in fear... hope we can go through tonight and tomorrow morning things are normal back. Dear God, please let us go through this...

This post has been edited by auhckw: Mar 20 2011, 01:51 PM
TSauhckw
post Mar 20 2011, 07:35 AM

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Now no more fever, but my fear is that he screams whenever he opens his eyes. Is like he cannot see. I tried to show him things, but he is ignoring. He shivers, stiff, cry, biting teeth but no fever.

Whole night the same thing on and off. This morning woke up massive diarrhea till the bed is also dirty.

He is refusing liquid. Now waiting for doctor to come. Nurses suggested to change room to try.
TSauhckw
post Mar 20 2011, 01:58 PM

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Doctor came and said what he is having is partial fits, where he is still going through the seizure without fever, eyes not focusing, stiff, shivering, teeth grinding... which means for the entire night, he has about 6 to 8 times partial fits.

Doctor said she has to transfer him into HDU (High Dependency Unit). They put all kinds of cables onto him to measure his heart rates, etc. Also gave him the oxygen tube and another tube through the nose for medication and food. They gave him drip too.

For the entire whole morning till now, he is still not properly awake and still having the partial fits on and off.

Doctor said she has arranged for H1N1 test, Blood test, Urine test, MRI Scan, X-Ray Scan, Brain Wave test for him.

The things he is going through now is unbearable....
TSauhckw
post Mar 21 2011, 10:34 AM

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Situation not better yet. He is still semi unconscious since yesterday till now. They did MRI scan and found abnormal brain infection. The doctor said for such case only neuro doctor can handle and best around is in HKL. Today will most likely transfer. Now we pray that this is cureable...
TSauhckw
post Mar 21 2011, 10:12 PM

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Transferred to HKL. We managed to get the head of the pediatric neoru to attend to our son. Dr said he is in coma (middle stage). Diagnosis should be ANEC (japanese virus). Some sort of bacteria he was exposed recently. Only attack children (newborn to as big as 8 years old). 1/3 will die, 1/3 will recover with severe damage, 1/3 will recover with minor damage. There is also possibility of full recovery, but he said 1 out of 15 from his experience. They now transferred him to ICU and on machine support for oxygen. They put cables all over him, tube through mouth and nose. They have started treatment with steroids on him We called him and in his coma state his tears came out. We are helpless... Hope for miracle.

Anyone reading this, please pray for us. Appreciate it.


Added on March 21, 2011, 10:28 pmANEC: http://www.ajnr.org/cgi/content/full/31/3/396


This post has been edited by auhckw: Mar 21 2011, 10:28 PM

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