Sorry for my poor English here.

I have a sick sister (aged 21) in my family, a little bit her background, she is having learning problem which have problem on her knowledge and communication. Due to that, we applied OKU card for her.

Now, all the way back to 10 years ago, as we facing difficulty of teaching her during her learning age, we always impatient and harsh to her. In one day, she suddenly became so strange, stop eating, stop drinking, and stop whatever activity including go to toilet. That time we can feel that she got illusion like people talk bad about her, make fun of her and other similar abnormal behaviour. With all this strange behaviour, we believed she received pressure from school and family. Then we immediately brought her to hospital KL and found out not only have learning problem but also mental problem so she started treatment under one medicine (Luvox – Fluvoxamine).

After this incident, we arranged her to special education school, at the beginning is so difficult but later on she looks stable under this treatment for 5 years. We decided to stop the medication consulted by doctor. We thought everything is fine after that, but the strange behaviour came back by sudden after 3 years without medication treatment (even worse than last time, easily get angry and get mad). We have no choice but have to restart the medication treatment. This round have to take 2 different medicines, Luvox and Risperidone.

By observed in the 1st few months, we see that she become stable but she can’t control her urinary (not sure is can’t control, or she purposely, or lazy), which bring a lot of trouble to me and family – dirty the bed, her pants, and also chairs of ours and others. We doubt is Risperidone causes this, so we seek doctor approval to stop this medication.

Now problem come, while she stop taking risperidone for 6 months, the urinary thingy still continue. In one day, she got another strange behaviour where she don’t want to wake up, keep eyes closing, but not really deep sleep, for whole long day, don’t drink, don’t eat, and don’t do whatever activity, reject whatever thing is good for her. Until we force her and pull her hands and legs, then she only will move on slowly…very slowly.

My family and I had a very suffer time for this two months, totally have no idea which is good for her, we can’t even bring her to hospital now because she don’t want.

Anyone here is kind enough to advise me what can I do? I am like dying now.

Thanks for understanding.

We never know she got learning problem until we brought her to hospital. That is why we a bit harsh to her when come to learning and teaching, as we treat her like normal person. I believe every family will do the same. After this incident, we really feel so regret and we just hope she can live happily and normal without giving her pressure on her learning and act like normal person. But thing does not go that way...We are really sad and hopeless...

Thanks for your suggestion.

I am afraid she have problem communicating with people, (eg. do not understand what people talking about, or easily misinterpret of words). I am not sure psychologist can help.

Can we arrange doctor to visit us at home? The doctor advised us if she insist don't go out, need to call ambulances to send her to hospital. I don't want this happen.

Puchong area we are ok to go. thanks for the recommendation. my family background have no mental illness.

She is getting so serious now..never leave the bed from yesterday night till now. no drink no eat all day long, somemore in anger when we ask her to wake... what can I do?

anyone know any way that we can bring her to hospital? she refused to go.

Hi all,

Thanks for all the support.

To continue the story, we actually brought her to see private psychiatry and doctor give her Olanzapine (to treat depression) and imipramine (to treat bed-wetting).

On the other side, government psychiatry double up the existing medication which is fluvoxamine from 50mg to 100mg and risperidone from 1mg to 2mg.

After all that, instead of sleeping all day long, she getting active and start eating, very good appetite, keep on eating every hour. This become a problem as well, in just 2 months’ time, she gained 15kg. Sigh….

Besides that, the wet bedding problem did not see any improvement, some more getting serious. Making everywhere dirty and smelly.

Another serious problem, her terrible anger come back. She will easily get angry including throw thing on floor when:
1) Can’t fulfill thing she demand (eg. Stop her from buying/eating; food we buy or cook is not what she like; did not bring her to place she want to go; etc)
2) Thing she cannot perform by herself (eg. Can’t open tin can; can’t put a nice hair; etc.)
3) Repeatedly question her or ask her to do something she don’t like. (eg, ask her to do some housework, ask her to clean herself due to dirty;)

Me and my family totally have no idea on how to take care of her and all of us get depressed especially my mom. Previous problem solved, but more new problems come out. We are so lost.

Sending her to nursing home is our last choice, of course we hope this day will not come.