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Having a sick sister
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TSshyuwvcg
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Jul 31 2018, 09:59 AM, updated 8y ago
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New Member
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Sorry for my poor English here.
I have a sick sister (aged 21) in my family, a little bit her background, she is having learning problem which have problem on her knowledge and communication. Due to that, we applied OKU card for her.
Now, all the way back to 10 years ago, as we facing difficulty of teaching her during her learning age, we always impatient and harsh to her. In one day, she suddenly became so strange, stop eating, stop drinking, and stop whatever activity including go to toilet. That time we can feel that she got illusion like people talk bad about her, make fun of her and other similar abnormal behaviour. With all this strange behaviour, we believed she received pressure from school and family. Then we immediately brought her to hospital KL and found out not only have learning problem but also mental problem so she started treatment under one medicine (Luvox – Fluvoxamine).
After this incident, we arranged her to special education school, at the beginning is so difficult but later on she looks stable under this treatment for 5 years. We decided to stop the medication consulted by doctor. We thought everything is fine after that, but the strange behaviour came back by sudden after 3 years without medication treatment (even worse than last time, easily get angry and get mad). We have no choice but have to restart the medication treatment. This round have to take 2 different medicines, Luvox and Risperidone.
By observed in the 1st few months, we see that she become stable but she can’t control her urinary (not sure is can’t control, or she purposely, or lazy), which bring a lot of trouble to me and family – dirty the bed, her pants, and also chairs of ours and others. We doubt is Risperidone causes this, so we seek doctor approval to stop this medication.
Now problem come, while she stop taking risperidone for 6 months, the urinary thingy still continue. In one day, she got another strange behaviour where she don’t want to wake up, keep eyes closing, but not really deep sleep, for whole long day, don’t drink, don’t eat, and don’t do whatever activity, reject whatever thing is good for her. Until we force her and pull her hands and legs, then she only will move on slowly…very slowly.
My family and I had a very suffer time for this two months, totally have no idea which is good for her, we can’t even bring her to hospital now because she don’t want.
Anyone here is kind enough to advise me what can I do? I am like dying now.
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cdspins
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Jul 31 2018, 10:08 AM
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Sorry to heard your story... be strong. Do you consider to ask Dr. to visit you instead?
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wingbee
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Jul 31 2018, 10:12 AM
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Getting Started

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Have you ever consider depression?
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cdspins
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Jul 31 2018, 10:18 AM
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QUOTE(dream hole @ Jul 31 2018, 10:08 AM) your main problem is you treat her like a problem no wonder she go worse la got anyone like themselves be treated harshly? go and reflect on yourself la Do not judge others. TS is looking for best approaches to comfort her sister. It is not easy to live with someone with mental sickness over a long period of time. QUOTE(wingbee @ Jul 31 2018, 10:12 AM) Have you ever consider depression? The medicine prescribe is already tackling depression
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Orzie
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Jul 31 2018, 10:23 AM
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Haiz, it's kinda late already.
The correct procedure: 1) Your sis should have been sent to psychology center for therapy to identify the exact cause, or to confirm it is only learning difficulty or resulted from other mental issue. 2) Never ever use medication before even giving her consultation or therapy - medicines have side effects, and it can't treat the root cause. 3) Your family should have treated her nicely to give her positive energy and motivation. She would have then be more understanding and independent.
Now, if your family still treat her as a real family member, I suggest the following: 1) Change your attitude, be nice and empower her. 2) Bring her to psychology centre for consultation to find out the root cause. You will be surprised many mental issue can be lighten or treated without medication. 3) Dpn't just feed her medication blindly. Medication is only temporary solution and never tackle the root cause.
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cdspins
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Jul 31 2018, 11:15 AM
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QUOTE(dream hole @ Jul 31 2018, 10:45 AM) judging ? that is the fact - being sad/ angry too often while being treated like shit will only add more stress and anxiety next your health will go worse if he / she consider her as a problem ,then should just send to mental health institute rather than making the condition worsen you think his/ her sis is really happy living like that? Before TS known about his sister condition, they treat her badly, but since after that, my opinion is that the family try to give what is best to the sister. And this is also why TS is asking here to get the best opinion to comfort and treat her sister. Sending her sister to mental health institute will make her sister happy? I doubt so, new environment, new person, more stress actually. The best care is still those that is provided by family with love. Anyway, it is just the way we interpret TS's word. your point is that the family is treating her sister badly and sending to mental institute is the best way out for both the family and the sister while my opinion is that the family is doing all that they can to help her sister and is looking for advice on how to get her sister to be treated by a Dr for further examination.
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TSshyuwvcg
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Jul 31 2018, 11:26 AM
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New Member
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QUOTE(cdspins @ Jul 31 2018, 11:15 AM) Before TS known about his sister condition, they treat her badly, but since after that, my opinion is that the family try to give what is best to the sister. And this is also why TS is asking here to get the best opinion to comfort and treat her sister. Sending her sister to mental health institute will make her sister happy? I doubt so, new environment, new person, more stress actually. The best care is still those that is provided by family with love. Anyway, it is just the way we interpret TS's word. your point is that the family is treating her sister badly and sending to mental institute is the best way out for both the family and the sister while my opinion is that the family is doing all that they can to help her sister and is looking for advice on how to get her sister to be treated by a Dr for further examination. Thanks for understanding. We never know she got learning problem until we brought her to hospital. That is why we a bit harsh to her when come to learning and teaching, as we treat her like normal person. I believe every family will do the same. After this incident, we really feel so regret and we just hope she can live happily and normal without giving her pressure on her learning and act like normal person. But thing does not go that way...We are really sad and hopeless...
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Tabbynom
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Jul 31 2018, 11:29 AM
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New Member
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Bro, so sorry to learn about it. I strongly suggest that you must not stop the medication. she seems like having Dementia and it is quite serious but do get psychiatric opinion.
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TSshyuwvcg
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Jul 31 2018, 11:32 AM
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New Member
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QUOTE(Orzie @ Jul 31 2018, 10:23 AM) Haiz, it's kinda late already. The correct procedure: 1) Your sis should have been sent to psychology center for therapy to identify the exact cause, or to confirm it is only learning difficulty or resulted from other mental issue. 2) Never ever use medication before even giving her consultation or therapy - medicines have side effects, and it can't treat the root cause. 3) Your family should have treated her nicely to give her positive energy and motivation. She would have then be more understanding and independent. Now, if your family still treat her as a real family member, I suggest the following: 1) Change your attitude, be nice and empower her. 2) Bring her to psychology centre for consultation to find out the root cause. You will be surprised many mental issue can be lighten or treated without medication. 3) Dpn't just feed her medication blindly. Medication is only temporary solution and never tackle the root cause. Thanks for your suggestion. I am afraid she have problem communicating with people, (eg. do not understand what people talking about, or easily misinterpret of words). I am not sure psychologist can help.
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TSshyuwvcg
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Jul 31 2018, 11:34 AM
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New Member
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QUOTE(cdspins @ Jul 31 2018, 10:08 AM) Sorry to heard your story... be strong. Do you consider to ask Dr. to visit you instead? Can we arrange doctor to visit us at home? The doctor advised us if she insist don't go out, need to call ambulances to send her to hospital. I don't want this happen.
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Orzie
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Jul 31 2018, 11:54 AM
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QUOTE(shyuwvcg @ Jul 31 2018, 11:32 AM) Thanks for your suggestion. I am afraid she have problem communicating with people, (eg. do not understand what people talking about, or easily misinterpret of words). I am not sure psychologist can help. Suggest bring her to psychology centre for assessment. Just wondering which area do you live? If puchong area I can suggest Turning Point, affordable and good quality (Owner is Prof in psychology, and most staffs are buddhist). Rate around 100 something per hour, but if your finance is not good, can nego. Try your best to recall your sis's symptoms during her childhood / teenage time. These will be very useful during assessment. Didn't your doctor recommended your sis to engage psychology professional before prescribing medication? Your family / relative got history of mental illness or not?
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TSshyuwvcg
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Jul 31 2018, 12:27 PM
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New Member
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QUOTE(Orzie @ Jul 31 2018, 11:54 AM) Suggest bring her to psychology centre for assessment. Just wondering which area do you live? If puchong area I can suggest Turning Point, affordable and good quality (Owner is Prof in psychology, and most staffs are buddhist). Rate around 100 something per hour, but if your finance is not good, can nego. Try your best to recall your sis's symptoms during her childhood / teenage time. These will be very useful during assessment. Didn't your doctor recommended your sis to engage psychology professional before prescribing medication? Your family / relative got history of mental illness or not? Puchong area we are ok to go. thanks for the recommendation. my family background have no mental illness.
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Orzie
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Jul 31 2018, 01:26 PM
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QUOTE(shyuwvcg @ Jul 31 2018, 12:27 PM) Puchong area we are ok to go. thanks for the recommendation. my family background have no mental illness. Good, lower case of having inherited mental illness, hope your sis get well soon!
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TSshyuwvcg
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Jul 31 2018, 05:30 PM
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New Member
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She is getting so serious now..never leave the bed from yesterday night till now. no drink no eat all day long, somemore in anger when we ask her to wake... what can I do?
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TSshyuwvcg
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Aug 2 2018, 06:32 AM
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New Member
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anyone know any way that we can bring her to hospital? she refused to go.
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sweet_pez
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Aug 15 2018, 11:12 AM
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何を見ているの
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QUOTE(shyuwvcg @ Aug 2 2018, 06:32 AM) anyone know any way that we can bring her to hospital? she refused to go. I think there is no choice but to call an ambulance in the worst case scenario. If your family personally drag her to the car, you will all possibly hurt her and traumatize her. How is it now?
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bobowyc
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Aug 23 2018, 02:43 PM
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I think it's not on her only. As a family maybe you guys got to encourage her. Don't sigh or react negatively in front of her. Make sure she's in a positive environment. It feels like she's in a negative environment that's why she's acting that way. Encourage what she likes. But must also be gentle. Need to be patient. Can't rush it. I mean. just my opinion.
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Aydee
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Aug 23 2018, 02:51 PM
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She seems to show symptoms of bipolar disorder. You need to get her to a doctor to get treatment. Here's something you can read up on the disorder. https://www.webmd.com/bipolar-disorder/ment...olar-disorder#1Good luck.
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bobowyc
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Aug 23 2018, 05:05 PM
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QUOTE(burningg @ Aug 23 2018, 03:51 PM) agree. the environment also affects her to be like that. maybe family also need proper advice on how to treat her or hire people that know and have the experience to treat a patient like her. They surely better in how to approach your sister.
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X-Tra
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Aug 24 2018, 04:15 PM
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New Member
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QUOTE(Amad_ahead @ Aug 23 2018, 04:13 PM) Yeah I've heard of CaregiverASIA before. But I dunno about the service tho. Maybe some of the people here can share their experience using Caregiver's service before  I heard this caregiverAsia before but did't have any experience on it.. now is hire other center nursing care to take care of my mother after the contract end will consider caregiverASIA This post has been edited by X-Tra: Aug 24 2018, 04:27 PM
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