I am sorry to discover this thread so late. I have a son with Autism and I know that challenges that you are facing. I can advice only from my experience.
First of all, do not think she is "sick". It is not a sickness that can be cured. She most probably have some sort of high level autism that was not diagnosed and treated properly during her early childhood. As such, she got abused in school and home because people think she is just being "difficult". That trauma has manifested into serious mental disorder which she developed to cope with by staying in bed doing nothing. That is her "safezone" where no one can cause harm to her. I feel really sad as I can imagine the kind of things she has gone through for the past 21 years. I do not want to question on why she her issue was discovered so late but that is one mistake that really caused something very very hard to recover from as she is already an adult and it is very hard to teach her to live with her condition. Still, there are still a lot of things that can be done and if proper intervention can be applied she can live a better life and even be independent.
Secondly, please get her diagnosed properly what kind of "learning disorder" that she has. Send her to proper psychiatrist and NOT hospital. You can contact NASOM (google for this) and see if they can help to diagnose her condition. It is really important to find out her exact mental disorder as it could be more than one condition.
Thirdly, please know that there are no "cure" for this kind of problem. Medication cannot really cure the problem. It only suppress her mental state and sometimes it causes side effects that make things worst. The only way to deal with this is to be patient and teach her to be independent. A lot of high level autistic child are actually very smart and can do things that sometimes no normal people can do. Some became math wizard or famous artist and so on.
The most important thing is for your family to accept that she is special. Do not blame her for things that she does as she does not have the capability to act like normal people. Be kind to her and patience. Use positive enforcement to encourage her to do things. Like example, if she like chocolates, tell her you will give her chocolate if she go to toilet properly.
I have been trying to create support group for parents with autistic child for many times in this forum but Malaysians parents are just too ignorant to admit their child have this issue. This is the exact thing I was trying to teach parents and avoid late intervention. Damn it!
Having a sick sister
Aug 30 2018, 06:13 PM
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