I suspect I have heavy metal toxicity. 6 neurologists, 2 neurosurgeons, 3 psychiatrists, 1 orthopaedic, 1 immunologist, 2 general doctors, 1 surgery and 1 botox, still undiagnosed. Waiting for the blood test now in 2 weeks.

Symptoms are: tingling throughout body, jerking movements, pressure behind head, mood swings, trouble thinking, trouble speaking, memory problems.

I don't remember being in contact with any heavy metal, but just did the test anyway.

Anyone diagnosed with heavy metal toxicity as well without knowing? And how was the recovery process? Thank you.

What did you eat?

none of the doctors ordered blood test in the first place??

anyway, hope it turns out ok... those symptoms may also point to extreme stress... just a thought... me no doctor...

What has Botox do with this?

I'm 20 years old and I have been having symptoms throughout my life. They just slowly but surely showed itself. Have always had problems concentrating and with mild tingling. Last year it became very bad where i couldn't go to college and is isolated at home until now.

The doctor at first didn't want to do the test, but i insisted. She say maybe when I was young I eat my pasar malam toy or something, who knows? Since i've always had it.

Did complete blood test, allergy test, food sensitivty test, autoimmune test. Now waiting for heavy metal test, my last hope.

Thank you. This is affecting me, cant go to uni haha. Nah, the jerking movements and other symptoms cant be caused by something like stress lol.

I had tremor-like movements in my neck. A movement-disorder specialist presumed it to be neck dystonia so botox was attempted to suppress it. However, my tingling throughout body still persists.

Botox is not only for aesthetic purposes, but can help movement disorders as well.

I'm shocked after so many consultation, no comprehensive blood test was done..

Like that, I don't think it is heavy metal stuff. Maybe there is something else. If the condition is getting more and more noticeable, maybe some kind of nerve disorder. Better get the specialist diagnostic, not normal private clinic doctor.

I did. Full blood test, allergy test, food sensitivty test, autoimmune test. Now waiting for heavy metal test only last try zz.

Why? Do you have experience with heavy metal poisoning or know anyone who have? I did. Exhausted and spent almost 90k d. With a failed surgery and 6 neurologists whom are all rather highly reputable.

I don't. I'm confused. Why did you suspect of heavy metal poisoning if you said you did not remember being in contact with heavy metal?

Honestly, not because of that. It's because i've checked all other possible options that can lead to my symptoms, except this.

where do you live?
is your piping still lead
but lead poisoning is easily diagnosed by just looking at the rbc; they are stippled

what makes you come to this conclusion (that u have heavy metal poisoning) in the first place?
however, it is not an unreasonable suspicion in a country like malaysia.. batteries are throw everywhere, factory run-offs just runs into rivers LOL; mercury and all

No conclusion. Basically my main symptom is tingling throughout body. I search on webmd and checked on EVERY CAUSE of it. Only heavy metal test remains.
Symptoms of heavy metal that I read online also will explain a lot of my problems since young. Eg. Trouble concentrating, tingling in legs, mood swings.
Just wanna ask if anyone else in this forum have been diagnosed before with the poison.

Yep. I have a feeling that the problem is more real than most people realise, just that lack of awareness by doctors and by the patients. Sad really. Went to 6 neurologists, all never suggest that this could be the cause at all. Should update their manual

This post has been edited by adamdaniaal: Apr 25 2018, 08:22 PM

you might need a psychologist

Brother my symptoms include jerking movements and tingling throughout body.

trouble concentrating, mood swings are not easily quantified as these can just be part of our characters or temperament make-up; but that tingling in limbs, that is organic and will deserve resolution. Hg, Pb, As all merited looking into but very often you will have other complaints if any of these could be the cause. unable to help further but i can recommend that when u see your doctor (your GP ie your family doctor, the one that has all your records), you can raise your suspicion with him/her, so he/she can be directed towards the correct tests to do. You will agree that Heavy Metal Poisoning is often under-diagnosed in Malaysia.

no doubt your neurologists have taken history of the ''tingling'' that you mentioned, and worked out a battery of tests to exclude nasty diseases; but i wonder why 6, go to only 1 and stick to one. also, i wonder what these 6 ''Neurologists'' said was the possible cause(s). ''Tingling'' is a bread and butter of Neurological profession.

good luck

Have you looked at sweating?

https://www.mindbodygreen.com/0-15166/why-s...-of-toxins.html

owh just spotted this ie ''jerky''; i take it that it is myoclonic jerks and not chorea or hemiballismus (look up on youtube, and tell me which is closest to your symptoms; strictly speaking these are signs and not symptoms but lets not get into that. look up also fasciculation. if u hv time, tag me

psychosomatic disorder is one of the thing that can have physical manifestation

6 ''Neurologists''

Govt you can't choose.

Private, not cheap.

Thanks for the thorough reply my friend. Are you a neurologist? You seem very knowledgeable in this matter.

I agree trouble concentrating and mood swings is possible to not be related, however since last year ALL my symptoms have become worse including those 2. The tingling is the worst. It tingles so bad that i cant speak properly without feeling so uncomfortable and out of breath.
My movements are random. I had a head tremor, hand tremor, facial tics, leg shaking, stomach jerking. (All this NOT independent of one another, meaning some come and go or all happens at same phase). Moreover, this movements serve a purpose, to REDUCE the tingling. I can stay still, but the tingling is maximum.

I went to 6 because i wasn't satisfied with the diagnosis given. I do my own self-check online on message boards, medical websites and youtube. My symptoms don't correlate. 3 of the neurologists say I have motor tics disorder, but that doesn't explain
1. my intense tingling throughout my body
2. my head tremor and leg shaking
3. Trouble speaking.... Becoming observably worse.

The last one I seen, he is a renowned movement disorder specialist, Dr Lim Shen Yang, he diagnosed me with cervical dystonia because at that time, my head tremor was the most prevalent, but also wasn't 100% sure because
1. tingling in other parts of my body
2. I can hold the movements for longer than 2 minutes.
He tried botox injection to reduce it. It reduced my head movement, but the tingling and other movements still there.

pls check this out about people's experience with mercury poisoning. They report experiencing neurological symptoms + the cognitive defects I mentioned. https://www.quora.com/What-does-it-feel-lik...rcury-poisoning

This post has been edited by adamdaniaal: Apr 25 2018, 10:55 PM

Delete

This post has been edited by adamdaniaal: Apr 25 2018, 10:47 PM

Yup. A lot of money spent. Sad right.

Psychiatrist prescribed me adhd and anxiety medication. Both didn't do much for the symptoms. Felt more focused and calm though.

Before this illness became very bad, I used to be pretty active. I guess sweating not enough and also, I don't know if confirm heavy metal toxicity or not, waiting for results. But hoping it is, so can finally get diagnosed.

I don't think it is related to heavy metal honestly. Nerve disorder is something difficult to find the cause. Take long time to cure. Most doctor probably do not have clear understanding. Maybe you have seen this site. Here it is, just in case:

http://www.neurosymptoms.org/#

You can go to symptom tabs and select your symptom.

Thank you for your kind words. Yes can't say it isn't tough. I had to skip a lot of college last year and can't enroll in uni yet unless I fix this. There were diagnosis made, but they were to me inconsistent based on my own self-read online on message boards, medical websites and youtube. Nope it can't be just in my head because i have involuntary movements as well + the tingling is just too real. The psychiatrist just diagnosed me with anxiety, gave me pills but it just made me more calm. Didn't help the physical. Honestly you cannot just fullheartedly trust a specialist because they only can diagnose you based on their niche. Example a person who goes to a psychiatrist will be prescribed antidepressants immediately for their depression without taking into account that possibly a thyroad imbalance could be the underlying culprit causing it. Please read my reply to @rinsedpie for a summary of what the specialists have told me

This post has been edited by adamdaniaal: Apr 26 2018, 05:11 PM

I am surprised no one else have experienced this wow. I am still waiting for my results, but my symptoms have gone to an all time bad. Struggling to live day by day....

Sigh. Has anyone at least tried chelation therapy?

This post has been edited by adamdaniaal: Apr 29 2018, 08:08 PM

Good day.
You can consider the EEG biofeeedback training in Malaysia. It is one of the methods to train your brain likes a muscle.
It helps to train your brain to reduce the motor movement by increasing SMR brainwaves.
The first has to do with the sensorimotor rhythm, better known as the SMR. The SMR appears as distinct “spindle” patterns, representing synchronized electrical activity within the brain. Interestingly, the SMR is actually not yet well understood by neuroscientists. SMR amplitude is known to be higher when a person isn’t moving, when the sensorimotor areas of the brain are idle. Motor tasks and even motor mental imagery cause the SMR’s amplitude to decrease.

Source:
http://www.newmindcentre.com/2016/08/integ...r-tics-and.html
http://www.newmindcentre.com/2015/03/testi...-treatment.html

Sorry couldnt answer earlier, was oncall. No Im not a neurologist but worked closely with them (was doing neurosurgery for few years and tingling as a symptom, is a common issues we worked on. Titubation is quite a useful symptomatology to try to narrow things down in order to form a workable Differential Diagnoses list.

OK, keep with one Neurologist only. Things move slowly with these sort of complaints. (Doctors are primed up mainly to deal with acute emergencies; other presentation that have slow, evolving symptom complex will always need careful teasing out of potential diagnoses; to reach 1 unifying diagnosis, in most cases tho, is quite possible).

As a patient, you could and should be able to offer your suggestion to the specialist; only a foolish doctors will not listen to his patients.

Keep to one doctor, be patient (sorry) and record symptoms and signs. Good luck

Bump.

No one? Anyone gone through a chronic illness like this? My life is a living hell right now and it is surprising no one has had heavy metal toxicity.