This thread is for people who have autism or parents who need help dealing with autistic child. Maybe can even have gathering among parents to exchange knowledge.

Support forum concept is really lacking in Malaysia. Parents are left to deal with their child's autism by themselves and had to pay exorbitant amount of money to hire professionals. Most of the information can already be shared among parents.


Autism spectrum disorder (ASD) is the name for a group of developmental disorders. ASD includes a wide range, “a spectrum,” of symptoms, skills, and levels of disability.

People with ASD often have these characteristics:

Ongoing social problems that include difficulty communicating and interacting with others
Repetitive behaviors as well as limited interests or activities
Symptoms that typically are recognized in the first two years of life
Symptoms that hurt the individual’s ability to function socially, at school or work, or other areas of life
Some people are mildly impaired by their symptoms, while others are severely disabled. Treatments and services can improve a person’s symptoms and ability to function. Families with concerns should talk to their pediatrician about what they’ve observed and the possibility of ASD screening. According to the Centers for Disease Control and Prevention (CDC) around 1 in 68 children has been identified with some form of ASD.

What is the difference between Asperger’s syndrome and ASD?

In the past, Asperger’s syndrome and Autistic Disorder were separate disorders. They were listed as subcategories within the diagnosis of “Pervasive Developmental Disorders.” However, this separation has changed. The latest edition of the manual from the American Psychiatric Association, the Diagnostic and Statistical Manual of Mental Disorders (DSM-5), does not highlight subcategories of a larger disorder. The manual includes the range of characteristics and severity within one category. People whose symptoms were previously diagnosed as Asperger’s syndrome or Autistic Disorder are now included as part of the category called Autism Spectrum Disorder (ASD).

Signs and Symptoms

Parents or doctors may first identify ASD behaviors in infants and toddlers. School staff may recognize these behaviors in older children. Not all people with ASD will show all of these behaviors, but most will show several. There are two main types of behaviors: “restricted / repetitive behaviors” and “social communication / interaction behaviors.”

Restrictive / repetitive behaviors may include:

Repeating certain behaviors or having unusual behaviors
Having overly focused interests, such as with moving objects or parts of objects
Having a lasting, intense interest in certain topics, such as numbers, details, or facts.
Social communication / interaction behaviors may include:

Getting upset by a slight change in a routine or being placed in a new or overly stimulating setting
Making little or inconsistent eye contact
Having a tendency to look at and listen to other people less often
Rarely sharing enjoyment of objects or activities by pointing or showing things to others
Responding in an unusual way when others show anger, distress, or affection
Failing to, or being slow to, respond to someone calling their name or other verbal attempts to gain attention
Having difficulties with the back and forth of conversations
Often talking at length about a favorite subject without noticing that others are not interested or without giving others a chance to respond
Repeating words or phrases that they hear, a behavior called echolalia
Using words that seem odd, out of place, or have a special meaning known only to those familiar with that person’s way of communicating
Having facial expressions, movements, and gestures that do not match what is being said
Having an unusual tone of voice that may sound sing-song or flat and robot-like
Having trouble understanding another person’s point of view or being unable to predict or understand other people’s actions.
People with ASD may have other difficulties, such as being very sensitive to light, noise, clothing, or temperature. They may also experience sleep problems, digestion problems, and irritability.

ASD is unique in that it is common for people with ASD to have many strengths and abilities in addition to challenges.

Strengths and abilities may include:

Having above-average intelligence – the CDC reports 46% of ASD children have above average intelligence
Being able to learn things in detail and remember information for long periods of time
Being strong visual and auditory learners
Exceling in math, science, music, or art.
Diagnosing ASD

Doctors diagnose ASD by looking at a child’s behavior and development. Young children with ASD can usually be reliably diagnosed by age two.

Older children and adolescents should be evaluated for ASD when a parent or teacher raises concerns based on watching the child socialize, communicate, and play.

Diagnosing ASD in adults is not easy. In adults, some ASD symptoms can overlap with symptoms of other mental health disorders, such as schizophrenia or attention deficit hyperactivity disorder (ADHD). However, getting a correct diagnosis of ASD as an adult can help a person understand past difficulties, identify his or her strengths, and obtain the right kind of help.

Diagnosis in young children is often a two-stage process:

Stage 1: General Developmental Screening During Well-Child Checkups

Every child should receive well-child check-ups with a pediatrician or an early childhood health care provider. The Centers for Disease Control and Prevention (CDC) recommends specific ASD screening be done at the 18- and 24-month visits.

Earlier screening might be needed if a child is at high risk for ASD or developmental problems. Those at high risk include children who:

Have a sister, brother, or other family member with ASD
Have some ASD behaviors
Were born premature, or early, and at a low birth weight.
Parents’ experiences and concerns are very important in the screening process for young children. Sometimes the doctor will ask parents questions about the child’s behaviors and combine this information with his or her observations of the child. Read more about screening instruments on the CDC website.

Children who show some developmental problems during this screening process will be referred for another stage of evaluation.

Stage 2: Additional Evaluation

This evaluation is with a team of doctors and other health professionals with a wide range of specialties who are experienced in diagnosing ASD. This team may include:

A developmental pediatrician—a doctor who has special training in child development
A child psychologist and/or child psychiatrist—a doctor who knows about brain development and behavior
A speech-language pathologist—a health professional who has special training in communication difficulties.
The evaluation may assess:

Cognitive level or thinking skills
Language abilities
Age-appropriate skills needed to complete daily activities independently, such as eating, dressing, and toileting.
Because ASD is a complex disorder that sometimes occurs along with other illnesses or learning disorders, the comprehensive evaluation may include:

Blood tests
Hearing test
The outcome of the evaluation will result in recommendations to help plan for treatment.

Diagnosis in older children and adolescents

Older children whose ASD symptoms are noticed after starting school are often first recognized and evaluated by the school’s special education team. The school’s team may refer these children to a health care professional.

Parents may talk with a pediatrician about their child’s social difficulties including problems with subtle communication. These subtle communication issues may include understanding tone of voice, facial expressions, or body language. Older children may have trouble understanding figures of speech, humor, or sarcasm. Parents may also find that their child has trouble forming friendships with peers. The pediatrician can refer the child for further evaluation and treatment.

Diagnosis in adults

Adults who notice the signs and symptoms of ASD should talk with a doctor and ask for a referral for an ASD evaluation. While testing for ASD in adults is still being refined, adults can be referred to a psychologist or psychiatrist with ASD expertise. The expert will ask about concerns, such as social interaction and communication challenges, sensory issues, repetitive behaviors, and restricted interests. Information about the adult’s developmental history will help in making an accurate diagnosis, so an ASD evaluation may include talking with parents or other family members.

Risk Factors

Scientists don’t know the exact causes of ASD, but research suggests that genes and environment play important roles.

Risk factors include:

Gender—boys are more likely to be diagnosed with ASD than girls
Having a sibling with ASD
Having older parents (a mother who was 35 or older, and/or a father who was 40 or older when the baby was born)
Genetics—about 20% of children with ASD also have certain genetic conditions. Those conditions include Down syndrome, fragile X syndrome, and tuberous sclerosis among others.
In recent years, the number of children identified with ASD has increased. Experts disagree about whether this shows a true increase in ASD since the guidelines for diagnosis have changed in recent years as well. Also, many more parents and doctors now know about the disorder, so parents are more likely to have their children screened, and more doctors are able to properly diagnose ASD, even in adulthood.

Treatments and Therapies

Early treatment for ASD and proper care can reduce individuals’ difficulties while helping them learn new skills and make the most of their strengths. The very wide range of issues facing those “on the spectrum” means that there is no single best treatment for ASD. Working closely with a doctor or health care professional is an important part of finding the right treatment program. There are many treatment options, social services, programs, and other resources that can help.

Here are some tips.

Keep a detailed notebook. Record conversations and meetings with health care providers and teachers. This information helps when its time to make decisions.
Record doctors' reports and evaluations in the notebook. This information may help an individual qualify for special programs.
Contact the local health department, school, or autism advocacy groups to learn about their special programs.
Talk with a pediatrician, school official, or physician to find a local autism expert who can help develop an intervention plan and find other local resources.
Find an autism support group. Sharing information and experiences can help individuals with ASD and/or their caregivers learn about options, make decisions, and reduce stress.
Medication

A doctor may use medication to treat some difficulties that are common with ASD. With medication, a person with ASD may have fewer problems with:

Irritability
Aggression
Repetitive behavior
Hyperactivity
Attention problems
Anxiety and depression

This post has been edited by abubin: Sep 19 2017, 02:14 PM

I have a son who is 13 years old this year and he has ADHD and Asperger Syndrome. He is socially awkward and is very bad at communicating with people.

I created this support group after knowing that in overseas, parents do meet up and sometimes with their kids to learn about bringing up these special needs children.

I would like to eventually get parents helping each other.

Good effort

I have concern with my 20 month old daughter as well. She cant concentrate, doesnt react to her name, and doesnt listen to instruction, and sometimes tip toes a little

Gonna see specialist for the 2nd time next week and see whats the next step

What did the specialist said on the 1st visit?

Also, don't be too worried. Cause at 20 month, detection of ASD is usually not conclusive unless it is very severe case. Usually, it will be accurately diagnosed for kids above 5 years old. Then again, if really found out that she is having ASD symptoms, you need to start training her. The specialist should be able to advise.

Another note is to always seek for second opinion. Find another doctor or specialist and have them look at her as well.

first doctor said she might have mild symptoms. The most apparent is the tip toeing. And she also said it could also be GDD (global developmental delay) rather than ASD or ADHD. She recommended us a few specialist doctors to see and get referral letter for HKL since HKL has the best child development institute there and do a hearing test and a 3 hour assessment.

She also said dont worry so much about the diagnosis. The most important thing is to start training her aggressively and maybe send her to a day care so that she can mingle around with other kids

what i am going to share here is just my opinion, there's no real scientific evidence.

IMO, we should limit/ban the use of technology, ie : television, ipad, iphone........ etc when interacting with young child(age less than 3 years old) and ban them from interacting with it.

IMO, the development of human-human interaction with a young child is important during the early age. using those tech devices will negatively impact that development and may cause ASD/ASD like disorder.

I agree that all these devices are giving negative impact on the child's development especially during 1-3 years old. I do not neccessarily agree that it causes ASD because I think ASD goes much deeper into the child's brain. I did not let my son use any devices until he is 5. So it shows the ASD is not caused by idevices.

This is my second or third attempt at trying to get parents together to share problems of kids with Autism.

Response is always bad.

I guess in Malaysia a lot of parents are still very ignorant about autism. So sad.

That's true, not many people understand what autism is even in developed countries. In Malaysia i would say that awareness for autism is still very low. There aren't many places for you to get help and at those places it's usually expensive / hard to get in. So it's great that you're trying to get word out.

And no,... you can't get autism for using smart phones or watching TV. You're born with it.

I have heard of cases where parents are ignorant about their kids having such issue. The old folks will say things like the child will grow out of it. Even if the autism is not serious, they should still do something. Early intervention is very important for autism. I guess in the Asian community, having a child with autism is something to be ashamed of.

Even school teachers here are ignorant about autism. I strongly think that autism topic should be included into child psychology subject for teachers. Even so, when teachers encounter child with autism, they just say they can't handle. Instead of finding out more information online or reading autism book like a lot of the teachers in overseas.

I have a brother who suffer from autism since he’s a kid. At present he is 30 years old now. He is still pretty dependent on my parents to take care of him. As my parents are aging, I couldn’t help but start to think what will happen to my brother if my parents are no longer able to take care of him. Does anyone here share similar experience or thoughts ?

i understand u said after 5 years old can only confirm this, but then again, what are the symptoms u can see before that.
perhaps in under 1 year old or 2 years old. earlier detection is better right?

what are the signs?

Maybe because USA autism is very rampant. That is what I conclude after watching youtube. I am very concern parent and now I am worried my boy do invert palm at 6 months and sometimes do the grabbing action . Will keep on watching for now.

Is your boy better after training? I know reason for ASD is brain development. Will mother eat fish oil while breastfeed lower the possibility of ASD? Or give direct to child?

The reason why after 5 years old because at 1-2 years old, symptoms of autism might actually just because the baby is still a baby. Yes, there are signs.

People with high-functioning autism may show behaviours and signs similar to those seen with other types of autism:

Delay in motor skills
Lack of skill in interacting with others
Little understanding of the abstract uses of language, such as humour or give-and-take in a conversation
Obsessive interest in specific items or information
Strong reactions to textures, smells, sounds, sights, or other stimuli that others might not even notice, such as a flickering light

Unlike people with other forms of autism, people with high-functioning autism or Asperger's syndrome want to be involved with others. They simply don't know how to go about it. They may not be able to understand others' emotions. They may not read facial expressions or body language well. As a result, they may be teased and often feel like social outcasts. The unwanted social isolation can lead to anxiety and depression.

https://www.webmd.boots.com/children/guide/...ctioning-autism

This post has been edited by abubin: Jan 22 2018, 01:15 PM

It's not about being rampant. It's the society and mentality and information sharing. Asians have this taboo that if they have mental illness, it is always said that person is crazy. Ignorant parents will feel shameful if their child is diagnosed to have mental issues.

Babies at 6 months old are too young to show signs. Even some toddler who speaks late like after 2 years still grow up fine. So worrying about your child at such young age is pointless.

There are no "cure" for autism. You cannot cure them by giving them better brain development or food or medicine. You just need to train them harder to make them realize their problem. Most high level autism child will stick to routines. If you can train them to stick to their routines, they can function better. Some kids even "outgrew" their autism. It is not a cure but rather they were so well trained by their parents that they can function properly in society! That is not easy but doable depending on the parents and the child. Cause all high level autism are different for each child. There are no one formula that will work for all.

Hi abubin, thank you for opening this thread

This post has been edited by D10yrspain: Feb 24 2018, 08:46 AM

so basically cant tell if not 5 years old yet?

But I see autism as degenerative brain development based on what I watch in youtube. The kid is fine until he got MMR vaccine which is around 3 years old. After that change from 100word child to non-verbal. It sound like brain got damage but brain damage is cerebral palsy and not autism. My suggestions for fish oil because I assume supplement can stop the degeneration of the brain.

Last week my 5 yo son diagnosed as moderate autism by child psychologist after doing assessment .

We started bringing him to child psychologist when he was 2 yo.

Symptoms/signs at the time.
No eye contact
No response to name
Afraid of hairy toys/grass/sands/hair cut
Speech delay

We spent 1 year to overcome his sensory issues, and proceed to help him with his other development.

The worst is training his concentration, sitting down for table task, but we managed to train him and now he can sit down and concentrate in colouring, puzzles etc

Now he has response to our name calling, good eye contacts, able to talk to us but in 1/2/3 words only. His main issue is communication /connection to others.
He's now in a small group tadika which i'm thankful his teachers love him and tried to help him .

We have 1.5 years more to help him, at least get into normal school. But we're prepared if he needs to go special school. He's now on extensive occupational therapy and speech therapy.

My advice to parents, stop giving kids iPads/phones . It's really bad for the kids.

And, don't listen to older people saying it's normal la for speech delay. If you sense something wrong, just consult professional. Always start treatment early . I cannot imagine if 3 years ago we just ignore and never help him. It will be too late.

Btw if there's any WhatsApp sharing group , do inform me .

No response to name, no eye contact, repetitive actions, rocking body front and back, love spinning wheels, and sensory issues.

These are what we saw in my 2 year old 3 years ago. Now he doesn't have all these issues any more after lots of therapy