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 Glaucoma ( 青光眼 ), Need help !

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stimix
post Dec 30 2011, 06:30 PM

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I spent the whole day Today from morning ~ 10pm till 4:30pm to conduct atleast 4 testing at ussein onn Hospital..almost 90% confirmed glaucoma & I was shocked just now when I was told my bill comes to RM345!!

RM60 consultation, RM10 reg fee, RM120 for glaucoma test, RM5 for visual test & RM150 for Cornea test.....walao ehhh and I thought they are semi0govt...furthermore those test are noted as subsidized. If 100% private, even worst. Tomorrow another appointment to reconfirm my galucoma status. and thereafter permanent long term treatment...haizzz....old liao
stimix
post Dec 30 2011, 11:19 PM

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Well, I'm a diabetic since young and for the past 2 yrs, my eye sight always blur whenever sleepy or even waking up from bed. Furthermore I'm coming to mid 40s already. sad.gif

QUOTE(maxximus @ Dec 30 2011, 08:45 PM)
Hi stimix, sorry to hear that and thank for sharing with us the info.  Btw, mind to share what make you to go for the test for glaucoma?
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stimix
post Dec 31 2011, 08:33 AM

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Yes at 1st I was referred to Retinopathy Doc but after few test, he told me mine is not diabetic retinopathy bcos high preesure of >26. according to him normal is from 10 to 22. So i was referred to Glaucoma doc. She almost confirmed me suffering glaucoma dy except 1 test this Morning..Going soon
QUOTE(tjinn @ Dec 30 2011, 11:34 PM)
It could be diabetic retinopathy as well. And just as an added note for future references. There isnt a link between diabetes and glaucoma.
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stimix
post Dec 31 2011, 04:13 PM

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OK. This morning Doc conducted last test i.e Visual Field test..not an easy test..have to press a button and clicking my eye everytime seeing white light.chasing after white lights haha..That test cost me RM60 + another RM50 for consultation. Still not conclusive bcos Doc told me mine case very suspecious but for sure begining stage of Glaucoma. She wanted to conduct another round of visual field test nxt round but i decided to go ahead wth the glaucoma treatment. I was prescribed Travatan eye drop. for RM80/bottle..pheww lucky no need RM450 as qouted earlier sweat.gif ..So total damage for Yesterday & Today test + medication = RM545...Not cheap man.. cry.gif Dun think can claim co sumore cry.gif

She ask me to do a CT scan on my brain incase my glaucoma might resulted from tumor...adoiiii cry.gif

This post has been edited by stimix: Dec 31 2011, 04:14 PM
stimix
post Feb 1 2012, 10:01 AM

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After a month using Travatan eye drop, My latest eye pressure dropped from 26 to 17. Also no more blur vision when I wake up or during late night rclxms.gif but the side effect of the drug is still there i.e my eye still abit red whole day, feeling of dryness and something stuck on the eye..like sand/etc.. sad.gif
So far eyelid not dark yet & eyelashes also not growing longer haha
stimix
post Feb 10 2012, 02:32 PM

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Yeap Dr Linda haha. but lately the blur vision started again..esp ~ late Evening. dunno why
stimix
post Feb 25 2013, 05:10 PM

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SInce the last posting last Feb, my Doctor already changed my medication from Travatan to Lumigen in Mar 2012 since I complain about red eye. Thereafter my pressure was ~ 18-19 and by the nxt appointment 6 mth later ~ Sep 2012. Lumigen was like Travatan and most of the time still red eyes and result after 6mths still no good.. still 18-20.

By this time, Doc decided to change again to Xalatan...boy this is one of the most comfortable & well torelated drug for me BUT - the reading getting worse after my Nov appointment. now reading ~ 23-24. So by now, She added Trimotol XE as Morning drop & Xalatan ..I met my Doctor again last week and bad news.. Xalatan failed me - pressure still ~ 20-21 although adding trimotol.

So she now prescribed me to Travatan again since I got the best result using Travatan....see how the result during my Apr appoinment cry.gif
stimix
post Apr 7 2013, 05:21 PM

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Another visit to my Doc Yesterday.. Bad result - eyes pressure now stood at 23!! So she stopped me on Trimotol but prescribed me COSOPT twice a day + the usual Travatn....sad day... cry.gif ...Lucky my OCT & Visual field test showing no further deterioration and maintained the same level as last year..phewww...

BTW, Gen-X , On your other thread and also your blog, interested to know how's your glaucoma now. If I can recall you was also on Travtan +Cosopt and that brought your pressure to 13? notworthy.gif shocking.gif

This post has been edited by stimix: Apr 7 2013, 05:21 PM
stimix
post Apr 7 2013, 08:37 PM

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Haha. New function started not too long ago. Btw,i was on lumigen b4 but without any combination drug and result not so )good till the doc put me on xalatan. Now bck to travatan and new cosopt. This morning was my 1st wth cosopt and 1 thing i find diff is the crystalclear feeling after applying cosopt. On other drug, for the 1st 1/2 hr, i feel vision blur instead of clear.. Something new here and i hope this will bring better result when i meet my doc nxt mth
Hmnnn p isaw the porcupine ball in one chinese herb store b4 but dunno what for haha. Btw, other than glaucoma are you a diesbetic?
stimix
post Apr 8 2013, 02:49 PM

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QUOTE(plumberly @ Apr 8 2013, 02:18 PM)
My 2 cents here as one who has glaucoma ....

Diagnosed as a glaucoma suspect some 20 years ago. Was on Xalatan eye drops but I was not a regualr user of this Xalatan (as a suspect only mah! Ha). Told by my doctor that I have glaucoma and not a suspect anymore a few years ago.

My lay-person's view is as below. For glaucoma, they check these 3 things among others,
* field vision (see if there is any area in your vision which you can see, excluding the blind spot)
* internal eye ball pressure,
* retina-optic nerve dip

For the 3rd one, mine is a lot deeper than normal. First 2 are within normal levels.

Cannot cure glaucoma, only maintain it. They do have laser treatment but that will not cure glaucoma.

I am now on Xalatan (once at night) and Alphagan (twice during day). Pressure below 15. Just because one's presure level is below the high level, it does not mean glaucoma is within control. Better to keep it as low as possible rather than sitting just below the high level.

Costs are RM70-100 per bottle. Each bottle can last for about a month.

Glaucoma checks 1-3 times per year. Cost = a few hundreds per viist.

Cheerio.
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Aha.. This thread getting active with more sufferer coming in. After seeing your result, mine really horrible cry.gif .. Been spending hundreds on every visit (RM50 for consultation, RM5 registration and diff test diff charges wth the retina optic dip (OCT?) been the most expensive at RM140. I'm getting RM80 for Travatan or Xalatan at THONEH. and for this new drug - COSOPT at RM90..haizz.. Lumigen I think ~ RM85 if I still can recall...

Very expensive disease indeed cry.gif
stimix
post Nov 7 2013, 05:49 PM

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Just to update my latest condition. Since my last posting in Early Apr 2013, and thereafter prescribed with another new drop i.e Alphagen as an additional to COSOPT & the night drop of Lumigen, my IOP now stabilised at 17 both eyes for the past 2 visits.

On the 1st visit ~ Jul/Aug, wth pressure reading at 17, I started taking Lutein (2 caps/day) + omega 3 fish oil (2 caps/day) supplements just to check the effectiveness eventhough my Doctor told me Lutein will not helps in reducing my IOP.

On the 2nd visit last mth, my eyes pressure maintained at 17. confirming that Lutein + omega 3 actually not really effective. Anyway, I'm still taking Lutein & Omega 3 and waiting for my nxt visit in Jan'14. I will update my pressure after that visit.. to further confirm the effectiveness of supplements.
stimix
post Dec 16 2013, 04:44 PM

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Latest update: Last check-up Both eyes still ~ 17. No changes even taking supplements - Lutein/Bilberries & even Fish Oil. I have stopped Lutein/bilberries supplement since early this month after realising that it will improve the eyes preasure as what I Doc told me.

My Nxt Appointment will be nxt Mth just b4 CNY. At this moment of time, I have started doing eye masaging using my palm & circulating softly to both eyes atleat 20times just beofre each drop.

Well, I find this way much better and my eye sights actually improving by days sine I started this in Nov. Will update my actual preasure reading after my nxt mth visit.

Here's the eye massage techniques that I found.. Almost similar to the palm technique that I currently practised. smile.gif

http://anglnwu.hubpages.com/hub/Eye-Exercises-for-Glaucoma
stimix
post Apr 24 2015, 09:20 PM

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QUOTE(plumberly @ Apr 24 2015, 01:25 PM)
You mentioned about red eye on applying the drops. I am about 2 yrs late in sharing here. Ha.

I used to get red eyes quite frequently. Later realised the wrong things I was doing which I have shared some where in LY.

Avoid hair shampoo or face cleanser from getting into the eyes. My trick now is to rinse away the hair shampoo after cleaning instead of leaving it there till I have used my body shampoo.

Also, dry the eye areas before applying face cleanser.

Rinse the eyes well before applying the eye drops. I guess the reaction between the eye drop solution and hair/face cleanser will give the eye a stinking feel and then the red eye.

This has helped in reducing my red eye frequency.

Cheerio.

P/S And my eye pressures are in 10-16 range. Got to 22 once, many years ago.
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Tnx for sharing smile.gif .. Since my last posting in Dec 2013, & after eye massaging techniques + another drug change in early 2014 by my doctor, I'm now on Cosopt & Alphagen 2 times daily (Morning & Evening and Lumige before slee. My reading had stabilised to ~17 and once dropped to 13 in Jul 2014. Anyway, that result was on newer air machine rather than common eye touching old technique. If using old machine my reading was 17.. well the results were on same day and different of 1hr.. haha.. duno which machine is accurate.

Latest visit, my pressure still ~17... well the latest trial & error combi drugs did wonders..
stimix
post Apr 25 2015, 04:39 PM

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QUOTE(plumberly @ Apr 25 2015, 10:30 AM)
Good to hear on the drop in your pressures.

Mind elaborating on your eye massage technique you have perfected over the years?

Though I have lower pressure, my previous eye specialist told me that glaucoma can still deteriorate even with low pressure (I think there is a name for this which I have forgotten). So need to be aware of this.

My retina layer is thinner than most. Thus a worry. My previous eye specialist has a special machine that can take a thickness analysis of the layer. My current GH specialist told me that my retina layer is rather pale, indicating less blood there. So, a concern.

Need to step up my eye care in addition to my eye drops! Ha.
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Are you suffering from diabetes? Because the thining of retina is common for those ppl wth diabetes like me. Well although my retina is very thin but it has been maintained like that since the last 2 years and no longer thining anymore.

The massage is by way of circular palming by eye 20 times before I start applying the drops.

 

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