Is it extremely sad to see what my son has to go through this. It is also very sad to see my pregnant wife who is going to deliver soon going through this too. My life is torn apart.

I have decided to 'fast' on a few thing that is important/routines to me till he gets better. Hanging around in Lowyat.net is some of it. I have got to know many new friends from here, but at times like this nothing else is more important.

Life has changed since the last 1 month+ since this happened.

I have been sleeping in the hospital for nearly 26 days. My son is now back at home. His condition is stabilized. But damage is already done.

Certain part of his brain has been damaged. It is ANEC, but unknown to what virus/bacteria that triggers it. Blood test came negative for Influenza A, B and H1N1. Doctor cannot explain how he got it. It can be from anywhere, anytime and anything. It is just unfortunately he is wrong place wrong time and got exposed it.

At the moment, his brain has caused him to have Dystonia (http://en.wikipedia.org/wiki/Dystonia). He is either sleeping soundly, staring blanks or screaming in pain due to stiffness/cramps at both legs and hands. He is awake but not fully conscious. He cannot respond to things. A lot of suffering for him.

He is not able to eat/drink through mouth. He cannot swallow his own saliva either. So right now, we are feeding him milk through tube.

Since he is back home, we can see his condition are improving. Not by big improvement, but small small improvements. Doctor said on the bright side, he is still small and there are some chance he may improve, but doctor said we have to be prepared that it may not.

We are not losing hope. We are still keeping faith. Life is tough, but if this is what god has decided for us... we will go through this test.