My son (16months) got fever yesterday morning and we gave him paracetamol (seems like his usual fever). And just 2 hours ago, when my wife feed him medication at about 1am, he was till ok. My wife then went down to clean up, and I can hear my son still talking to himself and then he climbed down bed himself. Walked around like normal.

Suddenly he came to me and collapse in front of me and started to shiver. I thought he was playing with me. But then I noticed something was wrong. He was stiff and shivering all over. His eyes were looking up. Not responding to call.

I went into shock. My wife too. Mother in law came and helped us. We tried to wake him up. The shivering and stiffness lasted about less than 5 minutes, but he is still very weak and not responding to us.

We quickly pack and headed to hospital. The Medical Officer said most likely my baby is getting Fever Fit, but our baby has to admit to be monitored. The pediatric will come and see our baby in the morning.

http://en.wikipedia.org/wiki/Febrile_seizure

I am now back home to pack and then rush back again. The feeling that I just went through is so scary. I have never felt this scared before. God please help...

Any of you guys have experience of such... please share...

A video showing how it looks like...


http://www.youtube.com/watch?v=6eQHWsNhkOg

Understanding Febrile Seizures (Health Guru)


http://www.youtube.com/watch?v=p5crX6ys9FA

What was the cause of it?

My youngest sister had it when she was a toddler. Elder say it is due to heatiness of the body. She would shiver and bite very hard. The nanny used her thumb finger nail to poke against the part above the upper lip (where misai grow for men) to get the mouth to open and put in a spoon to let her bite, else her teeth will crush each other. Yes, fever fit is that powerful. Never put your finger in, they will bite you till it breaks because the body is already too hot.

It also can cause brain damage and fatal. I am glad to hear that your son got the required medical attention. Please pay attention to him when he is back home and make sure he drinks a lot of water.

Get well soon!

Were you keeping a check on the temperature constantly? There is no such thing as an immediate cure for any fever or temperature spike for any child, so you have to constantly watch over the child and monitor the fever.

Constantly sponge the baby all over the body, especially the head, to lower the body temperature and if temperature spikes up, make sure you have one of those bullets which can help lower the temperature drastically.

>39°C/102°F is the limit for children when they have a fever, this will normally spike up during night at around 7pm and during bed time, which is because of the atmosphere at night, and due to sleep.

For babies and infants, fevers can be quite dangerous, I do hope your child is alright.

So sorry to hear, hope things will get better for him. I've never experience this but my MIL always warn about "zhe mou dan" something like what you describe.

My wife and I are now back to take a quick rest while baby and my mum is still at the hospital.

The doctor said Fever Fit is quite common. 10% people will get it . And if you have family history of someone who got it, then the chances of getting it is 20%. For our case, my brother got it once and same goes for my wife.

Once a person got Fever Fit, he/she may get it again if no proper precaution is taken. It will eventually go away when the child is 7 years old. Some people only got it once in their life, so if taken care, it is not serious. When the baby is in the seizure as long he/she comes back to normal within 15 minutes, there is no damage to the brain, etc.

Why it happened? Sudden change of body temperature to 38.5c and above.

How to prevent? Make sure the baby body temp don't go above 38.5c. When having fever, don't let him/her wear thick clothing. No direct fan. Can be in air cond room of 26c. Cool room, not cold room. Then use wet towel and put on his forehead, neck and underarms.

What to do if seizure happens again? Never ever put anything into his mouth. It may damage his tongue/gum. Lay him down facing sideways, then push his chin up. Don't shake him.

Doctor said she will prescribe us 2 medication to be used when Fever Fit happens again. Has to put into anal. 1 of the medication is DDA (dangerous drug).

How is my son? His fever is going up and down. Still on the high side. Doctor said could be some virus/bacteria. So they will take his blood test today. Definitely have to stay overnight today, if blood result is ok, then we can discharge tomorrow.

yea better to be in hospital, at least they monitor closely.

Thanks for the information about handling fever fit, maybe mod may consider pinning this info.

Fever up and down, dengue?

Thanks for the info. Good that he's being monitored...hope it's nothing serious.

It's always scary when a seizure happens. I'm worried whenever my son has high fever because I'm epileptic, though I've been fit-free and off medication for abt 10yrs+; so I'm worried that he'll likely to get febrile seizure.

I always have the paraceptemol that has to be inserted anally in my fridge...just in case the temperature soars high and I can't bring it down by sponging. That's my last resort.

Once my son has fever..I'll keep on checking his temp every 15 minutes or so.. As fever would suddenly creep in and goes up fast.

Spoken like a true parent.
My fridge also serve as a medicinal chest. And having a Digital Ear Thermometer is very handy.

auhckw - Hope your son speedy recovery.

Take Care... God Bless Your Cute Baby..

The seizure usually begins as the fever starts to spike, which is why many parents are caught off guard.

Use lukewarm water when doing sponging to bring the fever down. Using tap water makes the child shiver and the fever goes back up. Do away with those 'kool fever' patches on the forehead, it gives the false impression that the childs' fever is 'taken care of'.

When the child is febrile and 'shivering', it's a sign to sponge him already because the temperature is really high, not wrap him up in the blanket.

The doc usually prescribes paracetamol 6 hourly - that's the max the liver can take. To be safe, ask for some ibuprofen to be given in between the paracetamol doses if the fever spikes.

Febrile seizures do not occur beyond 5 years of age. If it does, then the child requires further investigation.

Hope ur child gets well soon.

Blood result came back. It was normal. He just caught a high fever which doctor said will normally last 3 to 4 days, which his temp will go up and down. During this time he may shiver, diarrhea and get some mouth ulcer. and when his body starts to show some rashes, doctor said it shows that he is recovering.

If his temperature is under control... maybe this evening can discharge.

A lesson learned the hard way... never play play with High Fever! It can caught you off guard!

PS: About his right hand... they do that so that they can easily take his blood (if required more than once) and also to put the drip (if required). The process of wrapping is so heartache.

This post has been edited by auhckw: Mar 20 2011, 01:50 PM

hey..such a cute little baby. Really disheartening to see him suffer. Being a parent, I understand the dilemma. Those who have never had kids will never understand this kind of feeling. It is sad and worries people. And some people I know actually said the reason they don't want to have kids is because of this kind of situation. However, they do not know the joy that a child can bring. It is infinite joy. These people do not know what they are missing and I personally think their are just selfish bastards.

Finally just reached home with baby and wife. Thank god for letting us go through this. His temperature is still up and down but is under medication control. Doctor said in few more days should go away.

Going through this episode really makes me understand being a parent is a really really responsible and challenging task. A lot of personal sacrifice, giving and worry... but in return of a lot of joy with him.

I have to really thank my wife to be so strong and able to go through this. She being 7 months pregnant has to take care of my son, herself and our next baby. Thanks for family and relatives that gave support, doctor and nurses, friends, you guys here and also to wife's company for giving ING that paid the bill

This post has been edited by auhckw: Feb 18 2011, 09:56 PM

what needs to be said has already been said....

anyway....for anyone with young children at home, it's always good to have ibuprofen available as it is safer than paracetamol.
also, ibuprofen is more effective in reducing fever in children than paracetamol. http://news.bbc.co.uk/2/hi/health/7592585.stm

to control fever, ibuprofen can be taken.....then after 2 hours take paracetamol......then 2 hours ibuprofen. so minimum of 4 hours between the intake of same drug...for more clarification on this consult your doctor.

and always keep check on the temperature by having a thermometer at standby. do know the normal temperature for the part of body you are measuring.

when having fever no need to wear extra clothing or blanket...as mentioned.

for quick cooling of the body can mix water (room temperature) with alcohol to get concentration around 40% and use a cloth to wipe the body.

as mentioned above the antipyretic anal suppository medicine is very effective as it can be given even when there is seizure (oral route of administration of any drug is impossible), vomit (again unaffected in case of vomit) , and works very quickly (can see effect in minutes).

edit : seems like the link i pasted is out of date.....ibuprofen and paracetamol can be used safely together.....do consult your doctor for latest info.

This post has been edited by slimey: Feb 18 2011, 11:08 PM

auhckw, glad that your bb is back, I understand the stress you guys are going thru, when my bb is hvg fever its a very stressful time for both bb and parents.

My mum just called me. She said baby just vomit and diarrhea 5 times already. Lucky his body temp is ok.

I called the doctor, she asked us to change to soya milk and try to give more water.

I asked when to know it is serious and have to admit. She said, when the baby cannot take in any water and dehydrates/dry… then have to send admit

auhckw,

I hope your baby gets better soon. Dont hesitate or guess guess when you think you need to send him to the hospital. For soya milk, my son is currenly on Isomil Soya from 0 - 12 months. Quite good but need to drink a lot of water as soya based milk is said to be more heaty than cow based milk.

Take care!

take care
b strong for ur loved 1s

baby still have vomit and diarrhea? In my opinion, the doctor should not have allowed him to discharge from hospital. It means the virus/bacteria causing the sickness is still there. Should have let the baby stay in hospital another day to monitor. Continue letting the baby use drips would have avoided the vomiting. Anyway, too late now. Just monitor the baby closely.

At this stage when vomitting and diarrhea still active. Most important is to provide fluid. Minimum solid food. If milk also causing vomit then maybe try fruit juice. Most important is not to let the baby dehydrate. He won't want to eat anything anyway.

Did the doctor take his stool sample for checking?

When my baby discharge on Fri, he was not having the vomit thingi. He first vomit 1 time on Sat, and no vomit on Sun.

Only today he started to vomit and diarrhea more.

How does dehydration look like or symptom of having it?

doctors in hospital can use urine output, pulse rate, blood pressure.....

this can be hard to perform for non-professionals...

the easiest for non-professionals to monitor would be 1)skin turgor (lightly pinch and lift the skin (usually done on the back of the hand)). the skin should return to usual position in less than 1 second in normal.


2) skin moistness (feel the skin using the back of your hand) if the skin feels dry, then there's dehydration.

3) mucous membrane. check the mucous membrane opening the mouth and look. the tongue and walls in the mouth should be moist in normal.

This post has been edited by slimey: Feb 21 2011, 07:07 PM

Thanks for the tip. Will monitor his progress. He already diarrhea 8 times today Can see he is lembik...

Just came back from buying Isomil Plus - Tanpa Laktosa 1-10. Tonight will try. Hope he is able to drink it and recover fast.

if continue for another day I think you better send back to hospital, actually what causes the fever? did bloodtest show anything?

y wait?
be safe, not sorry

laktose intolerant would cause diarrhea but not up to this level. This is like too much. Anyway, anything is possible. As long as no fever, then it's much better.

What does the stool looks like? Color? Maybe it's Rotovirus.

http://en.wikipedia.org/wiki/Rotavirus

When he was in the hospital, his blood test was showing normal.

Yesterday, 8 times diarrhea, today 5 times. Watery diarrhea. Fever has gone away. Eating a little. Doctor said as long not dehydrated and no unusual thing, this is viral fever infection, have to monitor and it should go away few more days.

My mother got diarrhea and vomit today after handling my baby yesterday.... didn't know it can spread... so the advice is after cleaning up the baby, we have to clean our hands properly.

This post has been edited by auhckw: Feb 22 2011, 08:21 PM

My wife just told me that her friend's bb (about 20 months) also got the same viral fever with diarrhea now.

Guess where is the place both of our baby went before the viral fever happens? 1Utama Old Wing which is doing renovation at most of the shops especially near Jusco side. We went last Tues, my wife's friend went last Mon. Both bb got sick the next day.

According to our doctor and my friend's doctor.... both the doctor (in PJ area) said there are many cases of kids getting viral fever recently...

I don't wish to start any rumors or false alarm, but I would advice if you have kids, try to avoid going to Old Wing till their renovation is complete. Better be safe than sorry.

my bb just recovered from flu, friday nite fever started, saturday was near 40ºC, running nose and cough, but luckily sunday the fever subside. Now just running nose and cough, doc told me a lot of ppl catching flu. Ask us to try stay away from public places.

About 4 days ago my whole family of 10 people, ALL of us had bad diarrhea and vomiting for 2 days. We managed to trace the cause, my nephew got it from the kindergarten and started vomiting and diarrhea. The virus infected us when his grandmother washed him after his purging and probably didnt get her hands totally clean when she resumed cooking. Lots of people are suffering from the same virus here in KB and its surprising to learn that its happening in PJ too. We might have a pandemic developing here.

Anyway how is ur son coping with the lactose free milk? is he fussy towards it?

I'm definitely getting my 4mth old son a good thermometer very soon. I've also been told to stock on some medicine which is to be inserted into an infant's anus during seizure but i cant recall the name and its purpose. Hope you wont mind sharing it.

@Abubin: When a child is having diarrhea, he is not supposed to consume his regular formula milk as it contains lactose which will worsen the diarrhea. An alternative is to feed him nothing else but lactose free milk which are usually based on soya.

I have warned everyone about cleaning up hands properly after contacting with baby's poop or pee.

Now, my son is only taking very little milk (lactose free). Usually he can finish about 190ml, but now 90ml only. Porridge also 1/2 intake from his usual. We don't want to push him into eating more, scared he will vomit.

We bought the braun ear thermometer in the hospital's pharmacy. Cost us RM249 (I think should be cheaper elsewhere). Very fast result. Now my son knows whenever i said 'tit tit' means time for ear check. He will move his ears towards me.

The anal paracetamol that we got from the hospital is 'Voltaren'. To be used whenever baby's temperature will not go down after normal paracetamol intake from mouth. Above 38.5c can put in anal already, to be taken 6 hours once.

Oh dear me...thanks for sharing. I think it's best to not go out into crowded places for a time being.

Braun ear thermometer is not cheap..i was lucky that I exchanged my bonuslink points to get it.

Even if the baby does not have lactose intolerant feature?

edit: okay..googled for it and it make sense...

http://ibs.about.com/od/diarrhea/tp/DiarrheaFoodsAvoid.htm

This post has been edited by abubin: Feb 23 2011, 11:22 AM

just wanna add some information regarding the diarrhea treament in the house (if it is not in severe dehydration).
Actually the parents can also use ORS (oral Rehydration Salt) for diarrhoea.

So how much you wanna give?
usually the first thing is to encourage the child to frequently increase their fluid intake....but looking at their condition, it is very hard to do it.

so usually Dr will advice parents to add ORS solution with the milk, or just plain ORS solution. if your child is 2 years and below, 50-100 ml ORS should be given afterthe loose stools and if your child is 2 years or more, 100-200ml should be given after the episode.

You Child refuse to take ORS?
-parents can give a frequent small sips from cup or spoon
-if child vomit, just take your time 10-15 min, later continue the ORS

if your child is still breastfed, continue breast fed
food that contain high in sugar (simple sugar) should be AVOIDED!!! this will increase osmotic pressure thus will shift fluid flow from cell into lumen (Gut) then may cause diarrhoea....

click for more info regarding ORS preparation

---

Added on February 23, 2011, 4:41 pmYes it is..
and may i add just a little bit more...
Sunken Eyes and Capillary refill Time

For Sunken Eyes:



For Capillary Refill Time
For normal the capillary refill time should be turn back for less than 2 seconds and if more than 2 seconds, it is dehydration



This post has been edited by mikewazowski: Feb 23 2011, 04:41 PM

Monday:-
Baby - 8x Diarrhea + 1x Vomit

Tues:-
Baby - 5x Diarrhea
Mother in Law: 3x Diarrhea + 3x Vomit

Today (time of posting):-
Baby - 4x Diarrhea. No fever. Eating not much.
Mother: 3x Vomit
Father: 5x Diarrhea

My parent's turn to get infected after taking care of my son...

This post has been edited by auhckw: Feb 23 2011, 07:45 PM

alamak sounds serious, next week my bb start kindergarten I'm worried about exposure if this virus is floating around.

Just a quick advice.

Febrile fit:

-won't damage brain
-Age 6months to 5 years. (unlikely to persist beyond 6 years of age)
-control fever properly with Paracetamol and Tepid sponging with warm water. NOT ICE Water plzzzz. Based on evaporation theory.

-Turn child on side to prevent aspiration of fluids into lungs.
-Dont put anything in mouth. Do more harm than good


Diarrhoea/Fever

- Drink more water preferably not drinks with too much sugar ( mineral water ) NOT 100plus. ORS aka Oral Rehydration Salt is awesome
- Reduce or replace cow's milk formula. Breast milk cannot stop
- REST. No shopping till late night with child.
- Again plz don't put ice or cold water on ur child. WARM Towel enough. We are not putting off a fire here.


Hope ur child has recovered.
God bless

---

Added on February 24, 2011, 10:49 amThink I should add this. Dont think CHICKEN FEATHER for Chi Mo Tan works..More exposure to germs I think.

This post has been edited by henryhing: Feb 24 2011, 10:49 AM

Surprisingly, this "chi mo tan" method of treatment seems to work. I have had skepticism on this method as there are no known explanation on how this treatment method actually work.

However, I have had family members who had non-stop fever went for this treatment and it WORKS. Throughout my experience already seen at least three person went for this treatment and each one says it works. Including my daughter who was treated this method when she was 5 yo. I am still puzzled on how this works. So, if someone would care to do a study on this method and find out how it works then it will be great. Until then, I would not discount this method as an alternative treatment for unexplained fever that western medicine cannot handle.

So far today no diarrhea from him. He can drink more milk (lactose free). He is still weak when he is walking but at least a bit more active already.

Hope we can close this chapter... now left sick are the 4 adults who has taken care of him.

This post has been edited by auhckw: Mar 20 2011, 01:50 PM

For the adults, my best advice is to avoid food altogether for as long as they can. We managed 30 hrs after the 1st symptom.

By eating, this viral caused diarrhea will be prolonged. Can be as long as a week with intake of normal food. So again to speed up the recovery, avoid food altogether and preferably, 24 hrs n above. We wont die of hunger if without food for 2 days.

But most importantly, must take ORS regularly. Normally when an adult is feeling dehydrated, he or she is already badly dehydrated. Dehydration will lead to further problems slower recovery time.

stressful time, baby can't describe the sick feeling..


take care!!

my daughter had this when she was 4. she was ok and act normal. suddenly her eyes rolled up, unable to respond to me.

it was the most terrified moment in my life.
soon after i learned it was fits,
during that period, she had twice fits, fever was too high unable to control with medicine. i have to put her down, let her saliva drip. sometimes she will pass urine at the same time. after that she will feel tired and wanted to sleep.

How can this thing happened twice within 2 months...

He caught a fever since yesterday and even with us trying to control, giving medication and monitoring his fever closely, he still got the seizure.

It all started with him shivering and turning blue, then we brought him into air cond room trying to cool him down, but still he collapse and went into seizure. He woke up within 1 minutes, but we can see he is very weak, eyes not looking normal and shivering. Due to him shivering, we use a light cloth covering him and quickly put a wet towel on his forehead. Gave him a bullet up his anal. Packed and rushed into the hospital.

Upon arrival, the nurse gave another bullet up his anal and the dda medication (since he has got fits before). Then she stripped him naked, and started wiping a wet towel from his head to toe. He was all wet and crying out loud. It was very cold, but she said this is the normal procedure of cooling him down.

Then the medical doctor came and examined. She said we better admit him so that they can monitor closely and also to take a blood test since his stool has some blood. She said, next time when his fever cannot go down, use the same technique. Use a wet cloth and wet him from head to toe. She said it is very normal that the baby will shiver and turn blue cause his fever has gone too high. It is better he is cold, shiver rather than getting the seizure.

Now we are waiting for doctor to come the next day and check on our baby. He is sleeping now, Hope all is well... I am very scared...

Earlier, doctor came into our room and said to remove all his clothes to fasten his cooling down in the aircond room. He is only left with his diapers and a nappy cloth.

We are now in the ward, baby is sleeping but he keeps crying whenever he opens his eyes with fear and went stiff of fear.

He is not looking at us. Doesn't respond to the direction of things we are showing him.

I want to collapse in fear... hope we can go through tonight and tomorrow morning things are normal back. Dear God, please let us go through this...

This post has been edited by auhckw: Mar 20 2011, 01:51 PM

Sorry to hear about your difficult time but I can assure you that there is nothing to worry about it if is a febrile seizure.

Like the name suggests 'febrile' = fever, 'seizure' = shakes. And little kids can have shakes from their fevers.

Most will never have their shakes again. Unfortunately some of them will have repeat shakes. None of which would cause harm to the child.

Definitely very terrifying but I hope this puts you at some ease to know that a simple febrile convulsion does not cause long term damage.

Now no more fever, but my fear is that he screams whenever he opens his eyes. Is like he cannot see. I tried to show him things, but he is ignoring. He shivers, stiff, cry, biting teeth but no fever.

Whole night the same thing on and off. This morning woke up massive diarrhea till the bed is also dirty.

He is refusing liquid. Now waiting for doctor to come. Nurses suggested to change room to try.

Doctor came and said what he is having is partial fits, where he is still going through the seizure without fever, eyes not focusing, stiff, shivering, teeth grinding... which means for the entire night, he has about 6 to 8 times partial fits.

Doctor said she has to transfer him into HDU (High Dependency Unit). They put all kinds of cables onto him to measure his heart rates, etc. Also gave him the oxygen tube and another tube through the nose for medication and food. They gave him drip too.

For the entire whole morning till now, he is still not properly awake and still having the partial fits on and off.

Doctor said she has arranged for H1N1 test, Blood test, Urine test, MRI Scan, X-Ray Scan, Brain Wave test for him.

The things he is going through now is unbearable....

Oh no... I'm so sorry to hear what you are going thru.. I hope all will be ok. I will keep u in my prayers..

Situation not better yet. He is still semi unconscious since yesterday till now. They did MRI scan and found abnormal brain infection. The doctor said for such case only neuro doctor can handle and best around is in HKL. Today will most likely transfer. Now we pray that this is cureable...

Oh goodness. Hope ur child will recover asap la..God bless

So sorry to hear about your son, hope and pray that he will get well soon. Take care!

Transferred to HKL. We managed to get the head of the pediatric neoru to attend to our son. Dr said he is in coma (middle stage). Diagnosis should be ANEC (japanese virus). Some sort of bacteria he was exposed recently. Only attack children (newborn to as big as 8 years old). 1/3 will die, 1/3 will recover with severe damage, 1/3 will recover with minor damage. There is also possibility of full recovery, but he said 1 out of 15 from his experience. They now transferred him to ICU and on machine support for oxygen. They put cables all over him, tube through mouth and nose. They have started treatment with steroids on him We called him and in his coma state his tears came out. We are helpless... Hope for miracle.

Anyone reading this, please pray for us. Appreciate it.

---

Added on March 21, 2011, 10:28 pmANEC: http://www.ajnr.org/cgi/content/full/31/3/396


This post has been edited by auhckw: Mar 21 2011, 10:28 PM

All the best auhckw. It's no longer a simple febrile seizure and sinister pathologies like this does catch everyone off guard.

My thoughts are with you and your family.

auhckw, hope u n ur wife get stronger coz ur boy needs every bit of ur support... hope he get well soon...

Is it extremely sad to see what my son has to go through this. It is also very sad to see my pregnant wife who is going to deliver soon going through this too. My life is torn apart.

I have decided to 'fast' on a few thing that is important/routines to me till he gets better. Hanging around in Lowyat.net is some of it. I have got to know many new friends from here, but at times like this nothing else is more important.

Hey bro hang in there for ur kid. Don worry its just matter of days before everything is back to normal. Its all part of life. Nothing bad last forever...God bless u and ur family bro

hang in there...you will see the sunshine soon. My thoughts and prayers are definitely with you and your family.

Wah, i feel so helpless to. Life is so fragile man, but never give up thing may turn around. Let us all appreciate what we have right now before too late.

Sorry to hear that, let's pray for his speedy recover. Take good care of yourself and your wife too.

My prayers are with you and your family ...

Sounds like encephalitis. I pray that he pulls through.

im so sorry to hear whats going on there.. for a while i was speechless. You are indeed pillar of strength for your wife and kid, stay the way you are!

my prayers with you, your wife & child.. I am sure god that planned the best for you. Hang in there bro...

My thoughts and prayers go to your child and your family. I cannot even imagine what you and family are going through, and can only offer our moral support. Whatever path this leads to, just remind yourself to be strong for your family.

recently my 6mo just have a rather simple high fever, even then we are already panicking. I just can't imagine the stress you and your wife and family is faced with.

We will pray for you and your son. If possible please PM me his actual name. God will hear one more prayer today at least.

my experience how to handle it

when your child got fever, pls touch his feet/hand.. is it cold? or hot?

if it is cold, pls use your hand to scrub and do whatever you can warm back his hand and feet. this is the method we always use and it worked

if it is hot, pls try to get a wet towel, wipe his whole body, take off all his clothing.

while you were doing this, give plenty of water, talk to the child. no sleeping coz sleep may increase the temperature. check the child temperature every 5 mins.

dont worry, your child will be fine. take good care of your wife coz this may scare the hell out of her.. she is pregnant isnt?

love_hina...i'm not sure if you have properly read the whole thread but his child has just be diagnosed & admitted to hospital with some sort of encephalitis which is just not like any other fever.

Life has changed since the last 1 month+ since this happened.

I have been sleeping in the hospital for nearly 26 days. My son is now back at home. His condition is stabilized. But damage is already done.

Certain part of his brain has been damaged. It is ANEC, but unknown to what virus/bacteria that triggers it. Blood test came negative for Influenza A, B and H1N1. Doctor cannot explain how he got it. It can be from anywhere, anytime and anything. It is just unfortunately he is wrong place wrong time and got exposed it.

At the moment, his brain has caused him to have Dystonia (http://en.wikipedia.org/wiki/Dystonia). He is either sleeping soundly, staring blanks or screaming in pain due to stiffness/cramps at both legs and hands. He is awake but not fully conscious. He cannot respond to things. A lot of suffering for him.

He is not able to eat/drink through mouth. He cannot swallow his own saliva either. So right now, we are feeding him milk through tube.

Since he is back home, we can see his condition are improving. Not by big improvement, but small small improvements. Doctor said on the bright side, he is still small and there are some chance he may improve, but doctor said we have to be prepared that it may not.

We are not losing hope. We are still keeping faith. Life is tough, but if this is what god has decided for us... we will go through this test.

Thank you for the update. I'm sorry to hear what has transpired. I'll definitely keep u and your family in my prayers - to give you strength to go through this trials and for recovery.

At this moment, I don't know what to say but just to pray for your child and also for you and your wife.
What the doc said is true, he is still so young and I do believe miracle do happen. As long as we never give up, your child will definitely grow up to be better and better. Although we cannot be certain that he will 100% recover but definitely he can grow to be independent and leading a very normal life, under the love and nurture from the parents.

I am not telling lies, I do see miracle happen because of love.
My ex-colleague is the only son in the family and he was 22 years old when he got into an accident with a lorry. He went coma and the doc explain that the nerves in his brain is just like a bunch of wire being pull out. Doc said he would be vegetarian state forever and recommended to end his life. But his parents insist to keep him as they cannot afford to lost their one and only child. But he wake up 1 year later, bed-ridden and could not talk. Over years, we see him from bed to chair.. from chair to walking stick. Since the day he wakes up, he learn to talk all over again.. And now .. he is still on walking stick and talking (very unclear) but everyone is happy .. as he is independent in his own way. Due to his brain reaction slows down ever since, he could not work outside. But he is helping at his father's shop. At least we have him back. Every improvement to his state is a milestone for everyone and we are glad to have him with us.

So, have faith. We understand your future will be very tough having to bring up your child this way. But always remember, he is your gemstone. His future lies on your hand now and he will make it, if you believe in yourself. God will give us chance, if he sees that we really work for it.

TS, have faith... if u feel like toking, we have a bunch of ears rite here

Sorry to hear about the unfortunate turn of events auhckw. I came back to post on this thread to see how things were going. I wish you and your family the best and only good things from now on.