Emma Kok FB

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GASTROPARESIS

Because I went viral I gained a lot of followers, so that’s why am gonna tell my story. I have the chronic illness ‘gastroparesis’ which means that my stomach is paralyzed. It’s a rare disease. Because my stomach is paralyzed I can’t eat like normal people do. I can eat the tiniest bits just so that I can taste some stuff. But that’s also why I have tube feeding. I have two feeding pumps since I was a baby.

5 years ago I got diagnosed with gastroparesis. And all those years I had tube feeding but no diagnosis. This month is extra special to me because it’s ‘GASTROPARESIS AWARNESS MONTH’. Because it’s a rare disease there’s also no attention to it. And I don’t think that’s fair. Because of that I started my own foundation called ‘Gastrostars’. You can donate money and you can find more info about gastroparesis. I wanna get better, I don’t know if I will get better. But I wanna keep faith and hope and that’s why I started Gastrostars. I would appreciate if you took you’re time to look at my foundation and hopefully one day we can find a solution 🤍

André Rieu Stichting Gastrostars


Imagine someone who cant eat. Cant even insert anything at mouth, cant even taste any food. Entirely depends on tube for feeding. She was award with very beautiful voice indeed



This post has been edited by bani_prime: Jun 30 2024, 12:23 PM