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 Penang Cholesteatoma surgery, i m scared😭

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TSLA773
post Mar 26 2021, 05:07 AM, updated 9 months ago

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Hi all sifus, anyone had experience on this cholesteatoma surgery? Based on my Google search for past 2 days, all recommended was surgery? It means cannot take medication for cure?
Im now in penang, looking at all options as i was recommended for this surgery due to hearing problems,. After CtScan found some fluid in my middle ear.
May need 2nd or 3rd opinion, any recommendations specialist or penang GH, even in kl is ok.
craxors isaw ur posts on this before, hows tje experience, n any advive bro?
https://forum.lowyat.net/topic/4604046/+40

Suddenly feel lost

This post has been edited by LA773: Mar 26 2021, 09:54 PM
TSLA773
post Apr 6 2021, 08:58 PM

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QUOTE(Justin.Loong @ Apr 6 2021, 05:51 PM)
Hi bro. Any updates?
Hope everything is going well.
*
Im Currently on medication for 3 weeks, followup checkup next week

This post has been edited by LA773: Apr 6 2021, 08:59 PM
TSLA773
post Jul 4 2021, 12:53 PM

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QUOTE(craxors @ Jul 4 2021, 07:25 AM)
sorry to here that bro....

how bad is it? sad.gif
the surgery went well.

but doc said they will need to leave a hole in the ear for easy checkup later... so advised cannot dip into water/lake/pool etc. scare water get in there.

can but have to wear ear plug.

checkup every few months or when feel necessary. its not coming back but some time got fungus inside so go see doc for clean up.

so far all ok. hopefully yours too.
*btw mine; doc suck out that thing as big as an egg. already covered whole area in the ear. "simpan" too long already.  sweat.gif
*
Oic...
Urs is the endoscopic method?
Or the cut through the ear shape outside the earlines?

Need to leave a hole there & Cannot go to water or pool is temporary few weeks after the surgery or permanently?
Mine is quite minor, so use endoscopic method
TSLA773
post Jul 4 2021, 12:56 PM

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And mine from ct scan is small like pinples only, probably 1cm2
TSLA773
post Mar 19 2025, 01:10 AM

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QUOTE(WaNaWe900 @ Mar 19 2025, 12:50 AM)
Just Google on the Tympanoplasty Surgery and looks really scary  :confused:
Oh my... hope mine not getting that bad catching cholesteatoma since it just few months  sweat.gif
Mine just found that there's a hole in right eardrum last Nov 2024... and still open until today.. after several occurrence of ache effect, the clinic ask me refer to ENT specialist... first consult with one specialist not bother on the holes and given me betaserc 24 mg cost 3+++ then after catches another relapse I consult another ENT specialist with audiology test cost 4++ and scheduled for operation this week sweat.gif

Still not sure on either Endoscopic or Microscopic but the method looks like Type 1 Tympanoplasty (Myringoplasty) from the explanation
Googling some YouTube and looks kinda scary  blush.gif

Any advice for those going similar conditions highly appreciate  notworthy.gif
*
Mine was endoscopic

Took me many months before deciding to proceed with surgery o not
Before deciding which hospital and specialist, make sure know that the doctor is well experienced in the surgery..
Ask every details u have doubt in

And what are the after effect for each method of surgery

U going to which hospital? How much is the surgery?
TSLA773
post Mar 19 2025, 01:14 AM

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QUOTE(WaNaWe900 @ Mar 19 2025, 12:50 AM)
Just Google on the Tympanoplasty Surgery and looks really scary  :confused:
Oh my... hope mine not getting that bad catching cholesteatoma since it just few months  sweat.gif
Mine just found that there's a hole in right eardrum last Nov 2024... and still open until today.. after several occurrence of ache effect, the clinic ask me refer to ENT specialist... first consult with one specialist not bother on the holes and given me betaserc 24 mg cost 3+++ then after catches another relapse I consult another ENT specialist with audiology test cost 4++ and scheduled for operation this week sweat.gif

Still not sure on either Endoscopic or Microscopic but the method looks like Type 1 Tympanoplasty (Myringoplasty) from the explanation
Googling some YouTube and looks kinda scary  blush.gif

Any advice for those going similar conditions highly appreciate  notworthy.gif
*
They didn't do any ctscan to see if any foreign stuff inside ur middle ear?
Then how they decide what to do during the surgery?
TSLA773
post Mar 19 2025, 01:28 AM

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QUOTE(WaNaWe900 @ Mar 19 2025, 01:20 AM)
Yeah sound few more doubt need clarify tomorrow after read thru the thread  thumbup.gif thanks a lot

Will be admitted in KPJ Specialist  sweat.gif  just applied for GL, no estimation seen yet  unsure.gif
CT-scan schedule for tomorrow to confirm the middle ear conditions after admission, from scope seem no foreign stuff inside yet as eardrum quite transparent  sweat.gif
*
U won't be able to see through the eardrum, if the foreign particles are too small or more inner

But why are u admitted if haven't do those scan?
Suppose to do ct scan, go home few days and wait for the result and analysis.. Then the doctor share what he propose.. If u agree only schedule a surgery
TSLA773
post Mar 19 2025, 01:41 AM

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QUOTE(WaNaWe900 @ Mar 19 2025, 01:35 AM)
Yeah the doctor had highlight about this yesterday and since the hole obviously there quite some time.. I thought of doing it together during in-patients coverage med card instead of going separate ways  sweat.gif  notworthy.gif
*
Ok
Have u consult a few other specialists before decide on the surgery?

IF it is not urgent, take few weeks to explore ur options
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