QUOTE(TAGreptiles @ Feb 24 2017, 06:48 PM)
Hi buddy,
I lost someone dear to me, to lung cancer as well. Diagnosed Adenocarcinoma Stage IV. She fought and survived for close to 5 years. I'm not going to give you advises on what the course of treatment and what to eat or "cancer preventing food" or anything like that.
What I can share with you is my experience. You/your family should get educated, and know about the drugs that is given to the patient. Get involved in her treatment, and try to read up on the drugs that is suggested before making a decision. Join focus groups and forums, and stay in the know for latest developments in the treatment of your particular kind of cancer. Just so you know, many countries/hospitals offer free clinical trials for newly developed drugs. We've done a few in Singapore General Hospital previously.
While taking advice from people is good and those giving advice often mean well, what you should prioritise is the patient's happiness and general well-being. Do not restrict what the person want to eat or do just because "it will make the cancer worst" or anything that people tell you. What I can tell you that there's nothing worst that can happen to you if you already got the big-C. Maintain quality of life. There's no point surviving if the patient cannot maintain a good quality of life. Take into account the patient's feelings when making major decisions like changing drugs, or second opinions. Remember, happiness and high hopes are often better than the best cancer medication.
This is going to be a trying time for you and your family. You will see true colours of friends, family and strangers. You will find help and support in places you least expect, likewise with rejection. Ignore the rejections/true colour of people, we are only human, and take all the support that you need. These are often given freely. Do not hesitate to ask for help even when its a listening ear.
There will be times when the results are good, there will be more times when the results are not so good. Stay strong, or show that you are strong. Do not be discouraged. Your support means more to the patient than you know. So you have to show her that you are strong for her. Again i stress here, maintain quality of life. Go out and celebrate when you have good results. Pull a strong face, "try again" when its not that good. Moods, feelings, and thoughts have more effects than you realise.
All in all, good luck, stay strong.
QUOTE(fruitie @ Feb 25 2017, 01:57 AM)
IKN Putrajaya is good. My mum had breast cancer in 2014 and went through 6 rounds of chemos and 25 times of radiotherapy. She had her tumour removed in Pantai Bangsar as the Breast Cancer Specialist was based there. This Specialist was the one recommended us to IKN even though my mum has insurance coverage.
My mum was diagnosed when she was 61 years old and that qualified her as a senior citizen. Her chemo treatment was less than RM 50 each round and radiotherapy was free of charge. She was offered with a stronger treatment (I forgot the name as I'm very bad with medical term) after her radiotherapy and this treatment actually needs to go through for one year but not as suffering as chemo. It costs RM 150k in Pantai but IKN offered to my mum the same price we paid for her chemo!
However, my mum didn't accept the offer as the Oncologist and her Specialist in Bangsar told us at our mum's age, this is just an optional treatment and we should respect patient's decision. I could understand my mum's situation at that time because she was eagerly waiting to complete her radiotherapy and suddenly was asked to "lock" for another year of treatment. Hence, she declined.
Right after her first chemo, she was unfortunately bitten by an unknown bug which caused her arm to swell and she had high fever. We quickly sent her back to IKN and and she was hospitalized for a week and they arranged a single room for her. Gave her a strong antibiotic that her hair fell immediately. My sister was pleasantly surprised the bill was only RM 60.++ when she was discharged.
My advice is go back to IKN, Putrajaya again and if possible get a recommendation letter from your mum's doctor. We were very happy with the service rendered by IKN staff, I must say far better than some of the private hospitals we went before. We didn't specifically ask for any discounts as it was already a blessing that my mum managed to get her treatments there but we were very pleased when they auto waived some of the expenses because my mum is a senior citizen. Facilities are good and staff are friendly and competent.
Though it's a government hospital, my mum didn't queue for that long to get her first chemo. Less than 3 weeks inclusive of the time to visit the Oncologist to decide on her drug and treatment.
I think you should give another try for IKN.
QUOTE(EdBaaBaa @ Feb 25 2017, 10:24 AM)
I strongly agree with this statement; there will be countless people telling you to take or do this or that, don't bother to argue - listen, nod, smile2 and decide for yourself if you want to follow it.
Don't be swayed by anecdotes eg my colleague's friend's granduncle 3x removed, did this and he was healed.
Anecdotes are not evidence.
thanks for all the support and help from you all , i really deeply appreciated , Yup , maintain the quality of life is very important , after digging into more info on lung cancer , i bet there's no 100% cure for it and my mum it's already at stage 4 .
i'll just try to give her the best medication doctor suggest , and hopefully it will reduce her suffering symptom such as cough , chest pain and short of breath , so that she could live life like a normal person and get back the quality life for the amount of time left for her .
i'm forcing myself not to think about losing her, but it stucks on my head everynight , sad and stressed out . But no worries , i'll try to be as strong as i can .
thanks once again for all the support and help everyone .