Latest news from what you can expect for a local treatment. Okay i'm quite late, but now there's slightly more info on what our healthcare is doing.

Firstly, genotype 4 patients can rejoice, if you're willing to wait a little longer, maybe 18-24 months (that's long, very), you can have it as low as 300$.

http://www.thestar.com.my/news/nation/2016...on-of-the-cost/

It's called ravidasvir+sofosbuvir, when combined, no name yet, is said to have 100% cure rate (ok, there's no such thing as 100%, but whatever)

BUT, genotype 4 is very minimal in our country, and the most recent abstract at 2015, [Neither genotype 4 nor 5 was detected]
https://www.ncbi.nlm.nih.gov/pubmed/26063029

None! And a dated one says it's at 1%.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4670951/

This post has been edited by dtdw: Jan 3 2018, 11:03 AM

I have a PM regarding this from another person. Don't know how i missed this post.

The first thing is, to understand which genotype a patient is. This is important in order for the correct translation of the generic medicine.

Since you are suggested a Sofosbuvir, it generally means that you need to pair it with another generic (not a qualified opinion, but it is based on my own research using fixhepc.com). For my dad's case, when combined with ledipasvir, the branded name is Harvoni. We didn't take harvoni (since it's over 80k USD), instead we took the generic version of it Twinvir

Most of the details was actually posted on the first thread as well as in subsequent post updates. But i'll list it out again for everyone to see.

Step by step:
1. Get a doctor's prescription.

2. Contact Alimul Razi From Incepta Pharmaceutical and ask for the details.
a. His account name
b. The current price in USD.
c. Take out cash after converting USD to RM.

3. Go to one of your nearest western union branch and fill up a form.
a. One of the officer's name
b. Transfer in RM, after the counter convert the current exchange rate.
c. Get the receipt of transaction.

4. Email/Whatsapp Alimul the following
a. Your doctor's prescription
b. Your passport
c. Your receipt taken from western union.
d. Where you want the parcel to ship to.

5. Wait for Alimul to reply a tracking number.

6. Track the parcel on it's arrival. Sign and receive the package.

This post has been edited by dtdw: Dec 18 2016, 09:10 AM

Glad to be of help

Just a reminder, please make very sure of your own research on this subject matter of genotype and it's appropriate medication. I seem to repeat myself on this alot, but I still need to stress this as a first rule advice because not many people know the amount of genotype and it's complication. The wrong combination or lack of it, will reduce the cure rate.

I am not qualified for an answer as to which exact combination is needed on top of sofosbuvir. Some doctors do not have the knowledge as to this subject matter as well.

I don't feel like doubting your doctor, but to recommend only sofosbuvir seem like a mistake to me, as what i have been told it needs to be with one other generic to make up the higher chance of cure rate.

If you can, I would suggest to register in http://fixhepc.com/forum.html and ask for a better opinion. There will be a doctor (Dr James Freeman) that is qualified to give a better opinion. In fact I asked them a few missing bits of info (which our doctor doesn't have) before i managed to source out the necessary information for my dad.

Wish you all the best in your journey to recovery

This post has been edited by dtdw: Dec 18 2016, 09:15 AM

coffee81

Thanks for your input and contribution. It is frustrating indeed to have nothing fall in our favor. As compared to widely available treatment for other common "illness" that seemingly can fall under insurance coverage (if eligible), hep c is indeed a headache and frustrates many people.

What you went through is a miracle indeed, as we can only pray and hope for not getting into trouble, just like my case.

I'm not sure if your doctor recommended the generic meds to you, or you did your own research? If your doc has recommended to you, you can easily ask for a prescription letter from him. It looks like this



And I also think Incepta Pharma has the combo for sof+dac, which will reduce the bottle to just 3 per 12 weeks treatment.

Few things I would like to point out as to why my shipment went through without issues for 2 times.

1. The declared amount is low, i won't state the amount (for obvious reasons)
2. The content is very little
3. Prescription letter to back it up
4. Sbg airport and DHL have good relationship, things past kastam easier thus avoid unnecessary inspection

Some pointers, technically it is not very little. 3 bottles is more than their 1 month no matter how i look at it, but they take all the above into consideration.

They can either look at all of it, or depending on their mood, and/or relationship with shipping company. Everyone has different results from my research based on people importing health supplement from places like iherb. Effectively, some people say 3 of each type of item is the max in 1 shipment, and the max is RM 400 (?). And yeah, the shipping company with the airport also play a role apparently.

This post has been edited by dtdw: Dec 24 2016, 08:55 PM

Mayb ask him the origin of this picture of Corevigen http://fixhepc.com/forum/daa-access/435-in...f-led-comb.html

A few of them in fixhepc managed to get it but very little info. Mayb they discontinued it i'm not too sure.

For those concerned about beacon pharma and wire-transfer issue, take a look at this thread http://fixhepc.com/forum/daa-access/1405-b...rmacuicals.html.

At first with Incepta I thought why is there so much hassle and even have to use western union, and the reps at Incepta told me something to do with bank issues. It is true indeed.

I also didn't know you can do WU transaction via Pos so it's good to know. I faced the same issue that banks have too many restriction, so one of the bankers advice we go straight to any WU standalone branch and things gets done easily.

This post has been edited by dtdw: Dec 25 2016, 08:35 AM

Happy new year everyone !

Let's all stay positive despite so many negative things we're receiving lately.

May 2017 bring you good wealth and health !

It's advisable to split it into 3 shipments, but you also need to split it to 3 different names and address if you're shipping it together.

I would however recommend you to get combined version of the generics as that will reduce the amount of bottles needed. But if it is really unavoidable like the previous person (due to lack of combination of the generic), then you'd have to split it. He got the letter of warning is most likely because he didn't provide the prescription letter.

If you can get the doc to confirm if his prescription letter allows you to import 9 bottles, then it's all the better. Just ask the doc to write it clearly the name of the generic, the brand, and the amount of bottles. If it gets stuck in customs, the letter should provide backups and the hospital is responsible for it since they issued it. Although I can't confirm if it works this way since I've never tried it (with this many bottles).

Example:

3x abc (brand x)
3x def (brand x)
3x ghi (brand x)

You can refer to the post above for example of a true copy of prescription letter.

This post has been edited by dtdw: Feb 3 2017, 12:09 PM

You're welcome. Awaiting for your updates.

>>

For everyone that's following, If I didn't reply on time here, you can reach me via PM.

The notification goes to my email which I check everyday.

Had a few people PM me for some advice, which is great.

I'm glad this is picking up, never thought this will gain traction (if any).



Hopefully we'll be seeing some updates soon by others, the more people update with proof, the better it is for everyone who's suffering from HCV.

This post has been edited by dtdw: Feb 16 2017, 08:51 PM

I have just received a message from @Aniketsancheti.

I would like to stress that we will prefer not to deal with personal messages from dealers, but if you can list your sources that can be validated via fixhepc.com then it shall be no problem.

For anyone that might have received messages from various dealers, just double confirm the company is listed in fixhepc.com and it's contact details are accurate.

Have a nice day.

Nearing end of apr, here's the report on the awareness.

I'm getting occasional PM, some from newly registered members.

Here's the search term so far



It's ranked last, i'm hoping to beat the rest if at all possible. The rest of the sites are just plain lousy in conveying facts and truth.

In terms of SEO, i said it before, i strongly believe this site is giving too many do-follow outbound links which google doesn't like very much.

I hope to reduce the amount of links on the first post yet still able to convey facts and figures.

If anyone is reading this and want to help, all you need to do is search the term, scroll down to this forum link post and click on the results. This will push it up and eventually rank it higher than these useless news portal.

Look at this themalaymailonline.com/malaysia/article/moh-to-propose-importing-generic-hepatitis-c-meds all talk and still talking, until when they wanna talk? It's been 1 year since i started this topic and 2 years since some article talked about expensive prices.

This post has been edited by dtdw: Apr 27 2017, 01:37 PM

Just an update, i'm still around if anyone wants more info. Ive responded to a few PM and will go through a few more. I wasnt well myself this week, so please bear with me.

August update.

Nothing much to report, everything is fine, if you need more info feel free to pm me.

Hey, if you've done proper research and sourced the generics correctly, you have nothing to worry about.

I would suggest to head over to fixhepc and ask around there if they can help to verify.

Edit: Rephrased

This post has been edited by dtdw: Feb 6 2018, 08:45 AM

Hey, thats great to know ! I have not been checking this thread as of late, i missed that question earlier. I cant find the name of the centre that does this test but what i do know is the patient will still need a letter from a Dr.