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Medical Conditions GERD / Heartburn Problems, Anyone suffering this too?

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TSjohnseamus
post Nov 13 2015, 12:43 PM, updated 9y ago

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Hi guys ,Hope you guys can help me out , if not share your experience here too.

I have been suffering from GERD for about 6 months now. Started in mid april this yr and still ongoing till today. Experience heartburn on daily basis (if i dont take a ppi). So my story is, since april i've started to get mild heartburn then went to see gp and got some ppi which helped but the heartburn keeps come back after i stop the drug.

So in july i went to do gastroscope, revealed GERD and small hiatal hernia. Doc said nothing serious but it makes me feel like crap though. Done blood test in april for h pylori and the scope did check for the bacteria , both negative.

So far i have tried : pantoprazole , nexium , omeprazole and famotidine. Omeprazole works best for the heartburn. one pill down and never worry for 1 day but lately it's been giving me side effects (i think?) like muscle pain and mild joint pains. The other drugs do not work as good as omeprazole. Have also tried supplements like calcium magnesium, apple cider vinegar etc.

Any other gerd sufferer here? would like to hear you guys experience too for this 'not serious' but feels like dying condition.
TSjohnseamus
post Nov 13 2015, 12:52 PM

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QUOTE(skloda @ Nov 13 2015, 12:46 PM)
doctor prescribe me Nexium
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How long have you been taking it? Any side effects?

I tried nexium 20mg for 5 days and my stomach area feels painful..
TSjohnseamus
post Nov 13 2015, 01:42 PM

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QUOTE(stormaker @ Nov 13 2015, 12:56 PM)
I have suffering from GERD for a year now, only 1st 3 months doctor prescribed me the antacid, but after that they stop it n I'm not on any medication right now.

Doctors also didn't try to diagnose the root cause of my GERD, they only done the endoscopy to confirmed it.

Now, I don't know what to do except drin Rooibos Tea everyday and live with it.  sad.gif
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How are u feeling now that u are not on drugs? Is rooibos tea helping the burn n pain?

QUOTE(skloda @ Nov 13 2015, 01:07 PM)
doctor give me 1 month supply , after that i stopped taking it .. now ok already
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You must be the lucky ones. I'm tried to stop drugs but the pain is just too much.
TSjohnseamus
post Nov 13 2015, 03:02 PM

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QUOTE(SeanVinces @ Nov 13 2015, 02:12 PM)
Stop having any heavy/spicy/oily/ food, eat more porridge & drink more water, keep it like for 2 weeks & of course rest more! I used to took gaviscon when have heartburn, when i feel stable i took Omesec with empty sotmach.
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Already tried fixing the diet but not much help. Gaviscon works , for like 2hrs then continue burning lol
QUOTE(stormaker @ Nov 13 2015, 02:15 PM)
I have most of the GERD symtom ... frequent heartburn, burning sensation on tongue, tooth became sensitive due to enamel erosion, ears sometime feel itchy n sometime pain, throat constantly feel there's something there n sometime feel pain as well.

Rooibos tea helped with my symtoms for very short time, but i hope in long run, it can improve my GERD condition.
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I think if you have frequent symptoms better see doc again because esophagus damage can come on and become serious over time
TSjohnseamus
post Nov 13 2015, 03:18 PM

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QUOTE(DaydreamV2 @ Nov 13 2015, 03:14 PM)
I have taken around 1 year and stop for quite sometime then taking as and when required. I have found out that taking spicy and sour foods will make it worst.
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Wow one yr already. Do you notice any side effects? Doc warned me will have calcium loss hence recommended calcium supplements .
TSjohnseamus
post Nov 13 2015, 04:13 PM

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QUOTE(DaydreamV2 @ Nov 13 2015, 03:24 PM)
Sure have side effects. Also gain weight as need to eat more meals to prevent stomach discomfort. Also, 3 in 1 coffee mix is too acidic for me.  cry.gif  cry.gif
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Haha i gained weight too, eating too many meals.

Do you experience muscle ache or joint pain when taking the omeprazole?

40mg daily is quite strong i think..im taking 20mg daily
TSjohnseamus
post Nov 13 2015, 04:25 PM

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QUOTE(DaydreamV2 @ Nov 13 2015, 04:20 PM)
Ya. some pain here and there. Another problem I am having now is short breath severe cough. According to GP its due the reflux went into my lung.  cry.gif  cry.gif
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Sounds serious bro , have you consulted a gastro specialist before?

Seems like its really hard to find a good doc for gerd. i went to see 2 gastro before and they don't seem to care much although i'm in pain. Most doc just tells me this is 'nothing serious' and dont worry about it just take the pills. If you guys know any good doc pls recommend to us smile.gif
TSjohnseamus
post Nov 13 2015, 08:43 PM

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QUOTE(slimey @ Nov 13 2015, 04:52 PM)
Have you spoken to a surgeon to discuss about surgical option of hiatal hernia repair plus fundoplication?
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When I did the scope , the specialist advised not to do anything about it since its just small hernia and my symptoms can be controlled by PPI.

QUOTE(barium @ Nov 13 2015, 07:30 PM)
basically all the specialist doctor out there will just say the same..am gerd patient here too. have it almost 5 years. keep coming on and off. Seen alot of specialist and most of them just like you mentioned, "never care". They just cant understand how suffering this is to us. I cant eat, cant sleep nicely. And they can just easily say its not serious, just eat your medicine. Everytime when they say this to me, the moment i walk out their room, i pray to god hope that they get GERD just like me... So that they understand the feeling of "not serious" that they said to me.. mad.gif  mad.gif  mad.gif
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Yes exactly , I need one good doc that cares too. Most of them seems like they just want to make a quick one. I have read a lot online and it seems like there could be a dozen possible supplements one can take to solve the heartburn.

I've tried some of them , will be trying HCl supplement and licorice root next to see if it works for me. Some western researcher believe gerd is caused by less acid not too much acid.
TSjohnseamus
post Nov 13 2015, 11:54 PM

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QUOTE(barium @ Nov 13 2015, 10:47 PM)
My case is definitely too much acid.

Last time I was on Nexium 40mg, but the medicine gave me severe headache. Then later on i changed to dexilant 60mg. Works good for me without any side effect. Have been keeping this medicine with me all the time in case GERD attacks again. As for supplement, I'm taking Nuvapine A320 daily. can see some improvement. Also, I've totally cut off all spicy food. Spicy food is the biggest enemy to us GERD patient. so dont take it. i miss nasi lemak  cry.gif  cry.gif
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Yes spicy foods triggers me too but strangely sour foods like ketchup/lemons dont trigger me. I can eat a whole bk whopper meal feeling normal but just abit of chilli and it burns.

Just take nasi lemak without the sambal then i've been doing that for sometime now lol

How old are you guys if you don't mind me asking? i'm only 26 this yr..

This post has been edited by johnseamus: Nov 13 2015, 11:56 PM
TSjohnseamus
post Nov 14 2015, 12:13 AM

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QUOTE(samowong @ Nov 14 2015, 12:00 AM)
My advice:
1. If taking PPIs long term, please monitor your renal function and creatinine regularly as incidences of acute interstitial nephritis have been reported

2. I've encountered a case with painful gynaecomastia after prolonged intake of PPIs.

3. Food to avoid (on top of all that's been suggested) - alcohol, caffeine, "lemak" food, and smoking. Eat frequent small meals.

4. Lose the tummy (if present) and / or tight jeans - they cause increased intra abdominal pressure which may delay gastric emptying and cause more reflux.

5. Focus when eating - the gastrointestinal tract is lined with smooth muscles. Smooth muscles are controlled by the autonomic nervous system, which is beyond our control. But what's on our mind affects the motility of the stomach and the intestines.
I.e when you're munching on something while rushing through your work, your body is in sympathetic overdrive which slows the gastric motility, but the gastric needs to work to digest the food you're munching, so, go figure.

6. De-stress - Similar to No.5, stress hormones put your body in a sympathetic state. Even a short walk does wonders. I find a lot of people who are under stress do not know that they are in fact stressed.
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Thank you, very helpful advices there.

Stress definitely does play a big part in the cause of gerd. In fact most if not all docs i seen told me my gerd is caused by stress. My stress is alot lower now than few months ago and have noticed i can tahan 1-2 days without omeprazole now.

I have tried manuka honey before , it helps the stomach alot if you're on ppi but doesn't really help the heartburn for me.

Apple cider vinegar - it's like gaviscon effect. Few hrs of relief then burning comes back.

Calcium supplements - No difference for me, but for those on long term ppi should consider taking as ppi is known to reduce calcium absorption.
TSjohnseamus
post Nov 14 2015, 06:13 PM

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QUOTE(barium @ Nov 14 2015, 10:01 AM)
I'm also 26 years old : ). Dont whop a whole lot of food at one time. its not good. you need to practice to eat small and frequent meals. especially at night time.

You gotta be really patient with GERD. you're only having it for 6 months. Many of us have it for years. the longer you have it, the better you know how to cope with it, the non medication way. It requires a strict discipline on food intake and some lifestyle changes.
+1.

totally agree. I took my dexilant PPI only when necessary. like once or sometimes twice a week.

the fact that gaining weight will only worsen the situation, i've then started working out just to make sure i dont get fat.  biggrin.gif
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Yes i guess i still have more to learn from this. You're 26 too? How long have you been suffering for?

QUOTE(sembilan @ Nov 14 2015, 05:56 PM)
I had this pain for the past three weeks and due to my low tolerance of pain, I went to see a gastroenterologist and went for an upper endoscopy procedure today. Negative for h. pylori but positive for hernia and GERD. Will have to visit the doctor again next week for further consultation, which I think will most probably be useless.

I feel as if I am losing it soon, eating bland soupy stuff for the past three weeks.
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Bro i know how you feel. Did they tell you how big the hernia was?

You can try to do this simple exercise every morning to find some relief - https://www.youtube.com/watch?v=qu2MQqS2ucY

But don't do it after eating, before eating in the morning works best for me. I drink 2 full cups of water and do the dropping down action.

This post has been edited by johnseamus: Nov 14 2015, 06:16 PM
TSjohnseamus
post Dec 26 2015, 12:22 AM

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QUOTE(yashin @ Dec 25 2015, 10:29 PM)
Tried similar to everyone here, famotidine, zantac, nexium. Nexium seemed to me the best but also very expensive. It was good though, for a while when j was taking it about once a week. Then sometimes one per day.

Also tried probiotics, different types but I found it had little effect.

Dietry changes proved more difficult and not always easy to figure out.

Recently read that many gerd sufferers had low levels of cacium and vit D, started taking a supplement and not had a tablet since. I read some calcium types can make gerd worse so look into it. 

It seems there may be a link between acid reflux and these mineral ions being low. Am willing to continue to try a supplement if it easea my symptoms and stops me needing the pills.

Positive effects so far. Type calcium and gerd into Google, lots of articles
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Mind to share which calcium supplement that worked for you?

I've taken calcium - magnesium supplements before but didnt helped much
TSjohnseamus
post Dec 26 2015, 08:42 PM

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QUOTE(yashin @ Dec 26 2015, 09:31 AM)
I'm taking caltrate 600 plus I think it is calcium citrate. This is the one referred to in the articles. There is some concern that it would make the reflux worse but the key with calcium is to have it in the evening and straight after a heavy meal.

Only been trying a month but I was popping either nexium 20mg/40mg or famotidine on a daily/regular basis.

My doctor was OK up to a point, told me to cut out coffee and she was convinced dairy was a major cause of reflux especially cheese. I tried but I do enjoy a cup of coffee. Cheese was easier to give up.

I'm not convinced about the calcium yet but it seems to make sense and like I say give it a go. Just stick to the dose as calcium is also a problem for kidney stones in this heat.
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Thanks , might buy it to try myself.

I've been and still taking omeprazole almost daily right now. Tried to switch to zantac last week but failed miserably , too much burning lol

Do you guys know any good doc for gerd in kl/PJ area?
TSjohnseamus
post Jan 11 2016, 08:18 AM

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QUOTE(vectorian @ Jan 11 2016, 01:10 AM)
I have Gerd too since Sept last year (about 5 horrible months). Went to see a Gastro specialist and was scheduled for endoscopy and colonoscopy at the same time in late Oct. Results came back as positive for Gerd but negative for everything else thank god.

The doctor then prescribed Dexilant 60mg for about 1 month with Ganaton and then lowered down to Dexilant 30mg with Ganaton for 2months. Even with these PPIs, I still consume Gaviscon Advance twice every single day (after lunch and before bed).

I just saw my doctor last week and was given Dexilant 60mg again but this time he told me to take it only when I need it instead.

Due to me feeling like crap, loss weight and being weak, I felt I may need to find another solution. Googling these past few days lead me to the concept that I may be having low acid instead.

So johnseamus, have you tried the low acid healing methods yet?
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Hi

Yes ive tried herbal supplements and home remedies for low acid before and they worked to certain extent. You can try apple cider vinegar with some water or dgl licorice or even betaine hcl supplements. These are good for low acid and healing of the stomach. I find dgl really useful for me as it could make my stomach feel like normal again (with growling and a lot less reflux)

I used to take omeprazole 20mg + gaviscon normal twice a day when my gerd is at its worst. Now with my stress gone down and my stomach going back to normal , I'm doing pantoprazole 20mg daily only. Would advice you not to take too much drugs especially PPI as they have vast side effects down the road if you take too much.

Try to understand your stomach and symptoms more and find the root cause of reflux rather than taking pills to rid the symptoms. Also ,do not stop taking PPI all of a sudden . you will experience bad rebound acid as these drugs cause it. You need to reduce the dose to let your stomach get used to higher acid over time too.

And yes , those doc advice's like eating on time, avoid spicy food sour food, sleeping with elevated pillows definitely helps a lot.
TSjohnseamus
post Jan 11 2016, 09:05 AM

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QUOTE(rippein @ Jan 11 2016, 08:23 AM)
Don't waste money on prescription medicine. I used to have terrible GERD. I started consuming Apple cider vinegar. Mix it with lukewarm water and honey and drink it every morning. Now its gone.
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That's nice. I tried apple cider before and couldn't continue as it kinda made my throat swelled up . did you take any PPI before trying the apple cider?
TSjohnseamus
post Jan 11 2016, 08:20 PM

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QUOTE(vectorian @ Jan 11 2016, 06:43 PM)
Thanks for the advice John. I think its high time I give the Betaine HCL and ACV a try since nothing else works. Even my gastro doctor tells me he's perplexed about my condition cause he said I am perfectly healthy.

Should I wean off this PPI first before starting on Betaine HCL + ACV regime?
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Yes definitely wean yourself off the PPI . it will take some time but this gerd tests all our patience. Docs said I look good too but we all know better how terrible this disease feels like.
TSjohnseamus
post Jan 11 2016, 09:44 PM

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QUOTE(vectorian @ Jan 11 2016, 08:58 PM)
Thanks guys..  Guess the question now is where do you guys purchase the HCL?
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Got mine from iherb.com
TSjohnseamus
post Jan 17 2016, 10:05 AM

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QUOTE(vectorian @ Jan 15 2016, 10:11 PM)
Ok just to update, I stopped my PPIs for since Wed and drank a warm cup of ACV with a bit of honey in the evenings. Cap that off with Gaviscon at bedtime. Hoping to continue this till Monday and see how it goes.

Will consider HCL from iHerb next week. Thanks for the recommendation John!
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So how are you feeling so far?

Can i ask if you could buy dexilant from a pharmacy or does it need a prescription? I usually get my ppi without any prescription from normal pharmacies
TSjohnseamus
post Sep 17 2017, 12:43 PM

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QUOTE(aloha2017 @ Sep 17 2017, 12:39 PM)
Did anyone here stop dexilant or nexium after sometime get acid rebound for the first few weeks?
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Yes I myself experienced acid rebound after stopping ppi. What I did was cutting down the dosage over weeks as advised by the doc . You can try to first cutting your dose to half of what you're taking now.

Then cut to taking a dose every other day , then every two days until there's no more rebound. That's whats working for me.
TSjohnseamus
post Sep 17 2017, 12:53 PM

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QUOTE(aloha2017 @ Sep 17 2017, 12:47 PM)
How long it took you?

I been on zero PPI for 7 days.. feeling better but still too much acid at night
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About 8 weeks to cut down to one dose every 3-4 days

I took pantoprazole which the doc said is a 'weaker' ppi. Not sure how true this is.

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