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 Rheumatologist for SLE Lupus, Please Help! =(

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sah147
post Apr 30 2015, 02:36 PM

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Please, please quickly go see any rheumatologist, the itchiness is a symptom, treat the underlying reasons first, before it spreads to internal organs.

The one at Tawakkal Hospital is good. The doc may suggest a round of treatment with some fairly strong intravenous drugs to "knock down" the over-active immune system.




sah147
post Apr 30 2015, 05:25 PM

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QUOTE(uglyduckling422 @ Apr 30 2015, 05:10 PM)
the bath gel where to get?
Yes im having lupus. just knew it last year...
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@uglyduckling422 the drug is cyclophosphamide (http://en.wikipedia.org/wiki/Cyclophosphamide)

Unfortunately SLE is is not easily diagnosed and most non-rheumatologists ascribe the symptoms to eczema, dengue, a lot of other stuff. There's a DNA test they can do to determine for sure if it's SLE or not.

You can just drop in and see the doc, and ask for the DNA/Anti-DNA test for SLE - they will draw some blood and you will get the results in a few days. Don't delay.
sah147
post Apr 30 2015, 05:49 PM

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@babybb you can also get 1st hand support from SLE patients at http://www.lupusmalaysia.org

The skin rashes can probably be helped by steroid-based creams to reduce the inflammation, but see the doctor first. This is a chronic illness (don't think it's curable using current medical tech) so it's important that the patient has a long term trusting relationship with the doctor.
sah147
post May 2 2015, 03:19 PM

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QUOTE(babybb @ May 2 2015, 09:09 AM)
Thanks sah! I will run a quick search on that.  smile.gif
Thanks Tham! I heard of vitamin D3 are benefit with lupus patients as well. Not sure wanna recommend my mum have it as a supplement anot.

user posted image
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@babybb let us know what medication the rheumatologist prescribed once you've seen. Please note that supplements are just that - SUPPLEMENTS and they're not supposed to replace the prescribed medications. I've heard about a lot of SLE patients who went off their medication when they feel that the supplements are helping. They did not survive very long sad.gif
sah147
post May 9 2015, 06:03 PM

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QUOTE(babybb @ May 9 2015, 02:23 PM)
Sah, any good rheumatologist can recommend at tawakal?
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Dr Abdul Shukor Abu Bakar, I recommend notworthy.gif

 

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