So i finally got my diagnosis and i found out i have Malignant Peripherals Nerve Sheath Tumour , MPNST for short.

Apparently its a rare kind of nerve cancer, My doctor, Dr Ranjeev basically is just a consultant and its not his expertise in this kind of disease ( but honestly such a nice doctor, answered all my question even my stupid retarded questions and made me feel safe ) . so referred me to the general surgeon, and i felt really disappointed, it was as if it took one look at it and gave up. He basically told me he wont operate because its too risky and that even if  i were to do chemo it wouldnt work. I expected a solution or atleast dont immediately give me a death sentence. The only helpful thing he did was referred me to a doctor from selayang who may be able to help me. Disappointed because i had to pay for that useless consultation.

Then i had to go to see the oncologist who i felt was pretty useless as well , looked at my scans , didnt really give me a treatment plan, said it was too risky and pointless to do surgery if they cannot remove all of the tumour. Chemo MIGHT work and told me maybe i should go to another hospital.  The thing that pissed me off the most was the fact that when my sister asked her to explain more about this cancer she just said "its a nerve cancer" ( like duh we already established that i have nerve cancer)  , then my sister asked, how rare it was , then she just blurted out "thats not important" . by that time , i couldnt care less about what she had to say because i was just sitting there thinking, GREAT another useless consultation that i have to pay for.

Basically i started this post because i wanted to know if theres someone out there who is having the same kind of cancer as i am or is a survivor for this kind of cancer.
I promised my family, boyfriend and friends i would do my best to kick cancers ass. 

I have NF1 which is why i guess i have this rare kind of cancer. i have already spoken to the Selayang doctor, he didnt beat around the bush, he said upfront it is a complicating surgery and high risk but he was hopeful at the same time, chemo wont work but he said maybe radiotherapy might.

Unless i am sponsored i dont think i will be able to seek treatment abroad, too expensive.

Just an update, i just got discharged from the hospital and the manage to successfully removed the tumour , im not cancer free yet, still have to wait for the lab results on the tumour to get come back and then see whats the next course of treatment.