Another extremely rare tumor here, though yours is benign.

Based on the medical literature of about 80 to 90 cases of hibernoma
worldwide every 15 years since 1985 of which about :

10 percent are in the neck; and

2 percent in the supraclavicular region.


My guess is that there are currently just about 250 cases worldwide, with perhaps -

25 in the neck, and

5 supraclavicular.


This means that your wife's case is probably just the 5th or 6th reported
in the literature. You ought to contact Medline to update their database.


Your surgeons must have been very skilled to remove such a rare and
precariously located tumor without incident. Gracee of the other thread with
the similarly very rare adrenal and kidney tumor ought to consult them.




Case of hibernoma in the right supraclavicular fossa.

'' To our knowledge, only three cases in the supraclavicular fossa
have been documented. ''


http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3822477/




The morphologic spectrum of hibernoma:
a clinicopathologic study of 170 cases.


http://www.ncbi.nlm.nih.gov/pubmed/11395560




'' Review of the world literature reveals about 80 cases, but only six
hibernomas in the cervical region have previously been reported. ''

http://www.ncbi.nlm.nih.gov/pubmed/4056584




'' Review of the world literature reveals only 40 cases .... ''

http://www.ncbi.nlm.nih.gov/pubmed/950863





This post has been edited by Tham: Nov 2 2014, 12:23 PM

Technically, the surgeons would have to submit a report on her case
to a medical journal, after which the abstract or full text would appear
on Pubmed after it has been approved and published.

Their database would then be updated with their study, which will appear
in their search engine.

Medline is a database of medical studies, or abstracts rather, published in
journals worldwide. Pubmed is the name of their search engine which
searches this database.

http://www.ncbi.nlm.nih.gov/pubmed


Full-text articles, if free, are found in PubMed Central, or PMC.

http://www.ncbi.nlm.nih.gov/pmc/



But anyway, you could give feedback, write on their Facebook page, or
twitter to inform them of your wife's case.


http://www.ncbi.nlm.nih.gov/About/glance/contact_info.html

http://apps.nlm.nih.gov/mainweb/siebel/nlm/index.cfm

https://www.facebook.com/ncbi.nlm

https://twitter.com/ncbi





This post has been edited by Tham: Nov 1 2014, 09:45 PM