My wife have a rare tumor in her brachial plexus, doctor suspect could be Liposarcoma. We started with Dr. Lee Moon Keen (MK Lee) from Pantai, after some examination she told us the condition was uncommon and referred us to Dr. Rajesh Singh from Sunway Medical for prognosis.

Dr. Rajesh sent my wife for MRI scan, after reviewing the report he said it could be a low grade cancer, the lump was sitting on top the nerve resulting to pain and discomfort on my wife's left arm, neck, back scapula plus she's also losing strength and sensation on her left arm & fingers, muscle wasting can also be seen on her palm.

He told us this is a complex issue because it involves the brachial plexus and nerve, I ask for a direction on what to do next, he then referred us to Professor Dr. Zulmi Wan at Pantai and told us this Professor is an expert on such cases.

Has anyone heard or seen this Professor before? She's very worried and hope to seek treatment ASAP. May I know which is the best Orthopedic surgeon in Kuala Lumpur.

This post has been edited by Xccess: Sep 1 2023, 07:36 AM

Latest update. Under the advice of Professor Zulmi Wan, we proceed to Kuala Lumpur Medical Sport Centre for another round of MRI with better resolution. I must say the radiologist (Dr. Low) is very professional in her analysis including written report.
Based on her finding, it's unlikely a case of Liposarcoma as image of the mass is fuzzy, there's also appeared to have some kind of scarring. She suspected this could be a case of Desmoid Tumor. Next is back to Professor to schedule a biopsy.

This post has been edited by Xccess: Sep 1 2023, 07:35 AM

Thanks for the update. Let us know ya once diagnosis completed so that we can learn and know more also this type of tumor.

Noted. Will update after biopsy.

Latest update. Surgical Biopsy done on 9th October 2014 at Pantai Bangsar, operation was carry out by a hand surgeon (Dr. Iskandar) and Professor Dr. Zulmi Wan. We be getting the result later today.

Cost for surgical biopsy is around RM7,000.00.

Covered by insurance medical card?

Insurance rejected the claim as the first doctor made some mistake in his report. We will submit the claim ourselves.

Ok, back from Hospital with biopsy report. We were told due to the small samples submitted, they were unable to get a very accurate results. An operation had been arranged, they will remove the tumor and submit a portion for analysis. Operation cost around 25K - 30K.

Interpretation from biopsy:
Features are suggestive of Hibernoma. However due to small size of the biopsy, hence not representative, an atypical lipoma or well differentiated liposarcoma in other areas cannot be excluded.
To correct clinically.

If this is indeed Hibernoma then treatment will be straight forward, surgical removal with no radiation therapy needed as it's a benign tumor.

This post has been edited by Xccess: Sep 1 2023, 07:37 AM

Operation lasted 5 hours, tumor successfully removed. Thanks to Professor Dr. Zulmi Wan and Dr. Iskandar, process took longer than anticipated because tumor was growing inbetween nerves and muscles thus have the trace them individually.

Tumor was broken into several sections in order to safely remove as not to disrupt the nerves. Photos of the operations was taken and shown to me, I will try to get it from the doctor so can post it here.

All tumors sent for examination, result will be release next week.

Operation cost RM25,500.00

This post has been edited by Xccess: Nov 11 2020, 11:36 PM

Hope she is fine and speedy recovery

Thanks. Already discharged today and resting. Can see sensation improvement on her fingers. Road to recovery takes at least several months.

Good to hear that

Thanks! Just got back from hospital today, went to remove stitching and last follow up will be next week. Tumor examination report came in today, all are non- cancerous cells (Fibrous and benign fats aka hibernoma)

Doctor can't explain why fibrous tissues and fats can grow in this area (Supraclavicular). It's very rare indeed and caught them by surprise, nevertheless everything went smoothly and we are both very grateful to Professor Dr. Zulmi Wan and Dr. Mohd Iskandar.

This post has been edited by Xccess: Oct 21 2014, 03:26 PM

Incision was done between collar bone and trapezius(Back shoulder muscle).

6-7cm

Wow, long big stitch

Good to hear that it is non-cancerous cell

Total cost how much for this whole thing?

wow..hibernoma will also cause pain. glad all is ok.

Ya, doctors need sufficient open area to traced individual nerves and making sure no damage is inflicted during the process.

Thanks! Total damage is close to RM 40k including X-Rays, 3 x MRI, consultation, biopsy, operation & medication.

This post has been edited by Xccess: Oct 23 2014, 09:49 PM

glad to hear everything is good, and wow 40k
hope your wife has a speedy recovery !
How is she doing so far ?

I recently found an adrenal mass, near my right kidney , i got diagnosed at SJMC since i live in subang so is quite convenient.
Now just waiting to find out what kind of cancer i have.

Test , scans and biopsy cost a bomb -.- , hopefully no more inconclusive results =/