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prody
post Jun 17 2011, 03:51 PM

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QUOTE(cc980024 @ May 20 2011, 01:28 PM)
For girls who have this G6PD, they are just carrier... those moth ball and kacang parang stuff is not so much risk to their life.

But if is G6PD boy, then those forbidden stuff is life threatening.

My boy is G6PD too... that could also proven that myself is a carrier and that is why it inherit to him.
No need to be over panic about this. Just be alert.. keep those kacang parang away and dun use any moth ball. Regardless is 1 pc or big amount... I dun think you wanna risk your baby boy on this. Besides that, dun consume any chinese medication.
Have check with paed, he said... not all chinese herbs or medication will post risk to G6PD kid... but as we know there is too many kind of chinese herbs, and we dunno all of them... better dun risk taking it.
Paed also warn me not to take any "soh hup" pill and "wu gam" pill .. those chinese pills for post-natal.. coz we do breastfeed.. is dangerous. But I already taken it.. (just 1-2 times only.. coz my MIL dun buy more for me as she say it pricey.. tongue.gif)... and lucky nothing happen to my boy.

My MIL still keeping moth ball at her home even we ask them to throw all away.. .she still buy new for use sad.gif
We visited her house once a mth.. so far.. god bless.. my boy is ok. But I will have to warn my boy (now 4yrs) to stay away from those moth ball. I guess educate my boy to stay away is rather easier than educate my MIL to stop using moth ball.. Hai...
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This is incorrect. Girls can be g6pd deficient too if both the father and mother carried the affected gene.
prody
post Jun 21 2011, 11:51 AM

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QUOTE(keithcky @ Jun 17 2011, 05:04 PM)
I am 30 and have G6PD try to avoid some Chinese medicine and 'chan tau' beans.

My last check long time dr says G6PD already done. But some drs told ms G6PD won't go off. Anyway I've no problem with all the beans and Chinese herbs smile.gif
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No, you are not producing enough of the g6pd enzyme. So far didn't find any news that people could start producing more of the g6pd enzyme.
The fava beans are the worst, not sure about other beans.

prody
post Jul 4 2011, 03:36 PM

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QUOTE(keithcky @ Jun 22 2011, 02:58 PM)
Err so far I am fine no problem with all the said food.

However will still tell Dr I've G6PD for safety smile.gif
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Yeah, better be safe then sorry. I'm still finding out more on this every day.
There are many different types of G6PD deficiency. Some require you to be more strict then others.
prody
post Jul 14 2011, 11:20 AM

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QUOTE(justreal @ Jul 13 2011, 08:56 PM)
im 28 and got G6pd since baby..
did your doctor give you a list that item/food to avoid?
if no, send ur email add to me, so i can send i copy to u
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Think it's good if you can share it here.
prody
post Jul 19 2011, 02:21 PM

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QUOTE(YoruNeko @ Jul 16 2011, 06:36 PM)
I am 17 yrs old girl with G6PD too.My parents asked me to avoid kacang parang, moth ball/napthalene,chinese herbs etc.  blink.gif
They told me before that this disease normally boys will have it.Isit true?
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G6PDD (G6PD deficiency) is passed on the X chromosome.

In most cases only 1 of the parents will have G6PDD, so usually girls (XX) will have 1 affected X chromosome and 1 unaffected X chromosome. So in that case the girl is just a carrier but not affected since the unaffected X-chromosome will still produce the G6PD enzyme.

Since boys (XY) only have 1 X chromosome they are always affected.

So that means your dad is affected and your mom might be affected but is definitely a carrier.

In short, mostly boys are affected.


Added on July 19, 2011, 2:25 pm
QUOTE(jimmykvt @ Jul 18 2011, 09:27 PM)
I was born with G6PD too but it went disappeared after I became an adult. Went for blood test twice and the doctor said I'm free from G6PD already.

Yeah, your child needs to be cautious with certain food like what they mentioned above.

Even if you bring your child to western doctors, tell them that your child has G6PD so that the doctor will be more cautious in choosing the right medicine for him/her. That's what my dad did whenever I fell sick during my childhood.
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I've been reading loads of info on this but so far haven't found a single reference that it can disappear. It's a genetic deficiency. Your X-chromosome can't simply change.

I guess it's possible they made a mistake while testing you previously or now. Stay alert.

This post has been edited by prody: Jul 19 2011, 02:25 PM

 

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