giving birth last 22 apr,but my son is diagnosed with g6pd.anyone hv some advice on what drugs n food to avoid?tq very much.

G6PD, I think Google and Wiki will be able to give you more information. My friend is a G6PD baby but she's 23 now.

From what I heard over the years, two things must avoid is:
1. Kacang Parang, the one that looks like kidney which is yellow in color but comes with a black shell. Salty. That one, you must never allow your child to eat because they dont have the enzyme to break it down in their body.

2. Moth ball, the types where you throw in your cupboard? If you have plenty of those in your house to clear away cockroaches, your baby will not be able to tolerate the smell in high amount, will cause the baby to faint. Which happened to my friend when she was younger. She visited one of the church elder's house, playing in the daughter room and suddenly fainted due to that smell.

Yeah... im 15 and i had it.. What my moms say la... And also my moms says dont smell the "minyak cap kapak".. My sisblings sometimes use it if they got headache... And also the result is fainted...

yup, mainly the kacang parang or some other beans

http://khim-dietnutrition.blogspot.com/201...enase-g6pd.html

For girls who have this G6PD, they are just carrier... those moth ball and kacang parang stuff is not so much risk to their life.

But if is G6PD boy, then those forbidden stuff is life threatening.

My boy is G6PD too... that could also proven that myself is a carrier and that is why it inherit to him.
No need to be over panic about this. Just be alert.. keep those kacang parang away and dun use any moth ball. Regardless is 1 pc or big amount... I dun think you wanna risk your baby boy on this. Besides that, dun consume any chinese medication.
Have check with paed, he said... not all chinese herbs or medication will post risk to G6PD kid... but as we know there is too many kind of chinese herbs, and we dunno all of them... better dun risk taking it.
Paed also warn me not to take any "soh hup" pill and "wu gam" pill .. those chinese pills for post-natal.. coz we do breastfeed.. is dangerous. But I already taken it.. (just 1-2 times only.. coz my MIL dun buy more for me as she say it pricey.. )... and lucky nothing happen to my boy.

My MIL still keeping moth ball at her home even we ask them to throw all away.. .she still buy new for use
We visited her house once a mth.. so far.. god bless.. my boy is ok. But I will have to warn my boy (now 4yrs) to stay away from those moth ball. I guess educate my boy to stay away is rather easier than educate my MIL to stop using moth ball.. Hai...

tks 4 all d advice.but i do take a lot of soh hup pill.so far is ok.4 d bean n moth ball,i know about it.any other things that is forbidden,pls add up.his BCG area at d arm that gets swollen,red n yellow on the centre.is this normal?since these 3 days only.

I have G6PD.
Just avoid Flava beans and mothballs.
For me i stay awaya and can't stand the smell or smoke of a cigarette and insecticide.
I'm not sure wether if i'm normal but i have high metabolism rate and sometimes gastric.

Stay away from some medicine also,

Everytime whn consult a doctor, do let them know ur child is a G6PD

You can find the list by google ya

ok tks 2 all 4 d advice.

This is incorrect. Girls can be g6pd deficient too if both the father and mother carried the affected gene.

I am 30 and have G6PD try to avoid some Chinese medicine and 'chan tau' beans.

My last check long time dr says G6PD already done. But some drs told ms G6PD won't go off. Anyway I've no problem with all the beans and Chinese herbs

No, you are not producing enough of the g6pd enzyme. So far didn't find any news that people could start producing more of the g6pd enzyme.
The fava beans are the worst, not sure about other beans.

Err so far I am fine no problem with all the said food.

However will still tell Dr I've G6PD for safety

Yeah, better be safe then sorry. I'm still finding out more on this every day.
There are many different types of G6PD deficiency. Some require you to be more strict then others.

im 28 and got G6pd since baby..
did your doctor give you a list that item/food to avoid?
if no, send ur email add to me, so i can send i copy to u

Think it's good if you can share it here.

yes.. i can share here, but this letter you must bring during your BB need any treatment/ medicine..
this some list that which contain in some item/food to be avoid during at home.


Dimercaprol (BAL)
Methylene Blue
Naphthalene
Phenylhydrazine
Acetylphenhydrazine
Probenecid
Vitamin K (Large Doses of Water Soluble Analogues)
Chroramphenicol ( c )
Quinidine ( C )
Fava Beans ( C )
Chloroquine
Nalidixie Acid (Negram)
Crinase

wondering what is ©? is it food?

I am 17 yrs old girl with G6PD too.My parents asked me to avoid kacang parang, moth ball/napthalene,chinese herbs etc.
They told me before that this disease normally boys will have it.Isit true?

I was born with G6PD too but it went disappeared after I became an adult. Went for blood test twice and the doctor said I'm free from G6PD already.

Yeah, your child needs to be cautious with certain food like what they mentioned above.

Even if you bring your child to western doctors, tell them that your child has G6PD so that the doctor will be more cautious in choosing the right medicine for him/her. That's what my dad did whenever I fell sick during my childhood.

This post has been edited by jimmykvt: Jul 18 2011, 09:28 PM

G6PDD (G6PD deficiency) is passed on the X chromosome.

In most cases only 1 of the parents will have G6PDD, so usually girls (XX) will have 1 affected X chromosome and 1 unaffected X chromosome. So in that case the girl is just a carrier but not affected since the unaffected X-chromosome will still produce the G6PD enzyme.

Since boys (XY) only have 1 X chromosome they are always affected.

So that means your dad is affected and your mom might be affected but is definitely a carrier.

In short, mostly boys are affected.

---

Added on July 19, 2011, 2:25 pmI've been reading loads of info on this but so far haven't found a single reference that it can disappear. It's a genetic deficiency. Your X-chromosome can't simply change.

I guess it's possible they made a mistake while testing you previously or now. Stay alert.

This post has been edited by prody: Jul 19 2011, 02:25 PM

Can suggest formula milk for G6PD baby??

Now i give my baby Enfalac A+ LactoFree = RM96.98.

Can you take soya.. soy sauce.. tofu etc?

definitely no